Pathology is No Place for Politics

March 24, 2014 at 8:18 pm | Posted in Grief, venting | 6 Comments
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I read an article recently about a young mother losing a child that presented a whole new take on a sad situation.

The death of any child is heart breaking, and a horrible situation no parent should have to suffer. In this case, a poor 16-year-old in Mississippi lost her baby at 36 weeks to what was most likely the frighteningly all too common situation of where the umbilical cord gets tangled around the baby and causes death. The teenager had to deliver her stillborn child and figure out how to deal with such a sad and horrid situation that would leave any mom filled with guilt (even though there was nothing she could have done to prevent it). It must have been even harder to be only 16 and having to deal with one of life’s greatest tragedies.

But then, for this girl, things got exponentially worse. Apparently in Mississippi at the time there was a pathologist who has quite a reputation – for being politically motivated and having an agenda. When he found evidence that the girl in question had used drugs during her pregnancy, the pathologist concluded that the drugs had led to the baby’s death. And he, along with local law enforcement (which also has an agenda to reduce women’s reproductive rights) decided to charge this 16-year-old girl with murdering her child. They alleged that her use of drugs was a “depraved heart” killing of her child.

They did all this despite the fact that no medical facts support that conclusion. They ignored the science that points to the cord as the cause of death and ignored the medical facts that show that while drug use is certainly a terrible idea for a pregnant woman, it does not cause death of the child (and not in this case).

For six years now this now 24-year-old from an impoverished background with drug issues has not only had to deal with the death of her child, she has had to deal with being accused of killing her child, of having a “depraved heart,” and with the very real fear of being tried and found guilty of murder by a Mississippi jury.

I just cannot imagine.

When Sawyer died, since his heart stopped at home, investigators questioned us in the ER.  Then they followed Evan and I home from the hospital to view the scene and talk more about what happened. They quickly concluded that what ever exactly happened to Sawyer, it was biological, not something that anyone did to him and not something that could have been prevented by some action we could have taken (or not taken) at home.

We knew that, logically, but it was also helpful to hear that from those who looked into it. Further, the pediatric pathologist who examined Sawyer to try to determine the cause of death also ruled out any external causes, and ultimately focused on his heart stopping, likely due to a genetic, undiagnosed arrhythmia. (It’s still a working theory, but it’s the best any doctor can say at this point.)  The pathologist was compassionate and helpful in trying to get us not to blame ourselves for Sawyer’s death. She explained things so we could understand them, and she spent extra time meeting with us, emailing with us, and even went above and beyond to help us get Sawyer’s DNA in a study at the Mayo Clinic looking for certain arrhythmias that she and some other scientists believe may account for many of the SIDS and SUIDS deaths that still occur far too often. She also happens to be quoted in the article — taking a sane, rational, scientific-supported view of the case, unlike the Mississippi pathologist out to “get” this girl.

I cannot fathom how this girl must feel having had not help and comfort from investigators and a pathologist, but blame, condemnation and being charged with “depraved heart murder.” It must be like a second sledgehammer to her own heart. First, her baby dies. That is heart-crushing on its own. Then, she is accused of killing her child and must fight for her own freedom and future. That guilt and feat must be not just heart-crushing but soul-smashing. For a sixteen-year-old girl from poverty probably few of us can truly comprehend.

I am not excusing her drug use. As a mom, protecting our children is of the utmost importance. I’d never do something that might harm my children. She made that mistake. But I cannot judge her for that, because I do not know her or her true circumstances, or why she did that.

What I do know is that science says she did not kill her child. What I also CAN understand is the depths of despair and guilt a mom faces when her child dies. No woman should go thru that. No girl should face that, let along without care and support of those around her. To blame her for her child’s death here, to prosecute her for murder, to claim to the world she has a “depraved heart,” must be causing her unimaginable pain.

I can barely make it though losing Jake and Sawyer even with being told by everyone that I did everything right, but that some things cannot be fixed or prevented. Without that love, caring and support, and in the face of accusations of killing my own child (no matter how wrong-headed, illogical, unsupported by science and politically driven they might clearly be) I don’t know how I would be able to go on.

 

No worries (I wish. . .)

March 16, 2014 at 9:28 pm | Posted in Grief, Sawyer, twins, why I write | 10 Comments
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If your problem has a solution then…why worry about it? If your problem doesn’t have solution then…why worry about it?   – Chinese Proverb

In theory I think this makes sense and I agree with the proverb, but I have a problem:  I think that worrying is in my DNA.

