Tiny Beautiful Things: Advice on Love and Life from Dear Sugar
October 14, 2013 at 10:26 pm | Posted in life lessons, Love | 5 CommentsTags: book review, child loss, grief, hope, life after loss, new not so normal, thoughts, Tiny Beautiful Things: Advice on Love and Life from Dear Sugar
The book, Tiny Beautiful Things: Advice on Love and Life, is a compilation of advice columns by Dear Sugar. It is written by Cheryl Strayed, who was formerly the anonymous online advice columnist, Dear Sugar. The book is a collection of letters written to Dear Sugar and her responses. Dear Sugar writes advice to questions about love, life, death and everything in between.
I previously wrote about one of Dear Sugar’s advice columns to Stuck. Stuck is a bereaved mother. Stuck’s baby died. Sugar offers some very powerful advice on how to get unstuck. In another post, in response to a letter from Living Dead Dad, Sugar wisely writes:
“I don’t know how you go on without your son, sweet pea. I only know that you do. And you have. And you will.”
“Your boy is dead, but he will continue to live within you. Your love and grief will be unending, but it will also shift in shape. There are things about your son’s life and your own that you can’t understand now. There are things you will understand in one year, and in ten years, and twenty.”
There was a time after Jake and then after Sawyer’s death that I could not concentrate long enough to finish a sentence let alone an entire book. Now, I am able to concentrate while I read, although I have to admit most of my “reading” is actually listening to books on CD in the car. I am so glad that I stumbled back upon the book Tiny Beautiful Things and listened to it in its’ entirety.
Weekend Walks
October 4, 2013 at 6:22 pm | Posted in life lessons, Love | 6 CommentsTags: Atlanta 2 Day Walk for Breast Cancer, Atlanta Walk to Remember, breast cancer, child loss, death of a baby, hope, life after loss, Pregnancy and Infant Loss Awareness month, thoughts, ways to honor the memory of your child
Do you know that along with Breast Cancer Awareness month that October is also Pregnancy and Infant Loss Awareness month?
There are so very many facts that I have had to accept are out of my control. At the top of the list are the facts that Jake and Sawyer are dead.
However, I am still here. I am going to do my best to bring awareness to Pregnancy and Infant Loss along with Breast Cancer. So, this weekend I am going to walk in the Atlanta 2 Day Walk for Breast Cancer and the Atlanta Walk to Remember. I will let you know how they go.
Hope that you all have a great weekend!
Control & Clean Clothes
September 26, 2013 at 9:53 am | Posted in life lessons, Love, normal?, venting | 6 CommentsTags: child loss, dark days, Jake, life after loss, new not so normal, perspective, Sawyer, thoughts
I wish life could be a bit more like laundry. You put the dirty clothes in the washing machine, add detergent and wait. After the clothes are clean put them into the dryer. Wait. Fold.
Okay, it is not always so seamless. I have turned a few white loads pink. I will also confess that I have washed more than one diaper. It is pretty messy. However, after shaking out the clothes and repeating the wash and dry cycles everything was once again clean.
Before 2005 there were plenty of situations out of my control but Jake’s diagnosis put them all into perspective for me. I did what I thought were the right steps. I gave birth to Jake at 26 weeks anyway. He lived for 2 weeks but I could not do a thing to prevent his death.
At the time I thought that I could protect any potential future children if they were not premature. I could be in control if I could just keep them out of the NICU. Sawyer’s death let me know loud and clear that I was wrong about that too.
Lately, life seems more out of control than I would like. I just need to realize that is all part of life and hold on.
I think I will go switch the laundry into the dryer.
The Other Baby
September 18, 2013 at 9:44 am | Posted in hospital, Jake, life after loss, NICU | 13 CommentsTags: #DPchallenge, baby loss, death of a baby, hope, hospital, life after loss, new not so normal, NICU, thoughts, writing challenge
“We can leave whenever you want to go.” Evan said for the tenth time.
“Not yet, I can wait a little longer.” I lied.
I was hot and I felt like the walls where closing in on me. So, not even 5 minutes later I ran out of the hospital. Evan followed me.
It was the first time we had been back to the hospital since the horrible day that Jake had died.
It started earlier that day. Evan and I were both home. Our fog of grief was interrupted by the ringing of the phone. He answered. I heard him say, “I am her husband whatever you need to talk to her about you can can tell me.” I could not hear the response on the other end of the call. Evan’s sad voice spoke once more, “Do you realize that our only child died last week and his funeral was just days ago?”.
Evan appeared with the phone in front of me. “It is a nurse from the hospital. She needs to speak to you.”
The one and only thing that entered my mind was that this nurse was calling to tell me that Jake was alive!! This has all been a terrible mistake. Evan and I are about to wake up from this nightmare. Jake is really waiting for us in the hospital. I grabbed the phone from Evan.
