September

October 6, 2014 at 10:58 pm | Posted in after death?, silver lining | 7 Comments
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September is childhood cancer awareness month.  I know that it is now October but I had ordered these Spicy Monkey Spirithoods last month.  These amazing hats were inspired by Maya Thompson’s son Ronan.  He wore a spirithood after he had lost his hair during chemotherapy.  At the age of 3 Ronan lost his battle to cancer.  Before he died, Maya promised him she would keep on fighting.  And, she has been waging war on childhood cancer ever since.

The company Spirithoods is donating 100% of profit from the SpicyMonkey to the The Ronan Thompson foundation to help in their fight against childhood cancer.  The spirithoods  have places to keep hands warm (so it is a hat and mittens!). There are also super secret pockets to hide things in.

I was not the only one in our house who was so excited when the box of Spirithoods finally arrived. . .

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Rockstar Ronan & Rainbows

June 24, 2012 at 10:52 pm | Posted in Grief, life lessons, Love, silver lining | 3 Comments
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Rockstar Ronan

In August of 2010, Ronan was diagnosed with Stage 4 Neuroblastoma cancer. He died on May 9, 2011 in his mother’s arms after an 8 month battle where “he never gave up until he was told it was time to let go.”  Maya made her son a promise that she would continue to fight for him until cancer survival rates start to improve and eventually a cure is found.   The Ronan Thompson Foundation was created.

Childhood cancer is the number 1 disease killer in children.  Pediatric cancer only receives 3.8% of all cancer research funding.  Maya is out there finding the doctors who will make the most difference in fighting childhood cancer.  The Ronan Thompson Foundation is raising money to fund the research.  Maya meets with and helps other families with children who have neuroblastoma.  Maya has also created a list of things that we can all do to help and live like Rockstars.

I know that what I am writing here is a fraction of all that Maya and Ronan have done and continue to do to change the face of childhood cancer.  However, I do know for certain that Maya and Ronan are changing the world for the better.

Rainbows

As always I am still searching for rainbows.  Here is the one I found today. . .

Thank you to Glenda for suggesting I write about Rockstar Ronan.  Thank you also to Jessica who mentioned Molly Bears.  If you have any other organizations that you would like me to write about please let me know.

Purple & Sparkly

May 12, 2012 at 10:14 am | Posted in Anniversaries, Grief, Love, silver lining | 10 Comments
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Some time after Jake died one of my favorite friends and college roommate suggested that I read the blog The Sphors Are Multiplying.  Years later and some time after Sawyer died another of my favorite friends suggested that I read another blog, Rockstar Ronan.  At that time I could barely deal with our own sad story let alone read about the deaths of Maddie Sphor and Rockstar Ronan.  I am not sure when but some time along the way I realized that I needed to see/read how other parents survive the deaths of their children.  It helps me to read how they are continuing their lives while always remembering and honoring their children.  I wish no parent had to live in a world without their child/children.  This is not the reality and unfortunately the Club continues to add members.

Today would have been Ronan’s 5th birthday.   I hate that he is not here to celebrate.

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