The Other Baby
September 18, 2013 at 9:44 am | Posted in hospital, Jake, life after loss, NICU | 13 CommentsTags: #DPchallenge, baby loss, death of a baby, hope, hospital, life after loss, new not so normal, NICU, thoughts, writing challenge
“We can leave whenever you want to go.” Evan said for the tenth time.
“Not yet, I can wait a little longer.” I lied.
I was hot and I felt like the walls where closing in on me. So, not even 5 minutes later I ran out of the hospital. Evan followed me.
It was the first time we had been back to the hospital since the horrible day that Jake had died.
It started earlier that day. Evan and I were both home. Our fog of grief was interrupted by the ringing of the phone. He answered. I heard him say, “I am her husband whatever you need to talk to her about you can can tell me.” I could not hear the response on the other end of the call. Evan’s sad voice spoke once more, “Do you realize that our only child died last week and his funeral was just days ago?”.
Evan appeared with the phone in front of me. “It is a nurse from the hospital. She needs to speak to you.”
The one and only thing that entered my mind was that this nurse was calling to tell me that Jake was alive!! This has all been a terrible mistake. Evan and I are about to wake up from this nightmare. Jake is really waiting for us in the hospital. I grabbed the phone from Evan.
“There has been a mix up at the hospital.” said the nurse.
My mind and my heart were now both racing so fast that I could not sit still. “Okay.” was all I could manage to say in response.
“The milk that you had pumped for Jake was given to another baby.”
My mind and heart stopped racing. What!? I had been pumping milk since the day that Jake was born in the hopes that he would one day drink it. Evan would take the bottles of milk, label them and put them into this high security refrigerator in the NICU.
When Jake died we asked if we could donate the milk. Perhaps at least my milk could help another baby and help us to make some sense over Jake’s death. We were told that we could not donate the milk because I had been given pain medication after my C-section. Another loss.
Evan asked if we needed to come dispose of the milk. The nurses assured us that we did not have to worry about it – they would get rid of the milk.
Except, they did not. The milk was mistakenly given to another baby in the NICU. Now the parents of the other baby were understandably upset.
The nurse was calling because they needed me to come in for a blood test to verify that I was not on any illegal drugs when I pumped the milk. The other parents needed to know that the milk that their NICU baby drank was ok.
“Of course, my blood is ok.” I whispered as I realized that this call was not going to bring Jake back to us. Evan held my hand.
“I will come right now to take the blood test. I know that if we were those other parents we would want/need to know.” I hung up the phone.
Evan drove us the 3 miles back to the hospital where we had left Jake’s body just days before. A nurse met us out front and led us to a room far from the regular labor and delivery and the NICU. We were far, far away from any happy parents with their newborns. The hospital walls seemed to close in on us.
We waited in that room for the blood test. We waited for 30 minutes. “We can leave whenever you want to go.” Evan said for the first time. And, then we waited 30 more minutes. He repeated over and over that we could leave.
After 90 minutes I could not take it anymore. I ran out of the room. I did not ever take the blood test. I knew that there was nothing in my milk that Jake would not have been given had he ever drank it. So, I thought the other baby would be ok. Or, at least that if the baby was not ok it would not be from my milk.
I will never know for sure but every day I hope and pray that the other baby is alive, happy and healthy.
Odd but NOT Ok
September 12, 2013 at 2:26 pm | Posted in Grief, Jake, life after loss, Love, Sawyer, venting | 12 CommentsTags: baby loss, cemetery, child loss, death of a baby, grief, missing bolts, new not so normal, unexplainable
Dream
I am drawn quietly to his grave to check on him,
Just as I’d have been drawn quietly to his crib.
I trim the grass around his marker,
And dream of trimming bangs from his forehead.
I place flowers in his vase,
And dream of placing kisses on his cheek.
I hold his memory dear to my heart,
And dream of holding him in my arms.
Author unknown
I no longer have any way to physically take care of Jake or Sawyer. The best I can do is going to the cemetery and checking on their shared plot. I know that frequenting a cemetery does not work for some but it is something that I need to do.
Over the last month both Jake and Sawyer’s nameplates have been slightly shifting. I thought maybe the bolts were loose. I shift them back and feel better. Until yesterday.
I could not even shift the plates back. And, where are the bolts?! I do not understand.
I called the cemetery office and immediately broke down into tears trying to explain to the receptionist what I was calling about. Who calls about missing bolts from not just 1 but 2 of their sons’ headstones?! She finally understood me and agreed to send out a maintenance person.
No one can explain what happened to the bolts that should be securing the nameplates to the granite. However, they are both repaired for the moment. We are going to wait and watch to see what happens. I am so not okay with this.