Everyone at our house is feeling fine now but last week that was not the case.   Evan and one of the twins were sick.  It is part of life – everyone gets sick.  But, I do not like it one bit!  I try very hard to rely on the rational part of my brain but the irrational part of me always seems to take over.  I am transported back to the days and nights before Sawyer died.  Was there something going on?  Was he sick in some way?  What did I miss?  How could he be seemingly perfect one moment and then dead the next?

I know that the twins are not Sawyer.  They are bigger.  They are stronger.  They can tell me when something is wrong (and usually can specifically detail what is wrong too!).  However, I cannot help but second guess myself.  I cannot help but worry about what we could have done differently, what might have prevented Sawyer from dying that night, how we might have taken a different action or course and he would still be here with us today.  I also know that even if we did miraculously figure out the cause of Sawyer’s death it would not change the fact that he is dead.  Resurrection is not our reality.  Of course, I cannot change that now, and of all things, I logically know I should not worry about things I cannot change.  And yet, those are the things that seem to draw out my worries the most.

Second Star

February 18, 2014 at 11:14 pm | Posted in Grief, Jake, life lessons, Love, Sawyer, Time | 5 Comments
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When Jake died the hospital gave us a packet of information to take home.  I remember trying to read it through my tears and being unable to make out most of the words.  When I got to the page on “Ways to Honor Your Child” I got a tissue, wiped my eyes and read.  One of the ways was to name a star.  Before I knew it I was on the phone buying a star for Jake:

Jake's Star

Jake’s Star

The star date is his birthday and it is in the constellation of Leo (Jake’s zodiac sign).  We have the star certificate with all of Jake’s other belongings.  I think before now the only other person I told that I bought a star was Evan.  Buying the star made me feel a bit better for the moment.  It was something I could do for Jake.  Funny how time changes some things. . .

After Sawyer died I did not buy a star.  The thought of buying another star did not make me feel better.  Recently, I came across Jake’s star certificate and decided that I did want a star for Sawyer after all.

I tried to order it online and then finally called.  I wanted Sawyer’s star date to be his birthday, just like Jake’s.  The star registry only goes back 2 years – which meant 2012, 2013 or this year.  There is no 2009 option.  I chose this year  – for Sawyer’s 5th birthday.

Sibling rivalry is an issue at times in our house with the twins.  I will never know if Sawyer would be unhappy that Jake had a star and he did not but the second star bought to avoid any worries.  It made me feel a bit better and it was something I could do for Sawyer.

Unfrozen

February 14, 2014 at 10:54 pm | Posted in Death, Grief, life after loss, normal?, Sawyer, twins | 5 Comments
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“Everything is Awesome” has replaced “Let it Go” and “Do You Want to Build a Snowman“at our house.  The snow and ice are gone.  We were really lucky and never lost power.  However, we did follow the advice of the robocall from our mayor and stay home.   The twins watched I am not sure how many hours of television but I know it was a lot.  It does not bother me the way I thought it would (before being a parent when I had all these big ideas about what kind of parent I would be. . .).  Originally, I was going to be one of those parents that did not let their kids watch too much TV but Sawyer’s death quickly changed that.  It seemed much better for the twins to watch Elmo than to watch their mom crying endlessly.  So, on went the TV.

We did make it out of the house yesterday for some sledding.

Today it was almost 60 degrees in Atlanta.   Everything melted, we turned off the TV and went outside.

Happy Valentines Day from our house to yours!

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Unsubscribed & Unprepared

February 10, 2014 at 10:14 pm | Posted in Death, Grief, life after loss, Love | 12 Comments
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The week before Sawyer was born Evan and I realized that we would have 2 1/2-year-old twins at home during the winter with a newborn.  We had not planned to send them to preschool until they were 3.

The twins plus winter plus a newborn at home.  All of a sudden 2 1/2 seemed like the perfect preschool age.  I called around and there were not many preschools with 2 open spots.  We were super lucky and found a school for the twins.  The school started the first week of January – Sawyer had died the week before and I did not want to let the twins out of my sight (but that is a different story. . . ).

I did give my name and information to a few other schools.  I get emails from them now and then.  I have successfully unsubscribed from most but there is one that I cannot get off the list.  I usually just delete the emails without opening/reading them but for some reason I read this one.  This week my 4-year-old and I were invited to Mommy & Me at 10 am on Wednesday.

There is no unsubscribe button!!  What is the etiquette here?   Writing an email that my 4-year-old and I will not be there because he is dead does not seem appropriate.  Luckily, I got the email today that the Mommy & Me will most likely be cancelled “due to inclement weather”.

