Twelve

August 27, 2017 at 10:28 pm | Posted in Grief | 9 Comments
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“It has been said, ‘time heals all wounds.’ I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens. But it is never gone.” Rose Kennedy

Dear Jake,
I started to write to you on your birthday.  I wanted to tell you how much we love and miss you but I just could not write.  This year your birthday and your yahrzeit were on the same date.  The happiest and the saddest day all in one.  Today is the English date that you died.  Twelve years ago.  I miss you today and every day, even when I can not write to you.  I will look for you in my dreams.  Love you sweet boy.

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Wave of Light 2016

October 18, 2016 at 7:00 pm | Posted in life after loss, Love | 5 Comments
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We lit our candles on October 15.

candles-2016

This year and last year I made the candles we lit.  I made candles that were given out at the Atlanta Walk to Remember.  There is not much I can do to lessen the pain that a bereaved parent carries throughout their lifetime.  I am hoping that the candle makes their path a little brighter (even if it is only for a little while).

quote - candle - 2015

 

 

Marching for Hope

March 30, 2016 at 8:28 pm | Posted in life after loss, Love | 2 Comments
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I do not like it but I have accepted the fact that Jake and Sawyer have died.  However, I refuse to give up hope that other babies can live.  I do not know how to save these lives but the March of Dimes does.  Please if you are in Atlanta consider walking with us on April 30, 2016.  Click this link to join Jake’s Journey and Sawyer’s Strides.  If that is not in the cards, consider whether you can support us in our fundraising efforts by clicking this link.

Every day, thousands of babies are born too soon, too small and often very sick — just like Jake was almost 11 years ago. Likewise, thousands of babies are born with birth defects or unknown medical problems that cause great hardships or unexpected deaths — just like what happened to Sawyer more than 6 years ago. We will be walking in March for Babies again this year because we NEED to do something about this, so that no family has to go through what we dealt with when Jake was born at 26 weeks, and no family kisses their child goodnight and never gets to kiss them good morning the next day like what happened with Sawyer. And we need your help. Please support our walk and fundraising efforts. Every dollar makes a difference. And in our case, every $1 = $2 due to a generous match by Northside Hospital. The March of Dimes uses the funds on key research, education and outreach programs. But we need your support. Nothing can be more important than all of us having healthy babies. Making a secure donation is easy: just click here. Thank you for helping us give all babies a healthy start! And thank you for helping us honor and remember Jake and Sawyer’s far-too-short lives.

 

 

 

thank you so much and a bit of happy

March 1, 2016 at 6:36 pm | Posted in Cemetery, Jake, Love, Sawyer | 3 Comments
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flowers2

Last week I went to the cemetery and someone left flowers for Jake and Sawyer!  I have not been able to figure out who left them but I want to thank you so much for being so thoughtful and for remembering Jake and Sawyer.

Remembering

October 20, 2015 at 9:36 pm | Posted in after death?, Jake, Love, Sawyer | 6 Comments
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quote - thank you

For remembering Jake.

And many thanks for remembering Sawyer.

I am forever grateful to all who keep Jake’s and Sawyer’s memories alive.

Life goes on (as it should) but another one of the important lessons I have learned in the 10 years since Jake died is I am no longer the same person.  Some call it their new normal.  I do not think there is anything normal about outliving your child/children.

As a surviving parent I am left to make sense of the unexplainable.  Some say that we all have purposes in life which we fulfill throughout our lifetimes.  So does that mean that Jake and Sawyer just fulfilled their purpose very quickly and therefore they had very short lives?

I wonder what were their purposes?  Are Evan and I supposed to help or continue their purposes?  I may never know the answers to these questions but I do know that I want Jake and Sawyer to be remembered.

The other day there was a discussion in the back seat of our car about ages of the twins’ friends and their siblings.  One of their friends has a brother who was born in September of 2009.  Another friend has a little sister born in December of 2009.   After we had dropped off their friends, Evan and I talked to the twins about their little brother, Sawyer, who was born in November of 2009.

Remembering
By Elizabeth Dent

Go ahead and mention my child,
The one that died, you know.
Don’t worry about hurting me further
The depth of my pain doesn’t show.
I’m already crying inside.
The tears that I try to hide.
I’m hurting when you just keep silent.
Pretending he didn’t exist.
I’d rather you mention my child.
Knowing that he has been missed.
You ask me how I was doing.
I say “pretty good” or “fine”.
But the healing is something ongoing.
I feel it will take a lifetime.