9/11, The End of the World as We Know it: Anniversaries (repost again)
September 10, 2013 at 5:46 pm | Posted in Grief, life after loss | 2 CommentsTags: 9/11, anniversaries, dark days, hope, life after loss, new not so normal, perspective, thoughts, tragedy, unexplainable
The tragedy of 9/11 and its’ anniversary are kinds of grief. It is of course, an enormous source of grief for all of the families and friends who lost loved ones. It is also the kind of grief in which you realize that the world as you knew it will not ever be the same.
Hurricane Katrina hit New Orleans the week that Jake passed away. A very close friend of mine took her 5-year-old son in for his check up and the pediatrician found a rare heart condition. My grandmother had died. I felt like the world was coming to an end. So, I asked the rabbi who presided at Jake’s funeral about the possibility that the world was ending. He replied with an analogy. He said that it is like when you decide you are going to buy a certain kind of car. Once you make the decision you start seeing the car every where. So, my take away from his explanation was now that I was grieving I would start to see grieving every where. . . Turns out you don’t have to look too far for grief in this world. The record 7.0-magnitude earthquake hit Haiti shortly after Sawyer died.
I know that 9/11, where close to 3,000 people died; Hurricane Katrina, where 1,500-1,700 people died; and the earthquake in Haiti, where almost 230,000 people died are tremendous losses compared to the death of two babies. But, those babies were mine. And, my world will never be the same as it was before they had died.
There is not a contest for who has the most grief. I am not trying to compare my losses to these catastrophic tragedies. There are not any winners here. In grief we have all lost. However, there is still the next day and the day after that. And one day, there is a point where we will realize that our loved ones are dead but we are still alive.
I posted the above last year at this time. On the anniversary of 9/11 and every day, my heart, prayers and thoughts go out to not only the victims but to those who they left behind in this world.
So glad to see you September
September 2, 2013 at 10:56 pm | Posted in after death?, Grief, Jake, life after loss | 8 CommentsTags: birthday, centenarians, child loss, dark days, death, Grandfather, gratitude, Jake, new not so normal, twins
August is over and Evan came up with a brilliant plan to get through the last few days of it. The last week of August includes Jake’s deathiversary, my birthday and my grandfather’s (there are a few family wedding anniversaries in there too).
Evan planned a trip and we went away. My parents were able to join us. We usually do go away Labor Day weekend to see my grandfather for his birthday. Our whole family for many Labor Day weekends has come together to celebrate his birthday. I know that I am so lucky to have spent so many birthdays with my amazing grandfather. However, this year there was no trip to see him to look forward to, so I had to find other ways to distract myself.
Evan’s plan worked like a charm and these 2 helped as well. . .
When the Walls Come Tumbling Down
August 26, 2013 at 6:14 pm | Posted in Grief, Jake, life after loss, Love | 4 CommentsTags: baby loss, child loss, death of a baby, Elisabeth Kübler Ross', Jake, new not so normal, old house, perspective, post traumatic stress disorder, premature birth
As I wrote about here, the house where I was pregnant with Jake was sold a few months ago. We had a room for Jake in that house but he never came home to it. There was a time after Jake died that I had such anger towards that room. I wanted to renovate it, destroy it or at least move far, far away from it.
My anger was not rational but it seemed very real to me at the time. Along with denial, bargaining, depression and acceptance; anger is one of Elisabeth Kübler Ross’ 5 stages of grief. I guess I did not have any one to be angry with so why not get mad at a room painted baby blue? So, when we sold that house we knew that it would most likely be torn down. The other day, it looked like this:
The next day when I drove by, all that was left was this:
It is just Jake’s room.
Now the whole house is gone, but Jake will never be forgotten. We love you Jake.
A Letter to People with Guns
August 22, 2013 at 10:42 pm | Posted in life after loss, venting | 2 CommentsTags: Antoinette Tuff, guns, life after loss, thoughts, tragedy, unexplainable
Dear People with Guns,
Please, please do not go into any elementary schools with your guns. In fact, please do not go into any other schools or public places and threaten innocent people. You see I have already buried 2 of my sons. I try to get up every day and live in this world without them. However, sending my 6-year-old twins to school and then hearing about a gun man in a local school does not help.
No parent should have to live in a world without their child/children so do not shoot any one. There is no explanation that you can give to the families left behind that will justify shooting their loved one.
I am so thankful to Antoinette Tuff for reasoning with the gunman. She told him “You don’t have to die today.” Not every one has the choice of which day they die.
So, people with guns please do not make the choice for other people. Keep your guns to yourselves.
Thanks so much.
One Day at a Time
August 18, 2013 at 10:22 pm | Posted in Grief, Jake, life after loss, Love | 3 CommentsTags: baby loss, birthday, dark days, death of a baby, hope, Jake, life after loss, new not so normal, perspective, thoughts
Thank you so much for the thoughts and prayers for us and Jake on his birthday.
We are continuing to ride on the August roller coaster of happy and sad days. This weekend had a happy day. Evan‘s birthday. I remember in 2005, Jake was a few days old and I was still in the hospital. The only thing Evan got for his birthday that year was a shower. Life is no longer minute to minute like it was in 2005. However, even today if I think too much about Jake’s birth day and death day, it seems like August is so very dark.
