Dear Mother’s Day Angels
May 12, 2014 at 9:24 pm | Posted in Jake, life lessons, Love, Sawyer | 7 CommentsTags: baby loss, child loss, death of a baby, gratitude, holidays, mother's day, new not so normal, thoughts
Dear Jake and Sawyer,
There is not a day that goes by that I do not think of you both, but some days are harder than others. Mother’s Day is one of those days. Logically it is just another day. You are both gone every. single. day. It is not like the first days, weeks and months after you died when the tears so often streamed down my face without me even realizing. Now most of the time my tears are tucked farther away. The sadness and the joy of loving you both is a part of me.
I know I am not alone. There are so many other mothers in this club with me. There are motherless mothers, motherless fathers and those who have just lost. Death is part of life. And no matter how hard some days can be life goes on.
I like to believe that you both send things my way to make certain days (like Mother’s Day) easier for me. I wanted to thank you both for quite a few of those things this year.
- Thank you for your amazing brother and sister. They make me so very happy, except when they don’t (see 2nd bullet).
- Thank you especially for helping us find your sister when she ran away the first and SECOND time yesterday. One time she really had to go to the bathroom and the other time she thought she was being funny. Neither your dad or I laughed AT ALL.
- Thank you for making me smile when your dad and I were given a “gift bag” when we visited you at the cemetery. I guess they had the Mother’s Day cookout last year so the cemetery marketing people this year opted for gift bags. . .
- Thank you for showing me hope on days that are especially hard to find it. I found another “hope” telephone pole on my running route yesterday!

May the fourth be with you
May 4, 2014 at 11:48 pm | Posted in Grief | 4 CommentsTags: hope, March of Dimes, new not so normal, premature birth, ways to honor the memory of your child
Today is the unofficial holiday, “Star Wars Day“. I did not exactly feel the force with me today but last week during the March of Dimes walk I really do think I felt it. I looked around at the crowds and every one there had been impacted by the premature birth of a child. Our stories may all be different but we have all loved, hoped and in some cases lost. There were survivors walking among us but many of us walk in memory of our loved ones.
I saw people I have seen walk in years past. Still walking, like we do, in memory of our lost loved ones. My heart broke for all the new faces I saw last week. Every year I look into their eyes and wish I could take away the pain. Hopefully in years to come there will be more survivors.
We will continue to walk if not for ourselves than for them . . .
Hoping for Healthier Babies
April 28, 2014 at 8:28 pm | Posted in Grief, Jake, life lessons, Sawyer | 5 CommentsTags: baby loss, child loss, death of a baby, life after loss, March of Dimes, new not so normal, premature birth, ways to honor the memory of your child
Thank you to all of our friends and family for supporting Jake’s Journey and Sawyer’s Strides in the 2014 March of Dimes “March for Babies!” We appreciate you all so much. Special thanks to our super talented sister-in-law for designing a new logo for the t-shirts.
Jake and Sawyer‘s deaths were due to circumstances beyond our control. I cannot describe in words how horribly helpless it feels as a parent to watch your child die and not be able to do a thing to prevent it. The March of Dimes gives us a chance to do something to hopefully prevent another child from dying. Maybe, just maybe, another family will be spared from having to try to figure out how to live in this world without their child/children.
Evan was the chairperson of the North Atlanta walk this year. As the twins explained “their daddy got to the park early to put out the chairs!” Although he did not actually put out any chairs, we are so proud of him for all he did and continues to do in the fight for healthier babies.
Thank you again for supporting our team this year and in past years. We are grateful for your amazing kindness and generosity – we could not make it through this journey alone.
Jake’s Journey & Sawyer’s Strides
April 22, 2014 at 7:22 pm | Posted in after death?, Grief, Jake, life lessons, Love, Sawyer | 5 CommentsTags: baby loss, child loss, death of a baby, gratitude, hope, March of Dimes, new not so normal, ways to honor the memory of your child
No matter how far the distance you have traveled nor the failures that have gathered, hope would still meet you anywhere.
~ Dodinsky ~
Our family has walked in the March of Dimes’ “March for Babies” every year since Jake died. Originally our team was named Jake’s Journey. After Sawyer died we renamed it to Jake’s Journey & Sawyer’s Strides. We will be walking again this weekend.
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality. I believe that the March of Dimes is making a difference and saving babies.
I cannot do anything to bring back Jake or Sawyer but maybe, just maybe, I can help spare other parents the heartbreak of having to live in this world without their child/children.
Thank you to all those who supported our team this year and in past years. Thank you also to the hospital for matching funds. We appreciate all of your kindness and generosity. If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.
