Another Yahrzeit
December 10, 2013 at 10:20 pm | Posted in Anniversaries, Grief, Love, Sawyer | 13 CommentsTags: baby loss, child loss, death of a baby, gratitude, grief, Jewish customs, new not so normal, yahrzeit
The word “yahrzeit” means anniversary (of a person’s death) in Yiddish. The word originated from German – Jahr, meaning year, and Zeit, meaning time.
Sawyer’s yahrzeit this year is on December 12th which means the candle should be lit the evening before (tomorrow). I have done my best to lose track of the days, in the hopes that this anniversary would not ever come. I know that time does not work that way but you can not blame a girl for trying. It has not been hard to keep busy and forget the date. I feel like the twins just started 1st grade but somehow Thanksgiving is over and despite my best efforts to stop time it is once again December.
I am extremely thankful for the time we did have with Sawyer and I still try to live in the present but I so wish I could hold him again even if is just for one more moment. . .
Another Thank You
November 30, 2013 at 6:58 pm | Posted in Grief | 5 CommentsTags: baby loss, child loss, gratitude, new not so normal, thoughts, unexplainable
Thank you to the cemetery people for fixing Jake and Sawyer’s headstone markers. I never did make the call to let them know that the markers were shifting again but when I went to the cemetery the other day this is what I saw:
New headstones. New bolts. No more moving markers. The stones are even placed exactly how their sister carefully arranged them on Sawyer’s last birthday. One less thing to worry about. Thank you.
Thanksgivukkah
November 26, 2013 at 10:10 pm | Posted in Grief, Jake, Love, Sawyer | 3 CommentsTags: baby loss, child loss, dark days, death of a baby, gratitude, Hanukkah, holidays, Jewish customs, life after loss, new not so normal, thankful, Thanksgiving, Thanksgivukkah, thoughts
This year the 1st day of Hanukkah and Thanksgiving fall on the same day. Apparently, this only happens once every 79,000 years or something. So, I am thankful it is happening during my lifetime. As I have mentioned before, since Jake and then Sawyer have died the holidays can be difficult. So, by combining 2 of them maybe this year will be easier.
I am so very thankful for family and friends who have stood by us during the best and worst of times of our lives. I am certain that I would not be able to get through this journey alone. I will continue to always be very thankful for the time that we did have with Jake and Sawyer. I try not to dwell on the Hanukkahs and Thanksgivings that we did not have and will never have with them. Some days are just harder than others.
Happy Hanukkah! Happy Thanksgiving! And, Happy Thanksgivukkah to those of you celebrating both!
Sunshine
November 6, 2013 at 9:32 pm | Posted in Grief, life after loss | 6 CommentsTags: blogs, child loss, gratitude, hope, new not so normal, Sunshine award
Thank you so much to My Hope Jar and Hang your Hopes from Trees for nominating me for a Sunshine award. After looking into more information about the award it is a virtual way to connect bloggers who are writing about the same things and want to acknowledge each other. I am honored and pleased that they (or anyone) finds my blog helpful and inspiring.
The Sunshine Award is also kind of like a chain letter with rules and everything. I am not a chain letter person but there is something about spreading sunshine that I could not ignore. There is so much darkness in the world. We can all use some more sunshine. So, here it goes.
Rules of the Sunshine Award:
- Include the Sunshine Award icon in your post.
- Link the blogger who nominated you.
- Answer 10 questions about yourself.
- Nominate 10 other bloggers to receive the award.
- Link to your nominees and let them know you nominated them.
Questions about Me:
- Why do you blog? I am hoping that I can help others get through their difficult journeys. I want Jake and Sawyer to be remembered. I want to carry on their purpose in life (whatever that purpose might be)
- What is your favorite movie? Princess Bride
- What is your favorite food? Kale
- What is your favorite thing or memory about your spouse? He proposed at an ice cream store and had a flavor of ice cream named after me. When he asked me to marry him he was so nervous he got down on both knees instead of just one
- What do you do to relieve stress? Running, yoga (exercise in general)
- Who or what inspires you? All 4 of my children
- What is your biggest fear? Outliving all of my children
- What is your biggest dream? Happiness
- What is your best piece of advice? Sometimes there is not a happily ever after or a perfect ending. Gilda Radner said it much better than I ever could . . . “Now I’ve learned, the hard way, that some poems don’t rhyme, and some stories don’t have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it. . .” – Gilda Radner
- What are you most proud of? My children
**(I answered the questions from My Hope Jar because it was the first nomination)
My Nominees
- My Hope Jar
- Hang Your Hope from Trees
- It’s Dilovely
- Chasing Rainbows
- Four Plus an Angel
- Still Life with Circles
- Living Without My Twin Sister
- The Spohrs are Multiplying
- Rockstar Ronan
- Carly Marie Project Heal
My Questions
- Why do you blog?
