Goats

October 26, 2014 at 9:36 pm | Posted in Love, twins | 6 Comments
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I was trying to write this for a fun Friday post but I seemed to have missed it by a few days.  I wanted to share a few of the things that have been making me smile recently.  Please meet Darth Vadar:

"Luke, I am your GOAT. Adopt me and together we will rule the galaxy."

“Luke, I am your GOAT. Adopt me and together we will rule the galaxy.”

And, Sable:

"What is a fine goat like me doing in a herd like this you might ask? I might ask that too – my coat is more beautiful than the finest sable in the world, bar none."

“What is a fine goat like me doing in a herd like this you might ask? I might ask that too – my coat is more beautiful than the finest sable in the world, bar none.”

These are just 2 of the goats who have been clearing the land for a new park near our house.  When driving or walking through the neighborhood it has been fun watching these goats.

Evan and one of the twins even got interviewed about the park by the local NPR station.  Click here if you would like to listen to the interview.  (They did not get our names entirely correct but it is us.)

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should you switch ob/gyns after your baby dies?

October 20, 2014 at 10:18 pm | Posted in Jake, life after loss, Sawyer | 4 Comments
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After Jake died we did switch ob/gyns but not initially.  Evan and I decided that so few people knew Jake and our ob/gyn at the time was one of those few.  It also seemed daunting to start all over with a new doctor.  We saw her throughout the pregnancy with the twins however, we switched right after.  I will explain that story in another post.

I still go to the ob/gyn group that we saw during my pregnancy with Sawyer.  I love the doctor who delivered Sawyer but I decided to switch doctors within the group for my annual check ups.  Just like after Jake died it seemed like starting over with a new doctor was too daunting.  By staying in the practice I have not had to start over from the beginning with all the forms.

I (most likely along with a majority of the female population) do not love going for my annual check ups.  I wonder if the waiting room is so upsetting for everyone.  How does it feel to look at all the happy baby pictures on the walls when you have not buried 2 babies?  I do not think that there ob/gyns who specialize in bereaved mothers but maybe they are out there.   Would you switch ob/gyns if your baby died?

neighbors

September 15, 2014 at 10:40 pm | Posted in Grief, life after loss | 12 Comments
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Our old neighbors stopped by the other day.  They moved over a year ago and we have not seem them.  We really like them and the twins played all the time with their oldest daughter.  We were sad when they moved and we have missed them.  So I was not prepared for my crazy mix of emotions when they drove up.  Although now that I think about it, I should have been.

We were pregnant at the same time.  Their 4-year-old boy happily raced up our driveway.  My thoughts not so unexpectedly went to our never will be 4-year-old boy, Sawyer.  And then out of the car toddled their youngest daughter.  I remember her mom telling me that she was pregnant. I was so very happy for them and extra excited because I was hoping to tell them in a few weeks that we were expecting too.  I never told them because I miscarried.

We caught up and watched the twins and their 3 children run around.  They asked about our other neighbors.  I told them about the new neighbor baby born in August and the other one born in  July.  I am so very happy for those neighbors too but I could feel the pit in my stomach and the familiar lump start to grow in my throat.  We chatted until it was time to get their kids back in the car.

I kept it together until they drove away.  I could not hold back the tears any longer.  I miss Sawyer.  I miss the baby I miscarried.   I am happy for our neighbors but sad for us.  I do not actually want their babies but seeing them makes me miss our lost children.  Those feelings are so hard for me.  Why can’t I just be happy for other people and not sad for who is missing from our lives?

Luckily, the twins were waiting for me to make their dinner and for that I am eternally grateful.

 

 

 

how do you live in a world without your child/children?

June 28, 2014 at 8:28 pm | Posted in Death, Grief, life after loss, Love | 5 Comments
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I honestly do not know.  I feel like after Jake and then Sawyer died I should have some words of wisdom.  . .but I don’t.

I find myself looking at other parents.  Wondering what it would be like to watch all of your children grow up.  I know that everyone has their own tragedies – they are different but difficult all the same.  I know that I am lucky to have the privilege of being a parent to each of my children and to have held them (even if for only a short time).

Time does not make it better – just different.

I do not believe that Jake and Sawyer are in “a better place.”  I do not know where they are but I wish it were with us.

I know that there is not a path to “get over” the death of your child/children.  It is not the same for everyone.   Some of us do not talk about our children at all.  Some of us advocate for a cure for their cause of death.  Some of us write about them.  All of us want our children to be remembered.

quote - teach the world about my child

 

Return to Zero – Breaking the Silence

May 16, 2014 at 7:26 pm | Posted in Grief | 5 Comments
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Return to Zero premiers May 17th (tomorrow) on Lifetime at 8 pm/7pm central.   This is the first movie made about the stillbirth of a child.   The mission of the film is to break the silence surrounding stillbirth, miscarriage and neonatal death.

“The impact that one stillbirth has on the mother, the father, their family, and friends is devastating — a shock-wave of pain, guilt and then, too often, silence. The majority of those affected, especially the mothers, suffer in this silence often believing that their grief and trauma is theirs to bear alone.

