No words

December 18, 2012 at 11:44 pm | Posted in Grief, life lessons, Love, mourning | 6 Comments
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Gandhi peace buttonEvery morning since Friday I have woken up hoping that the senseless deaths in Newtown were a horrific nightmare.  After Jake’s and Sawyer’s deaths I had similar experiences.  The moments before I was fully awake everything seemed alright in the world.  And then an instant later it shattered.  Reality.  And, the world seems as if it is forever broken.

There are so many families left behind.  New members of the club.  Filled with endless questions.   Why?  How?  Guns?  G-d?  There are no answers that will bring them back.  The 20 children will never grow up.  The families will be missing pieces for eternity.

I so wish I had the right words but since I do not, I will again borrow wisdom from Gandhi.

quote

Storms & Seasons Greetings

December 12, 2012 at 12:12 pm | Posted in Grief, life lessons, normal?, silver lining | 10 Comments
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storm

The dark days of December are always accompanied by holiday parties and cheer.  The people of planet earth should be celebrating and happy because as it has already been established not everyone lives on planet my baby died. Last weekend I was visiting planet earth when Evan and I attended his work holiday party.  For the most part we fit right in.  Three different people asked “how many children do you have?”  My response to 2 of them was “we have twins at home.”

I was speaking to a woman who I knew had lost a daughter.  I did not know how or if I would bring it up but then she asked the question.  I told her about all 4 of our children.  I told her about Jake and Sawyer.  She told me about her daughter who had died in 1999.

She shared with me that the month of her daughter’s death is still hard for her.  I am truly sad that it is difficult but her honesty helped me.  The 3 years since Sawyer died seem so long ago in some respects but in others it really does not.  There is no plan to get over or through grief.  It is a journey.  I know exactly when the storms began but I am not sure if they will ever end.

A light in the darkness

December 8, 2012 at 9:46 pm | Posted in Grief, Love | 3 Comments
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Eleanor Roosevelt  quote

The Compassionate Friends is an organization which was formed to support families after a child has died.  Its founder, Simon Stephens, states that the mission is “about transforming the pain of grief into the elixir of hope. It takes people out of the isolation society imposes on the bereaved and lets them express their grief naturally. With the shedding of tears, healing comes. And the newly bereaved get to see people who have survived and are learning to live and love again.”

The Compassionate Friends created a worldwide event to unite “family and friends around the globe in lighting candles for one hour to honor and remember children who have died at any age from any cause.”  December 9th at 7 pm will mark the 16th Worldwide Candle Lighting.

Doctors & Dreams

December 2, 2012 at 9:48 pm | Posted in after death?, Grief, Love, normal? | 10 Comments
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Dream

Dear Sawyer,
Three years ago we had your 2 week check up with the pediatrician.  You did fantastic.  You were gaining weight.  You were eating.  You were sleeping.  All seemed to be going well.  Was there something that we missed?

The doctor told us that you were perfect.  We even scheduled your 2 month check up in January of 2010.  As you know, we did not make it to that appointment.

I try not to imagine what you would be like as a 3-year-old.  I know that I should just mourn the loss of you as a baby.  It only makes it more painful to grieve the losses of all the other stages you sadly never reached.  Good night baby boy.  I love you.  I miss you.  As always, I will look for you in my dreams.

Perfect

Stuck

November 26, 2012 at 10:48 pm | Posted in Death, Grief, life lessons, normal? | 17 Comments
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Thank you Brooke from by the brooke for writing about the book, Tiny Beautiful Things: Advice on Love and Life from Dear Sugar.  The book is written by Cheryl Strayed, who was formerly the anonymous online advice columnist, Dear Sugar.  The book is a collection of letters written to Dear Sugar and her responses.

One letter is from a bereaved mother, Stuck.  Stuck’s baby died.  I want to share the wisdom that Sugar so powerfully offers.  The following is part of the advice that Sugar wrote to her:

Dear Stuck,

I’m so sorry that your baby girl died.  So terribly sorry.  I can feel your suffering vibrating right through my computer screen.  This is to be expected.  It is as it should be.  Though we live in a time and place and culture that tries to tell us otherwise, suffering is what happens when truly horrible things happen to us.

Don’t listen to those people who suggest you should be “over” your daughter’s death by now.  The people who squawk the loudest about such things have almost never had to get over anything.  Or at least not anything that was genuinely mind-fuckingly, soul-crushingly life altering.  Some of those people believe they are being helpful by minimizing your pain.  Others are scared of the intensity of your loss and so they use their words to push your grief away.  Many of those people love you and are worthy of your love, but they are not the people who will be helpful to you when it comes to healing the pain of your daughter’s death.

They live on Planet Earth.  You live on Planet My Baby Died.

It seems to me that you feel like you’re all alone there.  You aren’t.  There are women reading this right now who have tears in their eyes.  There are women who have spent their days chanting daughter, daughter or son, son silently to themselves.  Women who have been privately tormented about the things they did or didn’t do that they fear caused the death of their babies.  You need to find those women.  They’re your tribe.