- What is your favorite movie?
- What is your favorite food?
- What is one of your favorite quotes?
- What do you do to relieve stress?
- Who or what inspires you?
- What is your biggest fear?
- What is your biggest dream?
- What is your best piece of advice?
- What are you most proud of?
Thank you again to My Hope Jar and Hang your Hopes from Trees for sending sunshine my way. I truly appreciate it.
Bereavement Training
October 24, 2013 at 10:14 pm | Posted in Grief, Jake, NICU, Sawyer | 6 CommentsTags: baby loss, bereavement training, child loss, compassion, death of a baby, gratitude, kindness, life after loss, new not so normal, ways to honor the memory of your child
Today I, along with several other parents, spoke to a group of nurses as part of their bereavement training. This is the second parent panel I have been a part of in the last few months and I have participated in several others over the years. At times, I find talking about Jake and Sawyer cathartic. I am always hopeful that sharing our story can somehow help others. After each of these panels I have come away with lists of suggestions for nurses and tips for NICU parents.
There is a common theme in all the stories. All bereaved parents want their child/children to be remembered. There will not be the lifetime of memories that hopefully other children will have. The stay in the hospital and every aspect of it is very often all the parents have. The doctors and nurses are big parts of these memories. The kindness and compassion of the medical professionals is so important. I am thankful that bereavement training exists.
No matter how small the baby is or how long the baby lived, parents want their baby treated like every other baby. They want to be treated like every other parent. One mom said she just felt like she was in the middle of a really bad Lifetime movie. We are all hoping that we can change the channel or wake up from the nightmare of outliving our child/children. Unfortunately, this is our reality. Thank you to all those who help us along our way.
So glad to see you September
September 2, 2013 at 10:56 pm | Posted in after death?, Grief, Jake, life after loss | 8 CommentsTags: birthday, centenarians, child loss, dark days, death, Grandfather, gratitude, Jake, new not so normal, twins
August is over and Evan came up with a brilliant plan to get through the last few days of it. The last week of August includes Jake’s deathiversary, my birthday and my grandfather’s (there are a few family wedding anniversaries in there too).
Evan planned a trip and we went away. My parents were able to join us. We usually do go away Labor Day weekend to see my grandfather for his birthday. Our whole family for many Labor Day weekends has come together to celebrate his birthday. I know that I am so lucky to have spent so many birthdays with my amazing grandfather. However, this year there was no trip to see him to look forward to, so I had to find other ways to distract myself.
Evan’s plan worked like a charm and these 2 helped as well. . .
August, Already?
August 6, 2013 at 8:42 pm | Posted in Grief, Jake, Love, Sawyer | 5 CommentsTags: 1st grade, back to school, child loss, death of a baby, gratitude, grief, life after loss, new not so normal, perspective, thoughts
It is August again. This month is filled with happy days and harder days. Lots of family birthdays and anniversaries are in August as well as Jake’s birth and death days. This year there will be one less happy day. I had always looked forward to my grandfather‘s birthday at the end of the month. I knew he would not live forever but I still miss him.
I will take August like I do every day – day by day. I have made it through many Augusts without Jake and I will make it through this one as well.
“You don’t get over it, you just get through it. You don’t get by it, because you can’t get around it. It doesn’t ‘get better’; it just gets different. Everyday… Grief puts on a new face….”
― Wendy Feireisen
This year is also filled with getting ready to go back to school. The twins start 1st grade this week! We already had the Open House to meet their teachers. I did not even (outwardly) flinch when another parent asked if we had already been to the upper campus with our older child. I did not choke back tears when she said, “Oh, that is right you do not have older children.” I bit my lip and did not say a thing although she is one of the few parents at the twins’ elementary school who know that Jake (and Sawyer) ever existed.
“They’d crossed over to that continent where grieving parents lived. It looked the same as the rest of the world, but wasn’t. Colors bled pale. Music was just notes. Books no longer transported or comforted, not fully. Never again. Food was nutrition, little more. Breaths were sighs. And they knew something the rest didn’t. They knew how lucky the rest of the world was.”
