Mother’s Day when your child is dead

May 12, 2017 at 1:14 pm | Posted in Grief, Love | 4 Comments
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There are no rules for Mother’s Day without your child/children.   We miss our children every day but some days are harder than others.  This is one of those days.

  • Remember that you are and always will be a mother.
  • Know you are not alone.  This club has many members.
  • The baby/child loss club is not the only one out there.  There are those without their mothers on Mother’s Day and countless other loss clubs.   Buddha’s story about the mustard seed sums it up perfectly – “in the whole city, in the whole world,  there is not one family, not one person free from the certainty of death.  It is the way of all living things – we must at some time leave one another.”
  • Do one thing (no matter how big or small) for yourself – even if that one thing is crying or showering.
  • Honor/remember your child.
  • Hug your family and friends a bit tighter.
  • Talk about your child.  Say their name (or names).
  • Be kind to yourself.

I hope that you all have the best day possible.

 

what to do when reality bites

May 4, 2017 at 8:18 pm | Posted in Grief, silver lining | 4 Comments
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Here is my reality – I will never be able to bring Sawyer and Jake back to life.  I will never hold Sawyer again.

I will never hold Jake again.

I cannot change my reality but I can help others.   I will do anything and everything I can to prevent other children from dying too soon.  I do not want any other families to have to live in a world without their child/children.

This weekend what I will do to try to help is walk. Thank you to all those who supported our March of Dimes, March for Babies team this year and in past years. Thank you also to the hospital for matching funds.  We appreciate all of your kindness and generosity.   If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.

 

 

Odd but still ok?

April 28, 2017 at 9:28 am | Posted in Grief | 6 Comments

I went to visit with Jake and Sawyer last Friday before i went to New York for a family celebration .  This is what I saw:

is it odd that there is now a small ditch around their headstones?  Are Jake and Sawyer just giving me a way to take care of them? Or, are they playing a game?

Possibilities and Playing Pokémon

March 20, 2017 at 2:22 pm | Posted in Grief, life | 5 Comments
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Yesterday turned into an unexpected mix of spending time with all 4 of my children.

The day started out with Evan and I dropping off the twins at Sunday school and then going over to the cemetery to visit Jake and Sawyer.

The twins (and I) play Pokémon Go.  The cemetery happens to have a crazy amount of Pokémon stops – which is where the balls to catch Pokémon are collected.  Below is a picture of the cemetery.  The blue squares are all Pokémon stops.

The odd thing to me is that apparently some people come to the cemetery just to play Pokémon.   What might be even more odd is that I like the fact that where Jake and Sawyer are buried is right near a particular Pokémon stop (see below).  I like to think in some cosmic way that Jake and Sawyer are playing the same game that the twins and I are playing.

In addition to playing Pokémon Go, the twins decided that yesterday would be a great day for a Lemonade Stand to remember their brothers.  They set one up at the end of our driveway and raised money and awareness for the March of Dimes.

Would you like to join us in our efforts?  You can just click on this link and then click the “Walk with Me” button to join our Walk Team.  If that is not in the cards (which we know for most of you it is not), consider whether you can support us in our fundraising efforts.  Every dollar counts, and every dollar is matched by the hospital where our kids were born, so $1 donated = $2 to the March of Dimes.  Click on this link and click the “Donate Now” button.  Thanks for your support and any donation you can make!

 

 

 

December 25, 2016 at 11:40 pm | Posted in Grief | 10 Comments

Dear Sawyer,

Seven years ago tonight, your dad and I kissed you goodnight.  If I knew it would be the last time I held you, I would have never let you go.  Missing you so much sweet Sawyer today and always (some days are just harder than others). I will look for you in my dreams.

No farewell words were spoken, no time to say goodbye. You were gone before we knew it, and only G-d knows why. Author Unknown

Sweet Sawyer

Atlanta Walk to Remember 2016

September 28, 2016 at 8:18 pm | Posted in Grief, Jake, Love, Sawyer | 5 Comments
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atlanta-walk-to-remember-2015

Atlanta Walk to Remember 2015

Losing a child is one of the most devastating and lonely events which can happen to a human being.   I wish that none of us lived in a world without our child/children.  However, the reality is that parents from every religion, class and country have outlived their children.

Every year since Jake (and then Sawyer) died we have walked in the Atlanta Walk to Remember.   It is an event to connect parents and families together to express grief and remember our babies, and to raise awareness.  It is not a fundraiser.

It is just a time to remember our lost children together.

