Jake’s Journey & Sawyer’s Strides
April 22, 2014 at 7:22 pm | Posted in after death?, Grief, Jake, life lessons, Love, Sawyer | 5 CommentsTags: baby loss, child loss, death of a baby, gratitude, hope, March of Dimes, new not so normal, ways to honor the memory of your child
No matter how far the distance you have traveled nor the failures that have gathered, hope would still meet you anywhere.
~ Dodinsky ~
Our family has walked in the March of Dimes’ “March for Babies” every year since Jake died. Originally our team was named Jake’s Journey. After Sawyer died we renamed it to Jake’s Journey & Sawyer’s Strides. We will be walking again this weekend.
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality. I believe that the March of Dimes is making a difference and saving babies.
I cannot do anything to bring back Jake or Sawyer but maybe, just maybe, I can help spare other parents the heartbreak of having to live in this world without their child/children.
Thank you to all those who supported our team this year and in past years. Thank you also to the hospital for matching funds. We appreciate all of your kindness and generosity. If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.
Trees
April 14, 2014 at 11:18 pm | Posted in Jake, life after loss, Love, Sawyer | 5 CommentsTags: baby loss, death of a baby, Jewish National Fund, new not so normal, Trees, ways to honor the memory of your child
Last month we went to the playground where trees are planted for Jake and Sawyer. I do not think Sawyer’s tree is doing so well at the moment. . .
The plan is that we will try to straighten it out and hope that it grows better. It is best to plant trees in the colder weather so we will reevaluate in the fall. It makes me feel better just to have a plan.
Many people had trees planted in Israel for Jake and Sawyer when they died. Planting trees in Israel is a tradition which celebrates the life of loved ones. Evan and I often joke that there is a Jake and Sawyer forest at this point. I have never been to Israel and if I do go I would like to see the Jake and Sawyer forest :-).
I did write thank you notes to all the people who had trees planted for Jake. However, I never did write thank you notes for the trees, donations and acts of kindness that were done in memory of Sawyer. I do want to thank all of those who had trees planted for Sawyer and one day I hope to write those notes. Until then, please know how very thankful I am.
I want to wish a happy and healthy Passover to all those who celebrate!
How to Remember Your Child
February 28, 2014 at 1:00 pm | Posted in Grief, Jake, life after loss, Sawyer | 6 CommentsTags: child loss, death of a child, love, ways to honor the memory of your child
I will always remember Jake and Sawyer. How they looked. How they smelled. Their sounds, and the touch of their skin.
Over the years since Jake and then Sawyer have died, we’ve always looked for ways to remember them by trying to build more memories of them. Maybe it is because we only had weeks with each of them. Maybe it is because it is a way to keep them a more active parts of our lives. Maybe it is because that is what we do when we loved ones are no longer present in our lives.
We’ve done things that have made sense to us to remember Jake and Sawyer. I’ve also come across suggestions (some of which we have taken, some of which we haven’t done) from other resources about ways parents can remember their children who have died. Some of those ideas include:
- Create a baby album with all your keepsakes in it. (This might take different shapes or forms depending on what keepsakes you have.)
- Make a collage frame, remembrance or shadow box with pictures, mementos and other things that remind you of your child.
- Plant flowers or a tree in your child’s memory, perhaps in a place you like to visit or that you associate with your child.
- Participate in walks or runs in your community.
- Buy memorial bricks (local parks often offer this as a fundraiser).
- Name a star after your baby.
- Write.
- Light candles.
- Volunteer or work on a special project in your child’s memory.
- Donate to a child who would be the same age as your child would be.
Do you have any other ideas to share?
Second Star
February 18, 2014 at 11:14 pm | Posted in Grief, Jake, life lessons, Love, Sawyer, Time | 5 CommentsTags: baby loss, child loss, death of a baby, international star registry, new not so normal, siblings, stars, ways to honor the memory of your child
When Jake died the hospital gave us a packet of information to take home. I remember trying to read it through my tears and being unable to make out most of the words. When I got to the page on “Ways to Honor Your Child” I got a tissue, wiped my eyes and read. One of the ways was to name a star. Before I knew it I was on the phone buying a star for Jake:
Jake’s Star
The star date is his birthday and it is in the constellation of Leo (Jake’s zodiac sign). We have the star certificate with all of Jake’s other belongings. I think before now the only other person I told that I bought a star was Evan. Buying the star made me feel a bit better for the moment. It was something I could do for Jake. Funny how time changes some things. . .