― Louise Penny
I know that I am lucky too. I am lucky to be Jake, the twins and Sawyer’s mom.
The King & Queen of July’s Birthday (with a side of bittersweet)
July 30, 2013 at 10:08 pm | Posted in Grief, Jake, normal?, twins | 4 CommentsTags: baby loss, bittersweet, child loss, death of a baby, gratitude, happy birthday, Jewish customs, King and Queen of July, life after loss, new not so normal, parenthood, perspective, twins, yahrzeit
A few years ago (not long after they learned to speak) the twins announced that they are the King and Queen of July. It is after all, their birthday month and we (me and Evan) should never forget to plan accordingly. The twins did have a fun birthday. I can not say that they were overjoyed the whole month. I distinctly remember being told I was “making it the worst July ever” on a few occasions after I asked them to clean up their toys, brush their teeth or take a bath. . .
I am forever grateful for our amazing twins. I am so lucky that I am their mom and getting the chance to raise them. Happy, happy birthday to the King and Queen of July!
The bittersweet part of the twins’ birthday was that this year Jake’s yahrzeit fell on the same day. A Yahrzeit is the Hebrew date of the deceased relative’s death according to the Jewish calendar as opposed to the secular calendar. We lit a Yahrzeit candle. We said the mourner’s kaddish. I tried my best not to think about the almost 8-year-old big brother who should have been running around the birthday party. I am so very lucky to be Jake’s mom too.
Scent of Sawyer
July 14, 2013 at 1:02 pm | Posted in Grief, life lessons, Sawyer, venting | 9 CommentsTags: baby loss, death of a baby, gratitude, life after loss, Method Baby Products, new not so normal, Sad, Sawyer, scent, thoughts
One of the lessons that Jake and Sawyer have taught me is not to sweat the small stuff. In the grand scheme of things there is so much stuff that just does not matter in the end.
This post, however, is about small stuff. Method has discontinued their line of babies and kids products. I know that there is most likely a business reason why the line did not make it. However, I just wish they could bring the product line back. We have used their products (body wash, shampoo, lotion, laundry detergent and dryer sheets). We used a particular scent — rice milk and mallow — with Sawyer. We all loved the smell, and appreciated that they were natural products with nothing to harm Sawyer’s (or any of our) skin.
The smell of the products reminds me of Sawyer. So, after he died, we continued to use the products. The frequent and sweet reminder of him in the smell of our clothes or at the twins’ bath time is, in a way, comforting. Now the product line has been discontinued, and it is hard to find the products anywhere. I am sure that at some point, we won’t be able to find them at all anymore.
One more small bit of Sawyer that will no longer be in our lives. Yes, it is a small thing. But it is one more small thing I wish I could change.
And, a giant thank you to Evan for finding me some of the last of the bottles on eBay!
Perfect
July 8, 2013 at 10:44 pm | Posted in Grief, Jake, life lessons, Love | 5 CommentsTags: child loss, death of a baby, Down syndrome, gratitude, hope, life after loss, new not so normal, perspective, thoughts, trisomy 21
In May of 2005, Evan and I had the nuchal screening of our first child. We were told that there was a 1 in 5 chance that our baby had trisomy 21, Down Syndrome. Friends told us their tales of false positives with the nuchal screening but after a follow-up test it turned out that we were the 1. The day that we got the results Evan had an awful migraine. He went to bed. I cried on the couch with our dogs.
I knew that I would continue the pregnancy. Evan was not so sure because he needed to know more about Down Syndrome. He questioned his ability to parent a child with disabilities.
We recently watched Perfect. Have you seen it? It is a segment on ESPN’s show E:60 about a father and his down syndrome daughter. Heath White, a successful runner and businessman, wanted perfection. Down Syndrome was not part of his plan. However, his daughter Paisley changed his mind and heart. He wanted to tell his story to the world. He became an advocate for Down Syndrome children. Heath decided to run with Paisley. He pushed her in a stroller for a total of 321 miles. The number is significant because Down Syndrome is an extra (a 3rd) copy of the 21st chromosome.
Heath White spoke about grieving once he found out Paisley’s diagnosis. Evan and I also grieved that day in May, 2005. Although, looking back now it was just a preview of all the tears to come. Perhaps all parents of Down Syndrome children grieve the loss of the “perfect” life they hoped for their child. However, Heath learned from Paisley the true meaning of “perfection”.
We never had the chance to raise our Down Syndrome child.
Blog at WordPress.com.
Entries and comments feeds.
A Mourning Mom 