“There has been a mix up at the hospital.” said the nurse.
My mind and my heart were now both racing so fast that I could not sit still. “Okay.” was all I could manage to say in response.
“The milk that you had pumped for Jake was given to another baby.”
My mind and heart stopped racing. What!? I had been pumping milk since the day that Jake was born in the hopes that he would one day drink it. Evan would take the bottles of milk, label them and put them into this high security refrigerator in the NICU.
When Jake died we asked if we could donate the milk. Perhaps at least my milk could help another baby and help us to make some sense over Jake’s death. We were told that we could not donate the milk because I had been given pain medication after my C-section. Another loss.
Evan asked if we needed to come dispose of the milk. The nurses assured us that we did not have to worry about it – they would get rid of the milk.
Except, they did not. The milk was mistakenly given to another baby in the NICU. Now the parents of the other baby were understandably upset.
The nurse was calling because they needed me to come in for a blood test to verify that I was not on any illegal drugs when I pumped the milk. The other parents needed to know that the milk that their NICU baby drank was ok.
“Of course, my blood is ok.” I whispered as I realized that this call was not going to bring Jake back to us. Evan held my hand.
“I will come right now to take the blood test. I know that if we were those other parents we would want/need to know.” I hung up the phone.
Evan drove us the 3 miles back to the hospital where we had left Jake’s body just days before. A nurse met us out front and led us to a room far from the regular labor and delivery and the NICU. We were far, far away from any happy parents with their newborns. The hospital walls seemed to close in on us.
We waited in that room for the blood test. We waited for 30 minutes. “We can leave whenever you want to go.” Evan said for the first time. And, then we waited 30 more minutes. He repeated over and over that we could leave.
After 90 minutes I could not take it anymore. I ran out of the room. I did not ever take the blood test. I knew that there was nothing in my milk that Jake would not have been given had he ever drank it. So, I thought the other baby would be ok. Or, at least that if the baby was not ok it would not be from my milk.
I will never know for sure but every day I hope and pray that the other baby is alive, happy and healthy.
9/11, The End of the World as We Know it: Anniversaries (repost again)
September 10, 2013 at 5:46 pm | Posted in Grief, life after loss | 2 CommentsTags: 9/11, anniversaries, dark days, hope, life after loss, new not so normal, perspective, thoughts, tragedy, unexplainable
The tragedy of 9/11 and its’ anniversary are kinds of grief. It is of course, an enormous source of grief for all of the families and friends who lost loved ones. It is also the kind of grief in which you realize that the world as you knew it will not ever be the same.
Hurricane Katrina hit New Orleans the week that Jake passed away. A very close friend of mine took her 5-year-old son in for his check up and the pediatrician found a rare heart condition. My grandmother had died. I felt like the world was coming to an end. So, I asked the rabbi who presided at Jake’s funeral about the possibility that the world was ending. He replied with an analogy. He said that it is like when you decide you are going to buy a certain kind of car. Once you make the decision you start seeing the car every where. So, my take away from his explanation was now that I was grieving I would start to see grieving every where. . . Turns out you don’t have to look too far for grief in this world. The record 7.0-magnitude earthquake hit Haiti shortly after Sawyer died.
I know that 9/11, where close to 3,000 people died; Hurricane Katrina, where 1,500-1,700 people died; and the earthquake in Haiti, where almost 230,000 people died are tremendous losses compared to the death of two babies. But, those babies were mine. And, my world will never be the same as it was before they had died.
There is not a contest for who has the most grief. I am not trying to compare my losses to these catastrophic tragedies. There are not any winners here. In grief we have all lost. However, there is still the next day and the day after that. And one day, there is a point where we will realize that our loved ones are dead but we are still alive.
I posted the above last year at this time. On the anniversary of 9/11 and every day, my heart, prayers and thoughts go out to not only the victims but to those who they left behind in this world.
A Letter to People with Guns
August 22, 2013 at 10:42 pm | Posted in life after loss, venting | 2 CommentsTags: Antoinette Tuff, guns, life after loss, thoughts, tragedy, unexplainable
Dear People with Guns,
Please, please do not go into any elementary schools with your guns. In fact, please do not go into any other schools or public places and threaten innocent people. You see I have already buried 2 of my sons. I try to get up every day and live in this world without them. However, sending my 6-year-old twins to school and then hearing about a gun man in a local school does not help.
No parent should have to live in a world without their child/children so do not shoot any one. There is no explanation that you can give to the families left behind that will justify shooting their loved one.
I am so thankful to Antoinette Tuff for reasoning with the gunman. She told him “You don’t have to die today.” Not every one has the choice of which day they die.
So, people with guns please do not make the choice for other people. Keep your guns to yourselves.
Thanks so much.