After Sawyer died I did not buy a star. The thought of buying another star did not make me feel better. Recently, I came across Jake’s star certificate and decided that I did want a star for Sawyer after all.
I tried to order it online and then finally called. I wanted Sawyer’s star date to be his birthday, just like Jake’s. The star registry only goes back 2 years – which meant 2012, 2013 or this year. There is no 2009 option. I chose this year – for Sawyer’s 5th birthday.
Sibling rivalry is an issue at times in our house with the twins. I will never know if Sawyer would be unhappy that Jake had a star and he did not but the second star bought to avoid any worries. It made me feel a bit better and it was something I could do for Sawyer.
Bereavement Training
October 24, 2013 at 10:14 pm | Posted in Grief, Jake, NICU, Sawyer | 6 CommentsTags: baby loss, bereavement training, child loss, compassion, death of a baby, gratitude, kindness, life after loss, new not so normal, ways to honor the memory of your child
Today I, along with several other parents, spoke to a group of nurses as part of their bereavement training. This is the second parent panel I have been a part of in the last few months and I have participated in several others over the years. At times, I find talking about Jake and Sawyer cathartic. I am always hopeful that sharing our story can somehow help others. After each of these panels I have come away with lists of suggestions for nurses and tips for NICU parents.
There is a common theme in all the stories. All bereaved parents want their child/children to be remembered. There will not be the lifetime of memories that hopefully other children will have. The stay in the hospital and every aspect of it is very often all the parents have. The doctors and nurses are big parts of these memories. The kindness and compassion of the medical professionals is so important. I am thankful that bereavement training exists.
No matter how small the baby is or how long the baby lived, parents want their baby treated like every other baby. They want to be treated like every other parent. One mom said she just felt like she was in the middle of a really bad Lifetime movie. We are all hoping that we can change the channel or wake up from the nightmare of outliving our child/children. Unfortunately, this is our reality. Thank you to all those who help us along our way.
Spreading Awareness
October 6, 2013 at 9:14 pm | Posted in life after loss, Love, silver lining, why I write | 9 CommentsTags: Atlanta 2 Day Walk for Breast Cancer, Atlanta Walk to Remember, baby loss, child loss, death of a baby, hope, Jake, March of Dimes, new not so normal, ways to honor the memory of your child
This past weekend, I walked in one day of the Atlanta 2-Day Walk for Breast Cancer and in the Atlanta Walk to Remember.
In addition to walking, Evan has been talking as well. Last week he went to Capitol Hill with a group from the March of Dimes. They spoke to members of Congress about the importance of newborn screening and funding prematurity studies.
This week, Evan spoke at the Atlanta Walk to Remember. Below is his speech:
“Dad and Father”
I am the father of four children,
but I am “Dad” to only two kids.
Our six-year-old twins call me “Dad” or “Daddy”
– or sometimes other silly things, or things I won’t mention here.
Our first child, Jake, never left the hospital
and lived only 2 weeks.
He was born 14 weeks early
and with other ultimately unsolvable medical complications.
Our fourth child, Sawyer, was born happy and healthy
and came home with us.
But six weeks later, with no warning,
and for no reason that has yet been fully figured out,
his heart stopped working.
Neither Jake nor Sawyer ever got to call me anything.
My family and I grieve the deaths and loss of our boys,
as you all grieve the loss of your children and little loved-ones.
As their father, I grieve the loss of Jake and Sawyer’s childhoods,
the big moments that they were supposed to have but never will.
I grieve the loss of their chance to grow up, to flourish,
to become teenagers, young men, husbands and “Dads” themselves.
I grieve the lost ball games and trips and adventures we’ll never have.
I grieve all the missed hugs and high-fives.
I grieve even the cranky wake-ups and bedtime fits we know so well from our twins,
but never got to experience with Jake or Sawyer.
I grieve all the truly heart-warming bedtime snuggles
that will never happen with Jake or Sawyer.
Beyond all those missed tender moments,
I also grieve the loss of my belief that horrible things won’t happen to me or my loved ones.
I am all too aware now that they can happen to anyone – as they have happened to all of us.
It’s all I can do most of the time
to just hope nothing like losing Jake and Sawyer ever happens again.
As a father, I also grieve the loss of my once unshakable belief
that I could always protect my wife Lanie and all our children
from such terrible pain and anguish; that I can “fix” their problems;
that I can always make everything all better.
I know that I cannot make Jake or Sawyer all better or bring them back.
I’m not sure that grief is something a father can ever overcome.
Of course, I have learned that you do not overcome or get past grief.
You just go through it.