Is Atlanta unprepared?!  Nope.  Not this time.  It was 50 degrees and clear today but the Atlanta forecast is for snow.  So, school for the twins is cancelled tomorrow.  And, Wednesday.  The twins and I will be home with plenty of time for me delete those preschool emails.

Do you want to build a snowman? Come to Atlanta.

January 30, 2014 at 5:30 pm | Posted in life lessons, Love | 8 Comments
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You might have heard about or are living through Atlanta’s snowstorm.  Tuesday Evan and I both left work around 1 pm.  After 30 minutes I had not left the parking lot.  My stress level did not subside at all when finally I did leave the parking lot, because cars were not moving. . . not even a little bit.  I quickly realized that I was not going to make it to pick up the twins from school at 2:30.  I called Evan.  My call did not go through.  Bummer.  Luckily, Evan called me and said he was in traffic but moving.  He would drive towards school too.  He was able to make it near the school within 2 hours.  He parked and walked the rest of the way to get the twins.

By 4 pm Evan and the twins were all safely home.  I for the most part stopped stressing about my never-ending commute.  I had almost a full tank of gas, no kids or dogs in the car with me and I was moving (sometimes).  My college days had prepared me for the no bathroom situation.  I finally made it home after 6 hours.  A friend who could not make it to her house arrived about an hour after I got home.

We were super lucky compared to lots of others.  And, our friend made it home on Wednesday with no problem!

One of the twins has been a bit sick so he was not going outside.  His sister, on the other hand, wanted to play in the snow!  Meanwhile, he wanted to take pictures.  He took a few pictures before realizing he should move his fingers. . .:

Fletcher's photos

First, she wanted to build a snowman.   After all, we have listened to the Frozen sound track 47,000 times in the last month.

Evan the snowman

Next, she wanted to build another snowman.

Evan and Lanie - snow people

And, then she wanted to build a whole snow family.

Snow Family

In case you do not recognize us let me help you:

  • Evan is the tall one in the blue hat with sunglasses
  • I am wearing a cool pink hat our niece gave us
  • the twins are the middle-sized snow people (she is wearing a hand me down hat from our niece and he is wearing a cool Star Wars hat from our nephew)
  • Buddy and Baby (our dogs) are each wearing black and white polka dots
  • Sawyer is wearing the brown hat (it is another Star Wars hat from our nephew)
  • Jake is in between Baby and Sawyer

School just got cancelled for Friday too.  It is supposed to be in the 60’s by the weekend.  So, if you are looking for us we will be the one’s at home watching our snow family melt.

Me, little Miss. and our snow family

Fun Friday – Sharing Smiles

January 24, 2014 at 5:22 pm | Posted in Grief, life after loss, Love, twins | 5 Comments
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I am struggling to find a happy place today.   So, I thought I would try to cheer myself up by sharing some things that did bring a smile to my face this week:

  • Seeds of Happiness – They are simple, small clay smiley faces.  The twins have yet to give them to anyone but they do have a big time playing with them:

Seeds of Happiness

“Mark Borella, a sculptor, created small smiley faces from left-over lumps of clay. He gave these to his friends whose young son was dying of cancer. He told them: “I know there is nothing I can say or do to make you feel better so I thought I would bring you some smiles to help you get your smile back. ”

He called them Seeds of Happiness.  And his hope is that sharing the smiles continues to grow as their customers plant Seeds around the world.

  • Keeping our dogs warm in the Star Wars coats we found this week:

It is possible that Buddy and Baby are not smiling about their new coats . . .

The movie is all about happiness and what makes people happy.  The movement “is a 28 day program that brings happiness to the center of our lives.”  I need to end this post so that I can go sign up.

Happy Friday and I hope that you all have a good weekend!

Washing

January 14, 2014 at 5:08 pm | Posted in Cemetery, Grief, Jake, Sawyer | 4 Comments
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Every time Evan and I leave the cemetery we wash our hands with water.  I know everyone washed their hands when leaving the cemetery after Jake’s funeral and then after Sawyer’s.  The other day I realized I have no idea why we wash our hands, so I decided to look it up.   There seem to be many different theories including the following:

  • Hand washing marks “the departure from the surroundings of death and to signify a renewed attachment with life.”
  • Washing hands symbolizes a “disassociation from death.”
  • Some used to interpret washing hands in order to banish “evil spirits.