One Day at a Time
August 18, 2013 at 10:22 pm | Posted in Grief, Jake, life after loss, Love | 3 CommentsTags: baby loss, birthday, dark days, death of a baby, hope, Jake, life after loss, new not so normal, perspective, thoughts
Thank you so much for the thoughts and prayers for us and Jake on his birthday.
We are continuing to ride on the August roller coaster of happy and sad days. This weekend had a happy day. Evan‘s birthday. I remember in 2005, Jake was a few days old and I was still in the hospital. The only thing Evan got for his birthday that year was a shower. Life is no longer minute to minute like it was in 2005. However, even today if I think too much about Jake’s birth day and death day, it seems like August is so very dark.
I remind myself not to imagine the 8-year-old Jake. There is no point in grieving over the little boy who never was but somehow I can not stop myself at times. I catch my mind as it wanders to what color his eyes would have been. . .
I remind myself to take it day by day.
Jake
August 14, 2013 at 12:14 am | Posted in Grief, Jake, life lessons, Love | 13 CommentsTags: baby loss, birthday, child loss, death of a baby, Jake, life after loss, new not so normal, parenthood, premature birth, thoughts
Dear Jake,
Today you would/should have been 8. You are not. I am still so very thankful that I got to meet you. I just wish we could have kept you for longer. Below are the words that your dad wrote to you 8 years ago. They are just as true today.
We love you Jake.
You are our sunshine.
You are such a courageous and strong fighter, and we are so proud of you.
Jake, you are a miracle, and we thank you for choosing us to be your parents.
You are so wise for someone so young and so small. You knew when you had to come into this world Jake, and you knew when you had to leave us to be in a better place.
You are and were the perfect son for us.
Jake, please know that we felt all the love you gave to us during your time here.
We are sad that we could only spend such a short time with you, but we are so glad and thankful for every minute of it.
It is amazing how we could come to love you so immediately and so completely even though we were just getting to know each other.
Then again, we feel like we have known you all of our lives, and you will be in our hearts forever and beyond.
Jake, we also know that you are at peace and that you are being watched over by all of our loved ones who also watch over all of us from above.
Thank you, Jake.
Thank you for coming to us.
Thank you for choosing us.
Thank you for loving us and letting us love you with all of our hearts.
We’ll see you every night playing up with the moon and the stars.
I miss you every. single. day. Some days are harder than others. I love you.
Back to School Blur
August 8, 2013 at 9:18 pm | Posted in Jake, Love, Sawyer, twins | 9 CommentsTags: 1st grade, after death?, back to school, child loss, death of a baby, life after loss, love, new not so normal, parenthood, perspective, reality, thoughts, time
It just does not seem that long ago that I could fit both the twins in a laundry basket. How is it possible that they are now in 1st grade! ? Time is so tricky and now these 2 would never fit in a laundry basket:
It is what is supposed to happen, they should grow up. I know all too well that it is a parent’s worst nightmare when their child/children are no longer growing. As I wrote here, I am still trying not to “grow” up Jake and Sawyer in my mind. I know that there is no point of grieving over every stage and milestone that they will never reach. Some days it works better than others.
August, Already?
August 6, 2013 at 8:42 pm | Posted in Grief, Jake, Love, Sawyer | 5 CommentsTags: 1st grade, back to school, child loss, death of a baby, gratitude, grief, life after loss, new not so normal, perspective, thoughts
It is August again. This month is filled with happy days and harder days. Lots of family birthdays and anniversaries are in August as well as Jake’s birth and death days. This year there will be one less happy day. I had always looked forward to my grandfather‘s birthday at the end of the month. I knew he would not live forever but I still miss him.
I will take August like I do every day – day by day. I have made it through many Augusts without Jake and I will make it through this one as well.
“You don’t get over it, you just get through it. You don’t get by it, because you can’t get around it. It doesn’t ‘get better’; it just gets different. Everyday… Grief puts on a new face….”
― Wendy Feireisen
This year is also filled with getting ready to go back to school. The twins start 1st grade this week! We already had the Open House to meet their teachers. I did not even (outwardly) flinch when another parent asked if we had already been to the upper campus with our older child. I did not choke back tears when she said, “Oh, that is right you do not have older children.” I bit my lip and did not say a thing although she is one of the few parents at the twins’ elementary school who know that Jake (and Sawyer) ever existed.
“They’d crossed over to that continent where grieving parents lived. It looked the same as the rest of the world, but wasn’t. Colors bled pale. Music was just notes. Books no longer transported or comforted, not fully. Never again. Food was nutrition, little more. Breaths were sighs. And they knew something the rest didn’t. They knew how lucky the rest of the world was.”
― Louise Penny
I know that I am lucky too. I am lucky to be Jake, the twins and Sawyer’s mom.
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