I remind myself not to imagine the 8-year-old Jake. There is no point in grieving over the little boy who never was but somehow I can not stop myself at times. I catch my mind as it wanders to what color his eyes would have been. . .
I remind myself to take it day by day.
Balloons
July 2, 2013 at 11:32 pm | Posted in after death?, Jake, life after loss, Love, Sawyer | 6 CommentsTags: baby loss, balloons, child loss, death of a baby, family, heaven?, new not so normal, thoughts, twins
Whenever our daughter is given a balloon she wants to let it go and send it to Jake and Sawyer. The balloons are not always just for Jake and Sawyer. She also sends them to Evan’s mom (Mom Mom), my grandfather (Grandpoppy) and other members of our family who have died. I think it started with the balloon launch at the end of the Walk to Remember. However, it has continued after birthday parties and school celebrations. She usually wants to come home with the balloon and stand in the driveway.
Next, she will find the perfect place to release the balloon so that it does not get caught in the trees. Sometimes, she will try to attach a note to the balloon. Other times, she will say a few words or give a few kisses to send with the balloon.
When she has finally determined that the conditions for the balloon release are as good as they are going to get, she lets it go.
We watch it for as long as we can. She asks me if I really think that they will get her balloon. I always say, “yes.”
Tonight at bedtime the twins were discussing the balloons that she sends. They debated the obstacles the balloon could encounter – tree branches, the wind, the lack of wind, etc. What would happen when the one balloon finally arrived? Would Jake or Sawyer hold it?
I chimed in that it did not really matter who held it. They could all look at the balloon and know that we are thinking about them.
Traveling with the Twins
June 30, 2013 at 9:38 pm | Posted in Grief, Jake, life after loss, Sawyer | 6 CommentsTags: child loss, death of a baby, grief, hope, life after loss, new not so normal, perspective, signs, thoughts, travel
Most of this month we have been away. The first few weeks were work trips mixed with family and friends. The last part of the month we were away for fun. I used to travel all the time. It is hard to travel with small children but if I am honest with myself there is another reason I like to stick close to home.
I do not like to be away from the cemetery. I know that Jake and Sawyer are not really there but I still feel a need to go there. If nothing else to make sure that all is ok. I no longer go to the cemetery every day but I do not like the idea that I am not able to visit. I felt better about being away for so long because I knew that others would be there to check on them.
The trips were all good. There were some meltdowns and a taxi ride where not one but BOTH of the twins got sick. The taxi driver pulled over each time and we paid for him to get his car cleaned. . . However, we had fun. It was good to see family and friends.
I have written here and here that I do not know where exactly Jake and Sawyer are, except that they are in our hearts. No matter where we travel they come with us. There were times that the twins collected stones to bring to Jake and Sawyer. And, there were little signs that I like to believe Jake and Sawyer sent to us.
Family Medical Leave Act
June 18, 2013 at 4:44 pm | Posted in after death?, Grief, Jake, life after loss, Love, Sawyer | 4 CommentsTags: child loss, death of a baby, Family Medical Leave Act (FMLA), life after loss, new not so normal, Parental Bereavement Act (Farley-Kluger Initiative), post traumatic stress disorder, thoughts
According to the US Department of Labor the Family Medical Leave Act of 1993 (FMLA):
“Entitles eligible employees of covered employers to take unpaid, job-protected leave for specified family and medical reasons with continuation of group health insurance coverage under the same terms and conditions as if the employee had not taken leave. Eligible employees are entitled to (among other things):
- Twelve work weeks of leave in a 12-month period for:
- the birth of a child and to care for the newborn child within one year of birth;
- the placement with the employee of a child for adoption or foster care and to care for the newly placed child within one year of placement;
- to care for the employee’s spouse, child, or parent who has a serious health condition;
- a serious health condition that makes the employee unable to perform the essential functions of his or her job
The problem is once the family member dies there are often little or no benefits. When Jake died I had a c-section and could not return to work for 6 weeks. The ironic thing was that after he died all I wanted to do was go back to work because being on maternity leave with no baby was beyond awful for me. Evan’s work was extremely understanding and kind. He ended up missing about a month of work – the 2 weeks Jake was alive and then the 2 weeks after his death.
When Sawyer suddenly died Evan again missed 2 weeks of work. Again, we were very fortunate that his work was so understanding. I know that is not always the case. Dealing with the death of your child and the stress of an employer not giving you time off is too much for anyone.
Bereaved father, Kelly Farley, is taking action to fix this issue. He has created the Parental Bereavement Act (Farley-Kluger Initiative). It is a petition to modify the existing Family Medical Leave Act. The objective of Petition is the following:
“Modify existing FMLA to expand coverage and existing benefits to employees that have experienced the death of a child.”
If you would like to support this modification of the FMLA please click this link to sign the e-petition. I have already signed it!
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