The explanation that I like the best is that we wash our hands to signify the “transition from departing the place of death to entering that of life; it is also an attempt mentally to leave behind the realm of the past and re-embrace the present”.  At times, I have to work hard to stay in the present so the physical act of washing hands is a good reminder for me.

A resolution (not the New Years kind)

January 2, 2014 at 9:14 pm | Posted in Cemetery, Grief | 3 Comments
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I found out that my friend at the cemetery might have made the call to get Jake and Sawyer’s markers fixed.  I saw him the other day and asked him if he had anything to do with the new markers.  He would not say one way or the other, but I said thank you and I gave him a big hug just in case.

He explained to me that the granite that the markers rest on and the markers themselves are made at the same time.  When Sawyer died we buried him next to Jake, but in the same full-sized plot.  There were no issues with the headstone following Sawyer’s funeral because we did not have Sawyer’s marker added until 2 years later.  When we did add Sawyer’s marker the granite had to be replaced to allow for the 2 markers instead of just Jake’s.

The bolts that held the markers to the granite were not an exact fit which apparently is why the markers moved and shifted.  The bolts have all been replaced now.  However, there is a chance that the markers will shift again because the granite and the markers were still made at different times.  If the markers move again, the next fix would be to replace the entire granite and both of the markers (then the granite and both markers will be made at the same time – and should fit together without being able to shift).

Even with all of these logical solutions, I still like the idea that Jake and Sawyer are playing practical jokes on us.

Wishing you all a Happy 2014!

Sawyer’s Story: The Funeral

December 28, 2013 at 11:02 pm | Posted in funeral, Grief | 8 Comments
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Four years ago today was Sawyer’s funeral.   I still cannot believe that Evan and I have lived through 2 of our children’s funerals.   Most of those days are a big blur and what I do remember was that everything seemed so surreal.  I had trouble putting sentences together.

Evan, on the other hand, wrote speeches for Jake and then again 4 years later for Sawyer.  I am still amazed and thankful that Evan was able to think and write clearly enough for both of us.

My brother read what Evan wrote at Jake’s funeral.  Below is what Evan read at Sawyer’s funeral:

Our son Sawyer is perfect.  We know all parents feel that way about their children, and they should.  We feel that way about our first son Jake, our twins Fletcher and Alyssa, and about Sawyer.  But it’s not just a feeling.  We know it.  Sawyer is and always will be perfect.  He has been perfect from the first moment we met him.  Yes, he was also sweet, and adorable, and soft, and cuddly, and wonderful.  But above all else, he was perfect.  A perfect son.  A perfect little brother.

We don’t know why we only got 40 days with Sawyer.  We were supposed to have 40 years or more.  40 days makes no sense, and likely never will.  We don’t know why that happened, but what we do know is how much we love Sawyer.  We know how much we miss him and how much are hearts ache not being able to hold him and kiss him and care for him the way we were supposed to be able to do.  40 days – even the 40 wonderful days we had with him – is not enough.  Not even close.

But, we’re going to treasure every memory from those 40 days.  The first moment we saw him at the hospital.  The first time we each held him.  The first time we fed him and changed him and swaddled him.  The first time we took him home and introduced him to the twins.  The first time he smiled at us (even though it was probably just gas).  The first time we got to tell every one of you about him and positively beamed with pride in getting to do so.  We will hold onto each of those firsts – and every other moment after them that we had with Sawyer.  We’ll remember every time we just sat and stared at him and marveled at how perfect he was and how amazing it was that we could make something – someone – so perfect.

We thank you all for being here this morning to help us get through this day with your love, friendship and support.  We thank you for all that so many of you have already done, your words of love and kindness, and your helping hands.  And we thank you for all that you will do to help as we try to figure out how to go on without having all those “firsts” we were supposed to have with Sawyer over the days, weeks, months and years to come.  We welcome you back to our house after the service today, so that we can attempt to start to thank you in person and thank you for loving Sawyer with us.

There is comfort in knowing that Sawyer’s big brother Jake will be with him now.  So will Grandmother and Aunt Sophie – Sawyer’s namesake who also had to grieve for a lost son – and his other great grandparents and loved ones who passed before him.  We know he’s in good hands – it’s just that they are not the hands he is supposed to be in yet.  He is supposed to be in our hands.  But instead, our hands shake because we can’t touch him.  Our arms ache because we can’t hold him.  Our hearts break because he is gone after only 40 days.  But even as we cannot understand or believe any of this, we want you to know, Sawyer, that we love you.  Truly, deeply, forever, we love you.  And no matter what Sawyer, you are perfect.  You are perfect.  You are perfect.

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