While planning to entertain and enlighten all audiences with a dramatic tale of the strength and resilience of the human spirit, RETURN TO ZERO intends to break through the silence and become a beacon of cinematic light to the millions in search of answers, understanding and healing.”

Unlike the new show Resurrection, I know that I will be watching Return to Zero.

Dear Mother’s Day Angels

May 12, 2014 at 9:24 pm | Posted in Jake, life lessons, Love, Sawyer | 7 Comments
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Dear Jake and Sawyer,
There is not a day that goes by that I do not think of you both, but some days are harder than others.  Mother’s Day is one of those days.  Logically it is just another day.  You are both gone every. single. day.  It is not like the first days, weeks and months after you died when the tears so often streamed down my face without me even realizing.  Now most of the time my tears are tucked farther away.   The sadness and the joy of loving you both is a part of me.

I know I am not alone.  There are so many other mothers in this club with me.  There are motherless mothers, motherless fathers and those who have just lost.  Death is part of life.  And no matter how hard some days can be life goes on.

I like to believe that you both send things my way to make certain days (like Mother’s Day) easier for me.  I wanted to thank you both for quite a few of those things this year.

  • Thank you for your amazing brother and sister.  They make me so very happy, except when they don’t (see 2nd bullet).
  • Thank you especially for helping us find your sister when she ran away the first and SECOND time yesterday.  One time she really had to go to the bathroom and the other time she thought she was being funny.  Neither your dad or I laughed AT ALL.
  • Thank you for making me smile when your dad and I were given a “gift bag” when we visited you at the cemetery.  I guess they had the Mother’s Day cookout last year so the cemetery marketing people this year opted for gift bags. . .

gift bag

  • Thank you for showing me hope on days that are especially hard to find it.  I found another “hope” telephone pole on my running route yesterday!

Hope

 

Pathology is No Place for Politics

March 24, 2014 at 8:18 pm | Posted in Grief, venting | 6 Comments
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I read an article recently about a young mother losing a child that presented a whole new take on a sad situation.

The death of any child is heart breaking, and a horrible situation no parent should have to suffer. In this case, a poor 16-year-old in Mississippi lost her baby at 36 weeks to what was most likely the frighteningly all too common situation of where the umbilical cord gets tangled around the baby and causes death. The teenager had to deliver her stillborn child and figure out how to deal with such a sad and horrid situation that would leave any mom filled with guilt (even though there was nothing she could have done to prevent it). It must have been even harder to be only 16 and having to deal with one of life’s greatest tragedies.

But then, for this girl, things got exponentially worse. Apparently in Mississippi at the time there was a pathologist who has quite a reputation – for being politically motivated and having an agenda. When he found evidence that the girl in question had used drugs during her pregnancy, the pathologist concluded that the drugs had led to the baby’s death. And he, along with local law enforcement (which also has an agenda to reduce women’s reproductive rights) decided to charge this 16-year-old girl with murdering her child. They alleged that her use of drugs was a “depraved heart” killing of her child.

They did all this despite the fact that no medical facts support that conclusion. They ignored the science that points to the cord as the cause of death and ignored the medical facts that show that while drug use is certainly a terrible idea for a pregnant woman, it does not cause death of the child (and not in this case).

For six years now this now 24-year-old from an impoverished background with drug issues has not only had to deal with the death of her child, she has had to deal with being accused of killing her child, of having a “depraved heart,” and with the very real fear of being tried and found guilty of murder by a Mississippi jury.

I just cannot imagine.

When Sawyer died, since his heart stopped at home, investigators questioned us in the ER.  Then they followed Evan and I home from the hospital to view the scene and talk more about what happened. They quickly concluded that what ever exactly happened to Sawyer, it was biological, not something that anyone did to him and not something that could have been prevented by some action we could have taken (or not taken) at home.

We knew that, logically, but it was also helpful to hear that from those who looked into it. Further, the pediatric pathologist who examined Sawyer to try to determine the cause of death also ruled out any external causes, and ultimately focused on his heart stopping, likely due to a genetic, undiagnosed arrhythmia. (It’s still a working theory, but it’s the best any doctor can say at this point.)  The pathologist was compassionate and helpful in trying to get us not to blame ourselves for Sawyer’s death. She explained things so we could understand them, and she spent extra time meeting with us, emailing with us, and even went above and beyond to help us get Sawyer’s DNA in a study at the Mayo Clinic looking for certain arrhythmias that she and some other scientists believe may account for many of the SIDS and SUIDS deaths that still occur far too often. She also happens to be quoted in the article — taking a sane, rational, scientific-supported view of the case, unlike the Mississippi pathologist out to “get” this girl.

I cannot fathom how this girl must feel having had not help and comfort from investigators and a pathologist, but blame, condemnation and being charged with “depraved heart murder.” It must be like a second sledgehammer to her own heart. First, her baby dies. That is heart-crushing on its own. Then, she is accused of killing her child and must fight for her own freedom and future. That guilt and feat must be not just heart-crushing but soul-smashing. For a sixteen-year-old girl from poverty probably few of us can truly comprehend.

