So glad to see you September
September 2, 2013 at 10:56 pm | Posted in after death?, Grief, Jake, life after loss | 8 CommentsTags: birthday, centenarians, child loss, dark days, death, Grandfather, gratitude, Jake, new not so normal, twins
August is over and Evan came up with a brilliant plan to get through the last few days of it. The last week of August includes Jake’s deathiversary, my birthday and my grandfather’s (there are a few family wedding anniversaries in there too).
Evan planned a trip and we went away. My parents were able to join us. We usually do go away Labor Day weekend to see my grandfather for his birthday. Our whole family for many Labor Day weekends has come together to celebrate his birthday. I know that I am so lucky to have spent so many birthdays with my amazing grandfather. However, this year there was no trip to see him to look forward to, so I had to find other ways to distract myself.
Evan’s plan worked like a charm and these 2 helped as well. . .
Names in the sand (part 2) and Spam
April 12, 2013 at 8:36 am | Posted in after death?, Grief, Jake, life after loss, Love, Sawyer | 9 CommentsTags: child loss, death, death of a baby, gratitude, hope, perspective, thank you, thoughts, ways to honor the memory of your child
So sorry if you recently received spam from me. I have changed my password and hopefully I should be spam free now.
In case you could not see the link to Jake’s name in the sand here it is:
Thank you again Carly Marie! Here is Sawyer’s too:
Sending you all hugs and hope. I truly appreciate you reading and remembering Jake and Sawyer.
Yesterday
March 4, 2013 at 11:07 pm | Posted in after death?, Cemetery, Grief, life after loss | 12 CommentsTags: child loss, dark days, death, death of a baby, family, grandparents, Jewish customs, life after loss, new not so normal, perspective
Yesterday was the 2 year anniversary of Evan’s mom’s death. It was also the day of the unveiling of her headstone. She had asked that this poem be read:
To Those Whom I Love And Those Who Love Me
written by Mary Alice Ramish
When I am gone, release me, let me go
I have so many things to see and do
You must not tie yourself to me with tears
Be happy that I have had so many years
I gave you my love, you can only guess
How much you gave me in happiness
I thank you for the love you each have shown
But now it is time I travelled on alone
So grieve a while for me, if grieve you must
Then let your grief be comforted by trust
It is only for a while that we must part
So bless the memories within your heart
I will not be far away, for life goes on
So if you need me, call and I will come
Though you cannot see or touch me, I will be near
And if you listen with your heart, you will hear
All of my love around you soft and clear
Then, when you must come this way alone
I will greet you with a smile and say welcome home
We placed stones on her grave. Evan and I had brought stones from Sawyer and Jake’s headstone.
I am so lucky to have had her as my mother-in-law. I will always be here to tell the twins stories about their amazing Mom Mom. I know I wrote in my last post that I bargained my life (and Evan’s) but it was never with the intention of leaving the twins. I was just a desperate mother who wanted the impossible.
Dinner Conversations & Divorce
January 30, 2013 at 10:52 pm | Posted in after death?, Grief, life lessons, normal? | 7 CommentsTags: after death?, child loss, death, death of a baby, divorce, grandparents, Jake, new not so normal, perspective, Sawyer, twins, unexplainable
At dinner the other night the twins started to discuss the fact that some of their classmates live with only one of their parents. Evan and I tried to explain that sometimes parents do not always live in the same house. This did not get us very far.
The twins responded in unison, “Why???”
“Why would a child’s parents not live in the same house.”
Good question. Okay, I tried another angle.
I responded, “You know that daddy’s parents did not live in the same house? Remember we visit Mom Mom and Pop Pop’s house and Grandmom and Grandpop’s house?”
Quizzical looks from both of them let me know that they were processing this information. After a moment, he looked at me and said, “Well now that Mom Mom is dead does she live with Grandpop?”
Evan and I looked at each other. Neither of us had a response to give to our son. Luckily, his sister answered. “No silly! Mom Mom lives with Sawyer, Jake and Grandpoppy!”
It is complicated
August 8, 2012 at 9:26 pm | Posted in after death?, Grief, life after loss, Love, normal? | 10 CommentsTags: child loss, death, grief, hope, Jake, quotes, Sawyer, twins
It is complicated to explain. Or maybe it is not. The twins are doing and will continue to do things that Jake and Sawyer never did and never will. This is a fact. A bittersweet part of our lives.
There will be no first days and no last days. And nothing in between. Sometimes I play the pointless “What if” game. What if there were more time with Jake and with Sawyer?
I just read True Compass: A Memoir by Ted Kennedy. He included a letter his father Joseph Kennedy Sr. wrote to a friend whose son had just died:
Dear Jack,
There are no words to dispel your feelings at this time, and there is no time that will ever dispel them. Nor is it any easier the second time than it was the first.And yet I cannot share your grief, because no one could share mine. When one of your children goes out of your life, you think of what he might have done with a few more years and you wonder what you are going to do with the rest of yours.
You never really accept it; you just go through the motions. Then one day, because there is a world to be lived in, you find yourself a part of it again, trying to accomplish something–something that he did not have time enough to do. And, perhaps, that is the reason for it all. I hope so.
Sincerely, Joe
I hope so too.
Kindness
July 24, 2012 at 8:58 pm | Posted in Grief, life after loss, normal?, silver lining | 2 CommentsTags: child loss, dark days, death, Dr. Joanne Cacciatore, MISS Foundation, new not so normal, perspective, quotes
I, along with the rest of the world, do not understand the horror that took place last week in Colorado. There are no words which seem adequate for such a tragedy. The families left behind have a devastating hole in their lives and way too many unanswered questions. Life is not fair. However, a few things I read gave me some hope:
1. An article about the “Tales of Heroism. . .”. “Even as a masked gunman kept firing a hailstorm of bullets in a Colorado movie theater, acts of selflessness and heroism sprouted from all across the room. Three of the 12 people killed died while shielding their girlfriends from the gunfire. And a young woman risked her life to aid her wounded friend, refusing to leave her side.”
