Elections & Explanations
November 8, 2012 at 10:22 pm | Posted in after death?, Grief, Love, normal? | 13 CommentsTags: child loss, death of a baby, hope, Mayo Clinic, new not so normal, post traumatic stress disorder, Sawyer, thoughts, unexplainable, unknown
Dear Sawyer,
Your sister has big plans! She would change the colors of the rainbow if she were elected president (just in case you cannot read her handwriting). Hopefully, if she does decide to run for president she will first brush her hair. I will not list all changes I would make. But if I did make a list, the first thing would be to find the cure for whatever took you away from us.
I try not to think about it but I still cannot believe that we do not know your cause of death. The first weeks and months after you died I could not think of anything else. I went over and over in my mind what could have possibly happened. I looked for more information everywhere. I thought if there was some logical explanation perhaps I could understand. No medical explanation has been found. I have tucked away the search for your cause of death. I will never forget or stop wanting answers. I just cannot let myself go there very often. We may never know why your heart just stopped. Even if we did, it would not bring you back. And, that is what I want most of all.
I still hold out hope that one day the study that you are part of at the Mayo Clinic will find something. Anything.
Time is moving forward, as it always does. I am not sure how it is possible but your 3rd birthday will soon be here. I do not want it to be another November 17th without you. I know there is no other option for me. Your birthday will come and go. We will not watch you eat your birthday cake. We will not take pictures of you opening gifts. Or hug you. . .
I will now put away that part of me that cannot stop obsessing about your unknown cause of death. I hope that where ever you are you know how much you are loved and missed.
Lost Girl?
November 2, 2012 at 10:22 pm | Posted in after death?, Grief, life after loss, normal? | 5 CommentsTags: child loss, dark days, death of a baby, Jake, new not so normal, post traumatic stress disorder, Sawyer, thoughts, twins, unexplainable
In my younger (pre-children days) I loved to travel. My parents took my brother and me on all kinds of exciting adventures. I was an exchange student in Finland for a summer. I spent a semester in Madrid. My first jobs at times required extensive travel. I was always happy to explore a new city.
In August of 2005, I held Jake,our first son, as he took his last breaths and a part of me died with him. My love for travel was buried with Jake. I could no longer be alone in my house let alone a hotel room in a far away city. Even driving alone in my car was excruciatingly painful for me.
The twins’ birth brought me happiness that I did not think I could/would ever experience again. However, that part of me that died with Jake was still gone. Travel now seemed out of the question. I did not want to let the twins out of my sight. I was no longer alone in the house or the car.
When Sawyer died so unexpectedly my ability to be alone vanished again. The 3 hours twice a week when the twins were in preschool seemed like an eternity to me. For awhile I could not even shower unless other people were in the house.
I do not think I will ever be the person that I was before Jake and Sawyer died. At times I do wonder if that person who loved to travel and see the world is still out there somewhere. . .
Life without you
October 26, 2012 at 9:42 pm | Posted in Love, normal? | 4 CommentsTags: baby loss, child loss, death of a baby, life after loss, new not so normal, quotes, Sad, Sawyer, thoughts, unexplainable
Dear Sawyer,
There are days that I just cannot stop my arms from aching to hold you. Today was one of those days. I think of you and miss you every day. Time is marching on as it always does. Soon it will be November again. Another November without you – just like every day since that awful night.
I carry the book of pictures of you that my thoughtful friends gave me. I hold on to it. It is not the same as holding you but I am so thankful that I have it. I cannot look at it often but I always have it with me. I love you to the moon and back sweet Sawyer. I will look for you in my dreams. Love you always.
Home is where the heart is. . .
September 30, 2012 at 11:02 pm | Posted in after death?, Cemetery, Grief, normal? | 7 CommentsTags: child loss, dark days, death of a baby, Jake, new not so normal, parenthood, Sawyer, thoughts, twins, unexplainable
I think that is how the saying goes. . .but what if your heart has been smashed into a thousand pieces? Where is your home then? I want my home to include all of my children. Jake never left the hospital. Sawyer did live in our home but not for long enough.
Our next door neighbors are selling their house. There has been a lot of talk about what people want in a house. A garage. A basement. X number of bedrooms and bathrooms. The top of my list is actually none of those options. My biggest concern is how far the house is from the cemetery where Jake and Sawyer are buried. We currently live 15 minutes away.
