Dinner Conversations & Divorce
January 30, 2013 at 10:52 pm | Posted in after death?, Grief, life lessons, normal? | 7 CommentsTags: after death?, child loss, death, death of a baby, divorce, grandparents, Jake, new not so normal, perspective, Sawyer, twins, unexplainable
At dinner the other night the twins started to discuss the fact that some of their classmates live with only one of their parents. Evan and I tried to explain that sometimes parents do not always live in the same house. This did not get us very far.
The twins responded in unison, “Why???”
“Why would a child’s parents not live in the same house.”
Good question. Okay, I tried another angle.
I responded, “You know that daddy’s parents did not live in the same house? Remember we visit Mom Mom and Pop Pop’s house and Grandmom and Grandpop’s house?”
Quizzical looks from both of them let me know that they were processing this information. After a moment, he looked at me and said, “Well now that Mom Mom is dead does she live with Grandpop?”
Evan and I looked at each other. Neither of us had a response to give to our son. Luckily, his sister answered. “No silly! Mom Mom lives with Sawyer, Jake and Grandpoppy!”
Maybe
January 24, 2013 at 11:48 pm | Posted in after death?, Grief, life lessons, normal? | 5 CommentsTags: baby loss, Buddha, child loss, death of a baby, grief, hope, life after loss, new not so normal, perspective, Sawyer, twins, unexplainable
Maybe (Taoist story)
There is a Taoist story of an old farmer who had worked his crops for many years. One day his horse ran away. Upon hearing the news, his neighbors came to visit. “Such bad luck,” they said sympathetically.
“Maybe,” the farmer replied. The next morning the horse returned, bringing with it 3 other wild horses. “How wonderful,” the neighbors exclaimed.
“Maybe,” replied the old man. The next day, his son tried to ride one of the untamed horses, was thrown, and broke his leg. The neighbors again came to offer their sympathy on his misfortune. “Maybe,” answered the farmer. The day after, military officials came to the village to draft young men into the army. Seeing that the son’s leg was broken, they passed him by. The neighbors congratulated the farmer on how well things had turned out. “Maybe,” said the farmer.
After Sawyer died, one of Evan’s friends came over to see us. Those days were such a blur that I do not remember his exact words but I will try to give you the basic gist. He explained that sometimes things happen and we do not see or understand why at the time. We may never understand why but the fact that Sawyer died could influence someone or something in the future.
I, of course, responded that I will never understand why.
He went on to say that some events need to be looked at in different ways.
I again responded that I have examined and reexamined every angle of Sawyer’s death and could not find anything except for earth shattering pain, emptiness and never ending darkness.
However, he continued to make his point in a way that I could actually accept. He gave the example that when the twins grow up that their experience of Sawyer dying could impact them beyond my initial thoughts of how they would grow up without their baby brother. They could be perhaps go on to discover a cure for whatever caused Sawyer’s death. In that moment I grasped the fact that something good could possibly result from Sawyer dying. Maybe, just maybe.
Stuff
January 16, 2013 at 9:16 pm | Posted in Death, Grief, life after loss, normal? | 6 CommentsTags: child loss, death of a baby, grandparents, grief, Jake, life after loss, new not so normal, Sawyer
Very often “get rid of clutter” is at the top of my to do list. Okay, sometimes I put it at the top of Evan’s to do list. I am overwhelmed by the piles of paper, toys, laundry, and stuff in general which seems to fill up the world. However, there is some clutter that I just cannot part with. The hospital bracelets from Jake’s tiny ankles, the smallest “sunglasses” which covered his sensitive eyes, every little thing that touched his body came home with us.
Sawyer had a lot more stuff. Right after he died we packed up, donated or got rid of most of the things he never wore or used. The things he did wear and use stayed on a shelf. Year after year Sawyer’s stuff did not move. Except for the sock.
I recently went on a business trip and when I got home Sawyer’s stuff was not on the shelf. I backed out of the room and went in again. It was still not there. I yelled for Evan. He calmly explained that he moved it. Just like that. He moved it to the same place where Jake’s stuff is kept.
Logically, I know that it is all just stuff but these are the only things that we will ever have that were Jake’s and Sawyer’s. I thought about these things as I threw out garbage bag after garbage bag of stuff as I helped to clean out my grandfather’s home. Why did I find it so easy, even therapeutic, to throw away his things?
I decided that my lifetime of memories with my grandfather made all the material things not necessary. I do not need stuff to remember him.
On the other hand, I had such a short time with Jake and Sawyer. There are not so many memories or stories to tell. So, I will hold onto the stuff that I can.
Reality Bites
January 8, 2013 at 10:54 pm | Posted in Death, Grief, mourning, normal? | 9 CommentsTags: child loss, grandparents, grief, holidays, life after loss, new not so normal, Sad, thoughts
Today it has been 1 week since I held my grandfather’s hand as he took his last breaths. He is no longer suffering. The funeral is over. He was 100. His death was not a shock. Death is part of life. I repeat these statements to myself several times a day. So, why do I still feel like I am walking around in an alternate universe?
Evan, the twins and I have returned to work, school and life in general.
People ask “How were your holidays?” I want to scream, my grandfather died on New Years Day. Sawyer died the day after Christmas 3 years ago. I officially hate the holidays!!! However, I instead take a deep breath and respond, “Fine, how were yours?”
My thoughts are scattered. It took me less than 1 day to lose the new insurance card Evan handed to me. I got lost driving somewhere I go almost every week.
I am figuring out another new normal.
The Circle of Life
January 2, 2013 at 4:44 pm | Posted in Grief, life lessons, Love, mourning | 14 CommentsTags: centenarians, child loss, grandparents, grief, holidays, hospice, life after loss, new not so normal