The 12th Annual Atlanta Walk to Remember is the first Sunday of October.  For more information about the walk in Atlanta click here.  For information about walks and events in other locations click here.

dreams & denial

September 12, 2016 at 9:30 pm | Posted in after death?, Death, Grief, Jake, life, Love | 8 Comments
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quote-dream

August, as I have written about in the past, is filled with happy as well as hard days.  This year August started out with our dog, Buddy, dying.  I wrote about how I was in denial about his death and wondered how long I could stay there.

On and off throughout the month I was haunted by a dream where I could not find Jake.  I would try to go back to sleep in hopes that I could go back to the dream and find him.  One weekend I slept as much as possible determined to search for and find Jake in my dreams.  It did not work.  If I had the dream about Jake I always awoke without finding him.

Last night I finally found Jake in my dreams – he was with Buddy.  So, to answer my own question about “how long can I stay in denial?” it seems like the answer is about a month.  I sure do miss them both.

“When you come to the edge of all the light you know and are about to step off into the darkness of the unknown, faith is knowing that one of two things will happen: there will be something solid to stand on or you will be taught to fly.”   – author unknown

 

Eleven

August 14, 2016 at 6:18 pm | Posted in Grief, Jake, life, Love | 7 Comments

Happy Birthday sweet baby Jake – we miss you and love you today and always.

jake-1

land of denial

August 8, 2016 at 9:14 pm | Posted in Grief | 8 Comments
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I am in denial.  Buddy (our older smaller dog) died last week.  I know it is true because I was there and because Evan posted it on Facebook but somehow it still seems unreal.

I should be some sort of grief expert by now.  I am not.  As the twins said, “It is okay mama, Buddy is now playing with Jake, Sawyer, Mom Mom and Grandpoppy.”

Wonder how long I can stay in denial. . .

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Research & Rainbows

July 22, 2016 at 4:44 pm | Posted in Grief, Jake, Sawyer, silver lining | 2 Comments
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Evan and I have spent the past few days at the March of Dimes national conference. We met amazing people and other family teams from all over the country committed to the cause of healthy babies.  We heard doctors speak about the research that is being done to lower the alarming rate of infant mortality.

Every year 23,000 babies in the United States of America do not live to celebrate their first birthday due to prematurity alone (this number does not include still born babies or babies who die due to known or still unknown birth defects and genetic conditions).

Jake and Sawyer will forever be a statistic of infant mortality from the years 2005 and 2009. I cannot change those facts.

I can commit to doing whatever I can to help reduce those 23,000 deaths of babies born too soon. I do not want any other families to stand by/watch their child/children take their last breath.

In one discussion at the conference, the topic of “Rainbow Babies” – babies born to families after the prior death or stillborn birth of a child – came up. I am so thankful to the March of Dimes’ doctors, researchers and volunteers.  Without all of their hard work ours and many other families’ rainbow babies may not be here.

As I have written about before, the twins and I are always searching for rainbows.  We have not had a rainbow baby after Sawyer (he was a rainbow himself, of course), but perhaps our rainbow is a part of lots of other little babies we are helping through the March of Dimes.

Somewhere Over the Rainbow

The way I see it, if you want the rainbow, you gotta put up with the rain.  – Dolly Parton

A “rainbow baby” is a baby born following the death of your child.  Urban Dictionary defines a rainbow baby as the following:

“In the real world, a beautiful and bright rainbow follows a storm and gives hope of things getting better. The rainbow is more appreciated having just experienced the storm in comparison.

The storm (pregnancy/child loss) has already happened and nothing can change that experience. Storm clouds might still be overhead as the family continues to cope with the loss, but something colorful and bright has emerged from the darkness and misery.”

After Jake died Evan and I both knew that we wanted to try to become parents again.  I mistakenly thought that after your child dies you should get some sort of “get a baby free pass”.  There was no pass for us.  When we did start trying again we found ourselves on the roller coaster of infertility.  We started with cycles of injectables.  We moved onto 6 rounds of IUI’s (think turkey baster if you are not familiar with this term).  Finally after 2 IVF cycles we were so very lucky to have our own rainbow babies in July of 2007.

In the fall of 2009 we once again had a rainbow baby.

Who knew another storm would come so soon?  I am trying to learn from the twins how to look for rainbows everywhere.  Some days it is harder than others to find any light through the darkness.  The twins are pretty good teachers because the other day I looked out of the office building where I was working and this is what I saw. . .

After a hurricane comes a rainbow – Katy Perry

 

 

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