Trees
April 14, 2014 at 11:18 pm | Posted in Jake, life after loss, Love, Sawyer | 5 CommentsTags: baby loss, death of a baby, Jewish National Fund, new not so normal, Trees, ways to honor the memory of your child
Last month we went to the playground where trees are planted for Jake and Sawyer. I do not think Sawyer’s tree is doing so well at the moment. . .
The plan is that we will try to straighten it out and hope that it grows better. It is best to plant trees in the colder weather so we will reevaluate in the fall. It makes me feel better just to have a plan.
Many people had trees planted in Israel for Jake and Sawyer when they died. Planting trees in Israel is a tradition which celebrates the life of loved ones. Evan and I often joke that there is a Jake and Sawyer forest at this point. I have never been to Israel and if I do go I would like to see the Jake and Sawyer forest :-).
I did write thank you notes to all the people who had trees planted for Jake. However, I never did write thank you notes for the trees, donations and acts of kindness that were done in memory of Sawyer. I do want to thank all of those who had trees planted for Sawyer and one day I hope to write those notes. Until then, please know how very thankful I am.
I want to wish a happy and healthy Passover to all those who celebrate!
Hoping for Milk
April 8, 2014 at 9:48 am | Posted in after death?, Grief, life after loss, Love | 8 CommentsTags: Benjamin Milk, brain cancer, child loss, dark days, grief, hope, hospice, new not so normal
Some days it is harder than others to find hope.
After Jake was born at 26 weeks with hydrops, I hoped he would be among the 30% of babies who survive these enormous obstacles. There was no miracle.
The horrible night we brought Sawyer to the emergency room, I hoped for the miracle that it would all be an awful mistake. There was no miracle.
I hoped for a miracle that would cure the cancer that Evan’s mom had or at least give her back the life she had. There was no miracle.
On Friday a close family friend lost his valiant battle with brain cancer. In case I have not mentioned it before I hate cancer!! His family along with all of us who loved him hoped he would win this battle. He did not.
When there is no more hope for our loved ones to remain with us we often shift to hoping to prevent that anyone else should have to go through this horrible journey. So, his family has formed a team, Everybody Needs Milk, in the Race for Hope DC. I hope that one day soon a cure for cancer is found.
This is a telephone pole at the end of my neighborhood running route. It is a reminder to me that there is hope everywhere (just sometimes we have to look for it harder than others).
Many ways to mourn
April 2, 2014 at 10:08 pm | Posted in Grief, life after loss, Love, mourning | 5 CommentsTags: baby loss, death of a baby, new not so normal, parenthood
The other day a friend sent me an article about a mother who built a sandbox on her infant sons’ grave. The sandbox is to give her living 3-year-old son a way to “play” with his baby brother. It is a very creative idea which gives her son a way to mourn as well as bond with the brother he will never know.
My friend wrote in the email that the article made her smile. It makes me smile too.
Hope and Hair
March 28, 2014 at 4:58 pm | Posted in Love, normal? | 11 CommentsTags: cancer, donate hair, hope, new not so normal, Pantene Beautiful Lengths, parenthood

As of today one of the twins and I have officially donated enough hair to Pantene Beautiful Lengths to make one wig for a cancer patient. It takes 6 donations to make a wig (I have donated 4 times and she cut her hair today for her 2nd donation!).
Hope that you all have a great weekend.
Pathology is No Place for Politics
March 24, 2014 at 8:18 pm | Posted in Grief, venting | 6 CommentsTags: baby loss, child loss, death of a baby, grief, life after loss, pathology, perspective, politics, thoughts, unexplainable
I read an article recently about a young mother losing a child that presented a whole new take on a sad situation.
The death of any child is heart breaking, and a horrible situation no parent should have to suffer. In this case, a poor 16-year-old in Mississippi lost her baby at 36 weeks to what was most likely the frighteningly all too common situation of where the umbilical cord gets tangled around the baby and causes death. The teenager had to deliver her stillborn child and figure out how to deal with such a sad and horrid situation that would leave any mom filled with guilt (even though there was nothing she could have done to prevent it). It must have been even harder to be only 16 and having to deal with one of life’s greatest tragedies.
But then, for this girl, things got exponentially worse. Apparently in Mississippi at the time there was a pathologist who has quite a reputation – for being politically motivated and having an agenda. When he found evidence that the girl in question had used drugs during her pregnancy, the pathologist concluded that the drugs had led to the baby’s death. And he, along with local law enforcement (which also has an agenda to reduce women’s reproductive rights) decided to charge this 16-year-old girl with murdering her child. They alleged that her use of drugs was a “depraved heart” killing of her child.