I always knew that I would outlive my grandfather. It is the way that life is supposed to go. I made peace with my feelings about death in 2005. After Jake died, defying the circle of life, I quickly came to terms with my own mortality. I am not going to do anything to speed it up but I know I will die one day. And, I knew the day would come when my grandfather would die. No one lives forever.
He died yesterday. I know that he was 100 and lived a (mostly) beautiful life but the last part of it was so excruciatingly painful for him. I would have given anything to spare him the suffering he endured.
I am so very lucky that I was able to spend so much time with him. The twins got to know him. I believe they will have memories of their wonderful great grandfather.
I am hoping and praying that he is now resting in peace with my grandmother. And maybe, just maybe he will meet and play with his other 2 great grandchildren .
Storms & Seasons Greetings
December 12, 2012 at 12:12 pm | Posted in Grief, life lessons, normal?, silver lining | 10 CommentsTags: baby loss, child loss, dark days, death of a baby, holidays, new not so normal, parenthood, perspective

The dark days of December are always accompanied by holiday parties and cheer. The people of planet earth should be celebrating and happy because as it has already been established not everyone lives on planet my baby died. Last weekend I was visiting planet earth when Evan and I attended his work holiday party. For the most part we fit right in. Three different people asked “how many children do you have?” My response to 2 of them was “we have twins at home.”
I was speaking to a woman who I knew had lost a daughter. I did not know how or if I would bring it up but then she asked the question. I told her about all 4 of our children. I told her about Jake and Sawyer. She told me about her daughter who had died in 1999.
She shared with me that the month of her daughter’s death is still hard for her. I am truly sad that it is difficult but her honesty helped me. The 3 years since Sawyer died seem so long ago in some respects but in others it really does not. There is no plan to get over or through grief. It is a journey. I know exactly when the storms began but I am not sure if they will ever end.
A light in the darkness
December 8, 2012 at 9:46 pm | Posted in Grief, Love | 3 CommentsTags: Candle Lighting, child loss, Compassionate Friends, dark days, death of a baby, grief, hope, new not so normal, quotes, ways to honor the memory of your child

The Compassionate Friends is an organization which was formed to support families after a child has died. Its founder, Simon Stephens, states that the mission is “about transforming the pain of grief into the elixir of hope. It takes people out of the isolation society imposes on the bereaved and lets them express their grief naturally. With the shedding of tears, healing comes. And the newly bereaved get to see people who have survived and are learning to live and love again.”
The Compassionate Friends created a worldwide event to unite “family and friends around the globe in lighting candles for one hour to honor and remember children who have died at any age from any cause.” December 9th at 7 pm will mark the 16th Worldwide Candle Lighting.
Doctors & Dreams
December 2, 2012 at 9:48 pm | Posted in after death?, Grief, Love, normal? | 10 CommentsTags: baby loss, child loss, dark days, death of a baby, new not so normal, perspective, quotes, Sad, Sawyer, unexplainable

Dear Sawyer,
Three years ago we had your 2 week check up with the pediatrician. You did fantastic. You were gaining weight. You were eating. You were sleeping. All seemed to be going well. Was there something that we missed?
The doctor told us that you were perfect. We even scheduled your 2 month check up in January of 2010. As you know, we did not make it to that appointment.
I try not to imagine what you would be like as a 3-year-old. I know that I should just mourn the loss of you as a baby. It only makes it more painful to grieve the losses of all the other stages you sadly never reached. Good night baby boy. I love you. I miss you. As always, I will look for you in my dreams.