 

 

October 15th

October 14, 2015 at 9:32 pm | Posted in Jake, life lessons, Sawyer, traditions | 3 Comments
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quote - candle - 2015

Tomorrow is Pregnancy and Infant Loss Remembrance Day.  As part of the day, everyone is invited to light a candle at 7 pm in all time zones, all over the world.  The idea is that if everyone lights a candle at 7 pm and keeps it burning for at least 1 hour, there will be a continuous wave of light.

Today and every day I miss Jake and Sawyer but tomorrow at 7 pm we will light candles.  This year I will once again hope that the light from all the candles will make the darkness of the unknown a little brighter.

Update – October 15, 2015 at 7:30 pm:

Remembering Jake and Sawyer and all the other babies gone too soon

Remembering Jake and Sawyer and all the other babies gone too soon

 

Walking to Remember – Together

September 30, 2015 at 10:36 pm | Posted in Grief, life after loss | 4 Comments
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One of the difficult and important lessons that I learned after Jake’s death is that I cannot do this alone.  After Jake died, Evan and I were told about support groups.  At the time, I could barely come to terms with the fact that Jake was dead and I was not.  The thought of going to a group where everyone told their own tragic story of their child’s death seemed unimaginable to me.

Then one excruciatingly dark day in January of 2006, I realized that I needed to know how other parents got up every morning and live in a world without their child/children.  Evan and I decided that it was time to go to a support group.

Every year since Jake (and then Sawyer) died we have walked in the Atlanta Walk to Remember.   It is an event to connect parents and families together to express grief and remember our babies, and to raise awareness.  It is not a fundraiser.

It is just a time to remember our lost babies together.

This year the walk will be held on October 4th.  For more information and/or to register for the walk click here:

Atlanta Walk to Remember

August 26, 2015 at 11:44 pm | Posted in Anniversaries, Grief, Jake | 3 Comments
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“When you come to the edge of all the light you know and are about to step off into the darkness of the unknown, faith is knowing that one of two things will happen: there will be something solid to stand on or you will be taught to fly.”   – author unknown (borrowed from the walk to remember program)

Dear Jake

August 14, 2015 at 11:18 pm | Posted in life after loss, Love | 8 Comments
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Happy 10th birthday sweet boy.   Thank you for making me a mother.   I have tried really hard today to focus on how lucky we are to have had you in our lives even for such a short time.   The doctors and the statistics were not in favor of us spending any time on this earth together.  You beat the odds and you were born alive.   Then the doctors told us that you most likely would not live through the night – but again you proved them wrong.   You were such a brave and strong fighter.  Thank you for fighting so hard and for making Evan and me parents for the very first time.

I am trying to be brave and strong too but 10 years is an impossibly long time to live in this world without you.   I miss you today and always.  I hope that wherever you are you know how much you are loved and missed.

a special project

July 22, 2015 at 10:36 pm | Posted in Death, Grief, hospital, life after loss, Love, NICU | 12 Comments
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The “consult room” – every hospital has one or several.  The “consult room” is where Evan and I held Jake for the last time. It is where we were when the ER doctor told us that Sawyer was dead. They were different “consult rooms,” in different hospitals but they looked the same. Standard issue plastic couch and chair. Generic flowery art. Striped carpet.

No one wishes to be in these rooms.  The hospital where all 4 of our children were born has a Perinatal Bereavement Office where I volunteer at times.  The extraordinary people who work at the office decided that they were going to renovate the consult room in the Special Care Nursery of the NICU.   I was lucky enough to help with this special project.

One of Evan’s mother’s paintings is now on a wall of the newly decorated consult room.  On another wall there is painting by an artist who is the great-aunt of other parents who also used the room when their little girl, Lily, died.  Her parents helped with this special project too.

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This is still a room that I hope none of you have to enter.  I know that realistically there are people who will be in that room holding their precious baby for perhaps the first and last time.  I wish that one day all babies will go home with their parents but until that day I am glad that there is now a warm comforting room where families can spend whatever time they have together.

Evan and I are truly honored by the dedication of this room and that this will be part of Jake and Sawyer’s legacy.

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