I am not excusing her drug use. As a mom, protecting our children is of the utmost importance. I’d never do something that might harm my children. She made that mistake. But I cannot judge her for that, because I do not know her or her true circumstances, or why she did that.

What I do know is that science says she did not kill her child. What I also CAN understand is the depths of despair and guilt a mom faces when her child dies. No woman should go thru that. No girl should face that, let along without care and support of those around her. To blame her for her child’s death here, to prosecute her for murder, to claim to the world she has a “depraved heart,” must be causing her unimaginable pain.

I can barely make it though losing Jake and Sawyer even with being told by everyone that I did everything right, but that some things cannot be fixed or prevented. Without that love, caring and support, and in the face of accusations of killing my own child (no matter how wrong-headed, illogical, unsupported by science and politically driven they might clearly be) I don’t know how I would be able to go on.

 

No worries (I wish. . .)

March 16, 2014 at 9:28 pm | Posted in Grief, Sawyer, twins, why I write | 10 Comments
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If your problem has a solution then…why worry about it? If your problem doesn’t have solution then…why worry about it?   – Chinese Proverb

In theory I think this makes sense and I agree with the proverb, but I have a problem:  I think that worrying is in my DNA.

Everyone at our house is feeling fine now but last week that was not the case.   Evan and one of the twins were sick.  It is part of life – everyone gets sick.  But, I do not like it one bit!  I try very hard to rely on the rational part of my brain but the irrational part of me always seems to take over.  I am transported back to the days and nights before Sawyer died.  Was there something going on?  Was he sick in some way?  What did I miss?  How could he be seemingly perfect one moment and then dead the next?

I know that the twins are not Sawyer.  They are bigger.  They are stronger.  They can tell me when something is wrong (and usually can specifically detail what is wrong too!).  However, I cannot help but second guess myself.  I cannot help but worry about what we could have done differently, what might have prevented Sawyer from dying that night, how we might have taken a different action or course and he would still be here with us today.  I also know that even if we did miraculously figure out the cause of Sawyer’s death it would not change the fact that he is dead.  Resurrection is not our reality.  Of course, I cannot change that now, and of all things, I logically know I should not worry about things I cannot change.  And yet, those are the things that seem to draw out my worries the most.

Unsubscribed & Unprepared

February 10, 2014 at 10:14 pm | Posted in Death, Grief, life after loss, Love | 12 Comments
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The week before Sawyer was born Evan and I realized that we would have 2 1/2-year-old twins at home during the winter with a newborn.  We had not planned to send them to preschool until they were 3.

The twins plus winter plus a newborn at home.  All of a sudden 2 1/2 seemed like the perfect preschool age.  I called around and there were not many preschools with 2 open spots.  We were super lucky and found a school for the twins.  The school started the first week of January – Sawyer had died the week before and I did not want to let the twins out of my sight (but that is a different story. . . ).

I did give my name and information to a few other schools.  I get emails from them now and then.  I have successfully unsubscribed from most but there is one that I cannot get off the list.  I usually just delete the emails without opening/reading them but for some reason I read this one.  This week my 4-year-old and I were invited to Mommy & Me at 10 am on Wednesday.

There is no unsubscribe button!!  What is the etiquette here?   Writing an email that my 4-year-old and I will not be there because he is dead does not seem appropriate.  Luckily, I got the email today that the Mommy & Me will most likely be cancelled “due to inclement weather”.

Is Atlanta unprepared?!  Nope.  Not this time.  It was 50 degrees and clear today but the Atlanta forecast is for snow.  So, school for the twins is cancelled tomorrow.  And, Wednesday.  The twins and I will be home with plenty of time for me delete those preschool emails.

Bring soup, be there & other ways to help a bereaved friend

January 26, 2014 at 9:46 pm | Posted in Grief, life after loss | 6 Comments
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In a few different posts I have written about what people have said to Evan and I after Jake and then Sawyer‘s deaths.  There seem to be endless opportunities in life to say the wrong thing.  It is hard to put yourself in another person’s shoes and separate out your own feelings.  We all have different experiences.  We start from a variety of places.  Who is to judge what is right and what is wrong?  All we can do is try our best.

My mom recently sent me an article called The Art of Presence by David Brooks.  It is about a family who has suffered enormous tragedy in their lives (including the death of one of their daughters).  The family gives very practical advice such as:

  • Be a builder.  I had not read/heard this analogy before and I like it so, I am going to share:

“Firefighters drop everything and arrive at the moment of crisis. Builders are there for years and years, walking alongside as the victims live out in the world. Very few people are capable of performing both roles.”

A few other pieces of advice I have heard about but are also worth sharing (I may have also written about these before . . .):

  • Do be there.

Even if you do not know what to say it does not matter.  Just show up.

  • Do not compare, ever.

There is no comparison contest with bereaved parents.  Everyone has lost.

  • Bring soup.

Love and compassion are necessities, not luxuries. Without them humanity cannot survive.
The Dali Lama

  • Do not say you will get over it.

Grief changes over time but in my experience there is no “healing” from the loss of your child.

  • Do not say it is all for the best or try to make sense out of it.

The death of a child is not for the best and there is no making sense of it for any parent.

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