They did all this despite the fact that no medical facts support that conclusion. They ignored the science that points to the cord as the cause of death and ignored the medical facts that show that while drug use is certainly a terrible idea for a pregnant woman, it does not cause death of the child (and not in this case).
For six years now this now 24-year-old from an impoverished background with drug issues has not only had to deal with the death of her child, she has had to deal with being accused of killing her child, of having a “depraved heart,” and with the very real fear of being tried and found guilty of murder by a Mississippi jury.
I just cannot imagine.
When Sawyer died, since his heart stopped at home, investigators questioned us in the ER. Then they followed Evan and I home from the hospital to view the scene and talk more about what happened. They quickly concluded that what ever exactly happened to Sawyer, it was biological, not something that anyone did to him and not something that could have been prevented by some action we could have taken (or not taken) at home.
We knew that, logically, but it was also helpful to hear that from those who looked into it. Further, the pediatric pathologist who examined Sawyer to try to determine the cause of death also ruled out any external causes, and ultimately focused on his heart stopping, likely due to a genetic, undiagnosed arrhythmia. (It’s still a working theory, but it’s the best any doctor can say at this point.) The pathologist was compassionate and helpful in trying to get us not to blame ourselves for Sawyer’s death. She explained things so we could understand them, and she spent extra time meeting with us, emailing with us, and even went above and beyond to help us get Sawyer’s DNA in a study at the Mayo Clinic looking for certain arrhythmias that she and some other scientists believe may account for many of the SIDS and SUIDS deaths that still occur far too often. She also happens to be quoted in the article — taking a sane, rational, scientific-supported view of the case, unlike the Mississippi pathologist out to “get” this girl.
I cannot fathom how this girl must feel having had not help and comfort from investigators and a pathologist, but blame, condemnation and being charged with “depraved heart murder.” It must be like a second sledgehammer to her own heart. First, her baby dies. That is heart-crushing on its own. Then, she is accused of killing her child and must fight for her own freedom and future. That guilt and feat must be not just heart-crushing but soul-smashing. For a sixteen-year-old girl from poverty probably few of us can truly comprehend.
I am not excusing her drug use. As a mom, protecting our children is of the utmost importance. I’d never do something that might harm my children. She made that mistake. But I cannot judge her for that, because I do not know her or her true circumstances, or why she did that.
What I do know is that science says she did not kill her child. What I also CAN understand is the depths of despair and guilt a mom faces when her child dies. No woman should go thru that. No girl should face that, let along without care and support of those around her. To blame her for her child’s death here, to prosecute her for murder, to claim to the world she has a “depraved heart,” must be causing her unimaginable pain.
I can barely make it though losing Jake and Sawyer even with being told by everyone that I did everything right, but that some things cannot be fixed or prevented. Without that love, caring and support, and in the face of accusations of killing my own child (no matter how wrong-headed, illogical, unsupported by science and politically driven they might clearly be) I don’t know how I would be able to go on.
No worries (I wish. . .)
March 16, 2014 at 9:28 pm | Posted in Grief, Sawyer, twins, why I write | 10 CommentsTags: baby loss, child loss, dark days, death of a baby, grief, hope, new not so normal, parenthood, perspective, thoughts
If your problem has a solution then…why worry about it? If your problem doesn’t have solution then…why worry about it? – Chinese Proverb
In theory I think this makes sense and I agree with the proverb, but I have a problem: I think that worrying is in my DNA.
Everyone at our house is feeling fine now but last week that was not the case. Evan and one of the twins were sick. It is part of life – everyone gets sick. But, I do not like it one bit! I try very hard to rely on the rational part of my brain but the irrational part of me always seems to take over. I am transported back to the days and nights before Sawyer died. Was there something going on? Was he sick in some way? What did I miss? How could he be seemingly perfect one moment and then dead the next?
I know that the twins are not Sawyer. They are bigger. They are stronger. They can tell me when something is wrong (and usually can specifically detail what is wrong too!). However, I cannot help but second guess myself. I cannot help but worry about what we could have done differently, what might have prevented Sawyer from dying that night, how we might have taken a different action or course and he would still be here with us today. I also know that even if we did miraculously figure out the cause of Sawyer’s death it would not change the fact that he is dead. Resurrection is not our reality. Of course, I cannot change that now, and of all things, I logically know I should not worry about things I cannot change. And yet, those are the things that seem to draw out my worries the most.
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