I was speaking to another mom at baseball practice and she mentioned that her neighborhood is at the edge of the cemetery. My mind filled with thoughts of what it would be like to be able to walk over to see Jake and Sawyer. Would I go more often? Would I ever go anywhere without going to the cemetery first? It is so hard to drive by it and not stop.
Today we went and picked out 4 mini pumpkins. One for each of the twins. One for Jake. One for Sawyer. I was thinking that I would bring them to the cemetery as I have done in past years. The twins had another idea. They insisted on bringing the pumpkins to Jake and Sawyer’s room. Jake never had a room in our current house. He was born and died 2 years before we moved into our house. Sawyer did have a room. It was the room next to the twins’ room. And, that is where they brought the 2 mini pumpkins.
Anger
September 24, 2012 at 10:46 pm | Posted in Grief, life lessons, normal?, twins | 7 CommentsTags: anger, child loss, death of a baby, Down syndrome, grandparents, Jake, motherhood, new not so normal, thoughts, trisomy 21
As human beings, our greatness lies not so much in being able to remake the world — that is the myth of the atomic age — as in being able to remake ourselves. – Gandhi
Anger. It is the 2nd stage of grief according to Elisabeth Kübler-Ross. At the time of Jake’s and Sawyer’s deaths I do not specifically remember feeling anger. Perhaps there was no room for anger because the stages of denial, bargaining and depression seemed to have trapped me. However, anger creeps into my life at unexpected times.
I was waiting in line with one of the twins so that she could sit in a fire truck. We were patiently waiting our turn.
We were in line behind a very cute girl with Down syndrome. She was not so sure about climbing up the stairs of the fire truck. The fireman offered to help her but she wanted to do it herself.
I asked the woman with the girl in front of us in line how old she was. She responded, “She is my daughter’s girl and she is 8.” I wanted to say something back to her like “You mean she is your granddaughter?” I remained silent. Jake would have been 7. Would he have liked fire trucks?
My little girl began to ask repeatedly, “When is it my turn?” My silence broke to reassure her that, “It is your turn next.”
The woman with the girl, looked at my daughter who at this point was jumping up and down as she continued to whine about her turn, pointed towards her granddaughter and said “This will really teach you patience.” And there it was – anger. I was angry at this grandmother. I have not walked in her shoes. I do not know the first thing about her life but I was angry. The voice inside my head wanted to explain to her that I too had a Down syndrome child but he died. He died before I got the chance to learn that level of patience. I once again remained silent.
Anniversaries (repost)
September 12, 2012 at 12:12 am | Posted in Anniversaries, Grief, life after loss, mourning | 2 CommentsTags: child loss, life after loss, new not so normal, thoughts, tragedy
The tragedy of 9/11 and its’ anniversary are kinds of grief. It is of course, an enormous source of grief for all of the families and friends who lost loved ones. It is also the kind of grief in which you realize that the world as you knew it will not ever be the same.
Hurricane Katrina hit New Orleans the week that Jake passed away. A very close friend of mine took her 5-year-old son in for his check up and the pediatrician found a rare heart condition. My grandmother had died. I felt like the world was coming to an end. So, I asked the rabbi who presided at Jake’s funeral about the possibility that the world was ending. He replied with an analogy. He said that it is like when you decide you are going to buy a certain kind of car. Once you make the decision you start seeing the car every where. So, my take away from his explanation was now that I was grieving I would start to see grieving every where. . . Turns out you don’t have to look too far for grief in this world. The record 7.0-magnitude earthquake hit Haiti shortly after Sawyer died.
I know that 9/11, where close to 3,000 people died; Hurricane Katrina, where 1,500-1,700 people died; and the earthquake in Haiti, where almost 230,000 people died are tremendous losses compared to the death of two babies. But, those babies were mine. And, my world will never be the same as it was before they had died.
There is not a contest for who has the most grief. I am not trying to compare my losses to these catastrophic tragedies. There are not any winners here. In grief we have all lost. However, there is still the next day and the day after that. And one day, there is a point where we will realize that our loved ones are dead but we are still alive.