Stuck
November 26, 2012 at 10:48 pm | Posted in Death, Grief, life lessons, normal? | 17 CommentsTags: child loss, dark days, death of a baby, grief, Jake, miscarriage, new not so normal, perspective, quotes, Sad, Sawyer, thoughts
Thank you Brooke from by the brooke for writing about the book, Tiny Beautiful Things: Advice on Love and Life from Dear Sugar. The book is written by Cheryl Strayed, who was formerly the anonymous online advice columnist, Dear Sugar. The book is a collection of letters written to Dear Sugar and her responses.
One letter is from a bereaved mother, Stuck. Stuck’s baby died. I want to share the wisdom that Sugar so powerfully offers. The following is part of the advice that Sugar wrote to her:
Dear Stuck,
I’m so sorry that your baby girl died. So terribly sorry. I can feel your suffering vibrating right through my computer screen. This is to be expected. It is as it should be. Though we live in a time and place and culture that tries to tell us otherwise, suffering is what happens when truly horrible things happen to us.
Don’t listen to those people who suggest you should be “over” your daughter’s death by now. The people who squawk the loudest about such things have almost never had to get over anything. Or at least not anything that was genuinely mind-fuckingly, soul-crushingly life altering. Some of those people believe they are being helpful by minimizing your pain. Others are scared of the intensity of your loss and so they use their words to push your grief away. Many of those people love you and are worthy of your love, but they are not the people who will be helpful to you when it comes to healing the pain of your daughter’s death.
They live on Planet Earth. You live on Planet My Baby Died.
It seems to me that you feel like you’re all alone there. You aren’t. There are women reading this right now who have tears in their eyes. There are women who have spent their days chanting daughter, daughter or son, son silently to themselves. Women who have been privately tormented about the things they did or didn’t do that they fear caused the death of their babies. You need to find those women. They’re your tribe.
I know because I’ve lived on a few planets that aren’t Planet Earth myself […]
This is how you get unstuck, Stuck. You reach. Not so you can walk away from the daughter you loved, but so you can live the life that is yours — the one that includes the sad loss of your daughter, but is not arrested by it. The one that eventually leads you to a place in which you not only grieve her, but also feel lucky to have had the privilege of loving her. That place of true healing is a fierce place. It’s a giant place. It’s a place of monstrous beauty and endless dark and glimmering light. And you have to work really, really, really hard to get there, but you can do it. […]
You will never stop loving your daughter. You will never forget her. You will always know her name. But she will always be dead. Nobody can intervene and make that right and nobody will. Nobody can take it back with silence or push it away with words. Nobody will protect you from your suffering. You can’t cry it away or eat it away or starve it away or walk it away or punch it away or even therapy it away. It’s just there, and you have to survive it. You have to endure it. You have to live through it and love it and move on and be better for it and run as far as you can in the direction of your best and happiest dreams across the bridge that was built by your own desire to heal. Therapists and friends and other people who live on Planet My Baby Died can help you along the way, but the healing–the genuine healing, the actual real deal down-on-your-knees-in-the-mud-change–is entirely and absolutely up to you. […]
Yours,
Sugar
I have been living on Planet My Baby Died for 7 years. I do not know if there is a separate Planet for when a second child dies. If so, I have been on that Planet for almost 3 years. Either way, here I am trying to live.
Thankful 2012
November 22, 2012 at 7:28 am | Posted in Grief, life lessons, Love, normal? | 8 CommentsTags: child loss, dark days, death of a baby, gratitude, holidays, new not so normal, perspective, quotes
I am forever thankful for the people who supported and continue to support Evan and I through the darkest times in our lives. I have not officially thanked you all but please know that you have our eternal gratitude. Hope that you all have a very happy Thanksgiving!
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