2. My friend Kelcey over at Mama Bird Diaries focused on the helpers in the tragedy. Kelcey posted the following quote she found through Ann Imig.
“When I was a boy and I would see scary things in the news, my mother would say to me, ‘Look for the helpers. You will always find people who are helping.’ To this day, especially in times of “disaster,” I remember my mother’s words and I am always comforted by realizing that there are still so many helpers – so many caring people in this world.” -Fred Rogers
There is so much darkness in the world that sometimes it is hard to see the light. But light, hope and rainbows are there, just some days you have to look much harder than others.
More kindness. The MISS Foundation’s Dr. Joanne Cacciatore started the Kindness Project in 1996 as a way for families to cope with the tragedy of a child’s death. Since then, more than 1,000,000 kindnesses have been committed around the globe in memory of children, gone too soon.
Anyone can participate in memory of anyone!
Here’s what you do:
Visit the MISS Foundation’s International Kindness Project Day website:
www.KindnessProjectDay.org
Purple & Sparkly
May 12, 2012 at 10:14 am | Posted in Anniversaries, Grief, Love, silver lining | 10 CommentsTags: 5th birthday, cancer, child loss, death, favorite friends, hope, Jake, Maddie Sphor, Rockstar Ronan, Sad, Sawyer, unexplainable
Some time after Jake died one of my favorite friends and college roommate suggested that I read the blog The Sphors Are Multiplying. Years later and some time after Sawyer died another of my favorite friends suggested that I read another blog, Rockstar Ronan. At that time I could barely deal with our own sad story let alone read about the deaths of Maddie Sphor and Rockstar Ronan. I am not sure when but some time along the way I realized that I needed to see/read how other parents survive the deaths of their children. It helps me to read how they are continuing their lives while always remembering and honoring their children. I wish no parent had to live in a world without their child/children. This is not the reality and unfortunately the Club continues to add members.
Today would have been Ronan’s 5th birthday. I hate that he is not here to celebrate.
The Triathlon
May 6, 2012 at 10:30 pm | Posted in Grief | 25 CommentsTags: bittersweet, death, death of a baby, grief, life after loss, new not so normal, post traumatic stress disorder, triathlon
This weekend I swam, biked and ran. My only real goal was to finish in one piece and hopefully have some fun along the way. As I raced I realized that grief (or my experiences with it so far) is a lot like a triathlon.
Getting into the cool water is shocking and sudden. Keep moving – no matter what chaos or fogginess has set in, the only solution is forward motion.
“There is nothing left we can do for Jake.”
“Baby is not breathing.”
Next, there is bawling and bargaining. After the shock wears off a bit there are lots and lots of tears.
I would have traded places with Jake and Sawyer if it was humanly possible. I stared at the hospital walls and pleaded that it was me not them.
There are downhills and some coasting but there is always a hill up ahead. Shifting gears helps at times but not always.
Lastly, reality sets in but it is not the same reality as before – the shock has turned to sadness and the bawling has become bittersweetness. The bargaining is done.
My goal is still the same, to finish in one piece and hopefully have some fun along the way.
Life & Light
October 15, 2011 at 11:18 am | Posted in Death, Grief, mourning, silver lining | 3 CommentsTags: death, grandparents, grief, hope, Jake, life after loss, Sawyer, unexplainable
“Instead of cursing the darkness, light a candle”
– – Benjamin Franklin
Today is Pregnancy and Infant Loss Day. It is a day to promote and support the education and awareness for grieving parents. Today and every day I miss Jake and Sawyer but tonight at 7 pm we will light candles. This year I will once again hope that the light from all the candles will make the darkness of the unknown a little brighter.
As we honor and remember the short lives of Jake and Sawyer today. I would also like to honor the long life of Evan’s wonderful and amazing grandfather (aka GGP), Si Picker (if you click on the link skip down to the section titled “Naked with Brad Pitt”). If you do not click on the link I will give you the cliff notes version. Si Picker around the age of 60 became an actor. One of the films that he was in was called Johnny Suede with a very young Brad Pitt. Pitt was having a dream sequence in which GGP was sitting naked on a bar stool.
I know that death is part of life. GGP’s death is the natural order life – it is still so sad.
“Love is stronger than death even though it can’t stop death
from happening, but no matter how hard death tries it can’t separate people
from love. It can’t take away our memories either.
In the end, life is stronger than death.”
– – Anonymous
Frustration & Phillies Fans
October 10, 2011 at 10:44 pm | Posted in Grief | 7 CommentsTags: death, hope, Jake, life after loss, Sawyer, unexplainable
We ordered Sawyer’s headstone in August. Somehow it is October and it is not quite finalized. Perhaps this will mean that it will be correct the first time it arrives. Jake’s headstone took 3 tries.
The first headstone had the wrong dates. The second headstone had the right dates but said “Jack” instead of Jake. The third time was the charm and the correct headstone arrived.
We could not control what happened to Jake or Sawyer but you would think we could control the headstone. Here is to hoping that Sawyer’s first headstone arrives correctly. I guess everyone has frustrations in their lives. What are the things in your lives that you wish you could control?
As long as I am writing about things in life out of our control, to any Phillies fans out there I just wanted to say sorry about the playoffs. Here is one of the frustrated Phillies fans in my house.
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