I know because I’ve lived on a few planets that aren’t Planet Earth myself […]

This is how you get unstuck, Stuck.  You reach.  Not so you can walk away from the daughter you loved, but so you can live the life that is yours — the one that includes the sad loss of your daughter, but is not arrested by it.  The one that eventually leads you to a place in which you not only grieve her, but also feel lucky to have had the privilege of loving her.  That place of true healing is a fierce place.  It’s a giant place.  It’s a place of monstrous beauty and endless dark and glimmering light.  And you have to work really, really, really hard to get there, but you can do it. […]

You will never stop loving your daughter.  You will never forget her.  You will always know her name.  But she will always be dead.  Nobody can intervene and make that right and nobody will.  Nobody can take it back with silence or push it away with words.  Nobody will protect you from your suffering.  You can’t cry it away or eat it away or starve it away or walk it away or punch it away or even therapy it away.  It’s just there, and you have to survive it.  You have to endure it.  You have to live through it and love it and move on and be better for it and run as far as you can in the direction of your best and happiest dreams across the bridge that was built by your own desire to heal.  Therapists and friends and other people who live on Planet My Baby Died can help you along the way, but the healing–the genuine healing, the actual real deal down-on-your-knees-in-the-mud-change–is entirely and absolutely up to you. […]

Yours,
Sugar

I have been living on Planet My Baby Died for 7 years.  I do not know if there is a separate Planet for when a second child dies.  If so, I have been on that Planet for almost 3 years.  Either way, here I am trying to live.

Thankful 2012

November 22, 2012 at 7:28 am | Posted in Grief, life lessons, Love, normal? | 8 Comments
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I am forever thankful for the people who supported and continue to support Evan and I through the darkest times in our lives.  I have not officially thanked you all but please know that you have our eternal gratitude.  Hope that you all have a very happy Thanksgiving!

Lost Girl?

November 2, 2012 at 10:22 pm | Posted in after death?, Grief, life after loss, normal? | 5 Comments
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In my younger (pre-children days) I loved to travel.  My parents took my brother and me on all kinds of exciting adventures.  I was an exchange student in Finland for a summer.  I spent a semester in Madrid.   My first jobs at times required extensive travel.  I was always happy to explore a new city.

In August of 2005, I held Jake,our first son, as he took his last breaths and a part of me died with him.  My love for travel was buried with Jake.   I could no longer be alone in my house let alone a hotel room in a far away city.  Even driving alone in my car was excruciatingly painful for me.

The twins’ birth brought me happiness that I did not think I could/would ever experience again.  However, that part of me that died with Jake was still gone.  Travel now seemed out of the question.  I did not want to let the twins out of my sight.  I was no longer alone in the house or the car.

When Sawyer died so unexpectedly my ability to be alone vanished again.  The 3 hours twice a week when the twins were in preschool seemed like an eternity to me.  For awhile I could not even shower unless other people were in the house.

I do not think I will ever be the person that I was before Jake and Sawyer died.  At times I do wonder if that person who loved to travel and see the world is still out there somewhere. . .

The Balancing Act

October 4, 2012 at 11:14 pm | Posted in Grief, life lessons, normal?, venting | 5 Comments
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Areas of my life which I wish I could find a balance:

1. Answering the question, “how many children do you have?”

The twins started a new school this year. There are new teachers. New parents.

The twins started preschool the week after Sawyer died. We did not plan it that way but it is the way it worked out. It was a small preschool. I had already answered the questions. I had cried the tears in the parking lot.

Sawyer has been gone over 2 years so I can usually answer the question without the tears. The balance I am trying to find is answering the question without the pity that always seem to come along with it. It is hard to explain but I do not want people to feel sorry for us. I just want to be able to answer the question and talk about Jake and Sawyer.

2. “Being so busy I cannot think” coping technique

In 2005, Jake had died. I was still alive and forced to figure out how to live in a world without him. I searched and searched for steps to follow. A guide. Anything to help me get through the excruciatingly painful moments. I realized that being busy was the way to go. I desperately filled every possible moment.

In 2009 after Sawyer died I continued to utilize my “being so busy I cannot think” coping technique. I am at a point where I need to rethink just how busy I keep myself.

I do not know how to find the balance. There might not be a balance. Or, maybe there is and I will find it one day.  Till then I will try to take Dr. Seuss’ advice and “step with care and great tact.”

Home is where the heart is. . .

September 30, 2012 at 11:02 pm | Posted in after death?, Cemetery, Grief, normal? | 7 Comments
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I think that is how the saying goes. . .but what if your heart has been smashed into a thousand pieces?  Where is your home then?   I want my home to include all of my children.  Jake never left the hospital.  Sawyer did live in our home but not for long enough.

Our next door neighbors are selling their house.   There has been a lot of talk about what people want in a house.  A garage.  A basement.  X number of bedrooms and bathrooms.  The top of my list is actually none of those options.  My biggest concern is how far the house is from the cemetery where Jake and Sawyer are buried.  We currently live 15 minutes away.

I was speaking to another mom at baseball practice and she mentioned that her neighborhood is at the edge of the cemetery.  My mind filled with thoughts of what it would be like to be able to walk over to see Jake and Sawyer.   Would I go more often?  Would I ever go anywhere without going to the cemetery first?  It is so hard to drive by it and not stop.

Today we went and picked out 4 mini pumpkins.  One for each of the twins.  One for Jake.  One for Sawyer.  I was thinking that I would bring them to the cemetery as I have done in past years.  The twins had another idea.  They insisted on bringing the pumpkins to Jake and Sawyer’s room.  Jake never had a room in our current house.  He was born and died 2 years before we moved into our house.   Sawyer did have a room.  It was the room next to the twins’ room.  And, that is where they brought the 2 mini pumpkins.

   

7 years minus 1 day & I still miss you

August 26, 2012 at 9:14 pm | Posted in after death?, Grief, hydrops, Time | 15 Comments
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It has been said, ‘time heals all wounds.’ I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens. But it is never gone.  Rose Kennedy

Dear Jake,
Tomorrow it will be 7 years since your Dad and I held you. I am still not sure how anyone got me to leave the NICU that Friday night.  I have nothing really new to tell you.  It is another day without you.  Tomorrow will come and you will officially be gone for 7 years.  The numbers do not matter.   I will miss you forever.  Love you always.  I will look for you in my dreams.

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