I hate that my family has to go through it too,
but thank heavens I have an incredible wife and wonderful kids
to travel along with me as I go down that path.
So I guess I will always grieve the loss of never being called “Dad” –
not even once – by Jake or Sawyer.
But that doesn’t mean I am not their father.
I am and always will be a proud father of all my kids,
no matter what they call me
or what they were never able to call me.
And, I am so very proud of Jake, Sawyer and the twins’ dad and father.
Weekend Walks
October 4, 2013 at 6:22 pm | Posted in life lessons, Love | 6 CommentsTags: Atlanta 2 Day Walk for Breast Cancer, Atlanta Walk to Remember, breast cancer, child loss, death of a baby, hope, life after loss, Pregnancy and Infant Loss Awareness month, thoughts, ways to honor the memory of your child
Do you know that along with Breast Cancer Awareness month that October is also Pregnancy and Infant Loss Awareness month?
There are so very many facts that I have had to accept are out of my control. At the top of the list are the facts that Jake and Sawyer are dead.
However, I am still here. I am going to do my best to bring awareness to Pregnancy and Infant Loss along with Breast Cancer. So, this weekend I am going to walk in the Atlanta 2 Day Walk for Breast Cancer and the Atlanta Walk to Remember. I will let you know how they go.
Hope that you all have a great weekend!
Atlanta Walk to Remember
September 8, 2013 at 10:48 pm | Posted in Jake, life lessons, Love, Sawyer | 5 CommentsTags: Atlanta Walk to Remember, child loss, death of a baby, miscarriage, new not so normal, ways to honor the memory of your child
“A wife who loses a husband is called a widow. A husband who loses a wife is called a widower. A child who loses his/her parents is called an orphan. But there is no word for a parent who loses a child, that’s how awful the loss is!” Jay Neugeboren
Losing a child is one of the most devastating and lonely events which can happen to a human being. I wish that none of us lived in a world without our child/children. However, the reality is that parents from every religion, class and country have outlived their children.
Every year since Jake (and then Sawyer) died we have walked in the Atlanta Walk to Remember. It is an event to connect parents and families together to express grief and remember our babies, and to raise awareness. It is not a fundraiser.
It is just a time to remember our lost babies together.
This year the walk will be held on October 6th. For more information and/or to register for the walk click the following link:
Kindness Campaign
July 20, 2013 at 10:18 pm | Posted in Jake, life lessons, Love, Sawyer | 1 CommentTags: baby loss, child loss, death of a baby, hope, kindness, life after loss, Mattie Stepanek, Method Baby Products, new not so normal, peace, thoughts, ways to honor the memory of your child
At the age of three, Mattie Stepanek started to write poetry to cope with the death of his older brother. Mattie and his brother suffered from a rare form of muscular dystrophy, dysautonomic mitochondrial myopathy. A few of his books are Heartsongs and Hope Through Heartsongs. Mattie died a month before his 14th birthday. His sister and two brothers also died from the disease during early childhood. His mother has the adult form, diagnosed only after all four of her children were born.
Mattie’s mother, Jeni, continues to spread Mattie’s message of peace and hope. Her strength and courage is remarkable. In honor of Mattie’s birthday (July 17th) and death day (June 22nd), Jeni has held Peace and Kindness Campaigns. Above is a slideshow of flyers used for the Kindness Campaign this summer.
Speaking of kindness, a gigantic thank you to Sara, my cousin. She wrote to Method after reading my last post. Method’s customer service could not find any useable soap but they wrote back a really nice response. Thank you again Sara!
Happy Mother’s Day??
May 14, 2013 at 10:14 pm | Posted in Cemetery, Grief, Jake, life after loss, Love, Sawyer | 3 CommentsTags: miscarriage, motherhood, new not so normal, premature birth, thoughts, twins, unexplainable, ways to honor the memory of your child
As I have already written, Mother’s Day is not my favorite day. I try to focus on the 4 positive pregnancy tests and the 4 live births. I also try not dwell on the 2 emergency c- sections, the NICU, the miscarriage and the 2 deaths. The truth is that all of these events have made me a mother.
I have gone to the cemetery the last seven Mother’s Days. I know that some people consider this morbid. For me it is my way of taking care of my children who are not physically with me. It gives my aching arms something to do (even if it is clipping grass and cleaning headstones). It brings me some peace.
This year I noticed something different. There was a sign at the entrance to the cemetery:
Maybe the cemetery has a new marketing person. Or, maybe I have missed the sign in past years. Either way, it just seems odd to have a Mother’s Day cook out at the cemetery. And, what would one do with a t-shirt from the cemetery?
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