I have previously posted this on 9/11. On the anniversary and every day, my heart, prayers and thoughts go out to not only the victims but to those who they left behind in this world.
Boys (& Girls) of Summer
September 10, 2012 at 12:04 am | Posted in after death?, Grief, life after loss, normal? | 6 CommentsTags: baseball, death of a baby, fathers, Jake, life after loss, lucky, new not so normal, thoughts, trisomy 21, twins
When Evan and I were told it was 100% certain that Jake had trisomy 21 (Down Syndrome), 1 million thoughts raced through my mind. I doubt I can adequately articulate my exact thoughts and feelings at that moment. However, when we were “by accident” told that Jake was a boy I remember very clearly the precise thought which entered my mind first. The realization that Evan might not be able to play little league with our son was the thought which resonated first (and loudest) in my brain.
Jake was born 14 weeks early and only lived for 14 days. He did not ever leave the NICU. He never played little league. His little brother and little sister did join a team this year. They played in their first little league game over the weekend.
The team shirts were randomly given out right before the game. I have always thought that Jake’s lucky number was 14. So, maybe just maybe he was there today too.
Letter to the Twins’ Kindergarten Teachers
September 4, 2012 at 10:10 pm | Posted in life after loss, Love, normal?, twins | 11 CommentsTags: baby loss, child loss, family, Jake, life after loss, new not so normal, Sawyer, thoughts, twins, unexplainable
Dear Ms. B. and Ms. K.,
We have been having a great year so far. The twins love being in your classes. We completed the Family Tree homework assignment which was due today. I thought I should clarify about a few of the leaves. The ones which I am specifically referring to are the following:
I honestly do not know what the twins will say about these leaves when it is their turn to present. They may say something like “Jake and Sawyer are flowers.” Or, they could tell the class how they bring stones to Jake and Sawyer. It is also possible they could tell the class which Halloween costumes they have picked out for Jake and Sawyer.
Jake was their older brother. He died before the twins were born. Sawyer was their younger brother. He died when the twins were 2 1/2 years old. I do not know if they have any real memories of Sawyer.
The twins will not cry as they excitedly tell you and the rest of their class about their brothers. They will happily talk and talk about them both. They will smile as they explain to you how much they wish Jake and Sawyer would grow.
If you have any questions please feel free to let me know (I will try my best but I can not promise that I will not cry).
Thanks again,
The Twins’, Jake’s and Sawyer’s Mom
100!
August 30, 2012 at 9:10 pm | Posted in life after loss, Love, silver lining, Time | 10 CommentsTags: birthday, centenarians, family, grandparents, gratitude, happy, happy birthday, hope, new not so normal, sad days, thoughts, williard scott
If things get better with age, then you are approaching magnificent. –Unknown
August is filled with happy and sad days for me but it always ends with the birthday of my amazing grandfather. He is 100! today!! In my opinion he has not only approached magnificent but passed it by long ago. I am so very lucky to have him in my life.
I submitted the birthday application to have the chance for Williard Scott to wish him a Happy Birthday on the Today Show. Apparently there are a lot of centenarians these days and Williard Scott did not wish him a happy birthday. So, I will . . .
HAPPY BIRTHDAY!!
Family Portrait
August 28, 2012 at 9:58 pm | Posted in life after loss, Love, normal?, twins | 14 CommentsTags: baby loss, family, Jake, life after loss, miscarriage, new not so normal, Sawyer, thoughts, twins, unexplainable
Here is our family. One of the twins pulled out her markers after school and this is what she created for me. In case you are not sure who is pictured here I will explain:
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I am on the left side and look as if I have never seen a brush in my life. However, I do have a nice purple bow in my hair.
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Evan is way on the right. He is very tall. And thin. He could also use a good hair brushing.
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In the middle are the twins. She is in pink. He is in blue.
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Also in the middle, and above the twins are our dogs, Buddy and Baby. They usually have their paws planted on the floor.
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At the very bottom of the page are our fish, Fred and Rose. Fred was recently renamed Lightening Flash Fred.
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Which brings us to the circles in the middle. . .The larger of the circles is Jake. The next largest circle is Sawyer. The smallest is for the baby . I did not realize they even knew that I was pregnant. I was wrong.
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