Storms & Seasons Greetings
December 12, 2012 at 12:12 pm | Posted in Grief, life lessons, normal?, silver lining | 10 CommentsTags: baby loss, child loss, dark days, death of a baby, holidays, new not so normal, parenthood, perspective

The dark days of December are always accompanied by holiday parties and cheer. The people of planet earth should be celebrating and happy because as it has already been established not everyone lives on planet my baby died. Last weekend I was visiting planet earth when Evan and I attended his work holiday party. For the most part we fit right in. Three different people asked “how many children do you have?” My response to 2 of them was “we have twins at home.”
I was speaking to a woman who I knew had lost a daughter. I did not know how or if I would bring it up but then she asked the question. I told her about all 4 of our children. I told her about Jake and Sawyer. She told me about her daughter who had died in 1999.
She shared with me that the month of her daughter’s death is still hard for her. I am truly sad that it is difficult but her honesty helped me. The 3 years since Sawyer died seem so long ago in some respects but in others it really does not. There is no plan to get over or through grief. It is a journey. I know exactly when the storms began but I am not sure if they will ever end.
Stuck
November 26, 2012 at 10:48 pm | Posted in Death, Grief, life lessons, normal? | 17 CommentsTags: child loss, dark days, death of a baby, grief, Jake, miscarriage, new not so normal, perspective, quotes, Sad, Sawyer, thoughts
Thank you Brooke from by the brooke for writing about the book, Tiny Beautiful Things: Advice on Love and Life from Dear Sugar. The book is written by Cheryl Strayed, who was formerly the anonymous online advice columnist, Dear Sugar. The book is a collection of letters written to Dear Sugar and her responses.
One letter is from a bereaved mother, Stuck. Stuck’s baby died. I want to share the wisdom that Sugar so powerfully offers. The following is part of the advice that Sugar wrote to her:
Dear Stuck,
I’m so sorry that your baby girl died. So terribly sorry. I can feel your suffering vibrating right through my computer screen. This is to be expected. It is as it should be. Though we live in a time and place and culture that tries to tell us otherwise, suffering is what happens when truly horrible things happen to us.
Don’t listen to those people who suggest you should be “over” your daughter’s death by now. The people who squawk the loudest about such things have almost never had to get over anything. Or at least not anything that was genuinely mind-fuckingly, soul-crushingly life altering. Some of those people believe they are being helpful by minimizing your pain. Others are scared of the intensity of your loss and so they use their words to push your grief away. Many of those people love you and are worthy of your love, but they are not the people who will be helpful to you when it comes to healing the pain of your daughter’s death.
They live on Planet Earth. You live on Planet My Baby Died.
It seems to me that you feel like you’re all alone there. You aren’t. There are women reading this right now who have tears in their eyes. There are women who have spent their days chanting daughter, daughter or son, son silently to themselves. Women who have been privately tormented about the things they did or didn’t do that they fear caused the death of their babies. You need to find those women. They’re your tribe.
I know because I’ve lived on a few planets that aren’t Planet Earth myself […]
This is how you get unstuck, Stuck. You reach. Not so you can walk away from the daughter you loved, but so you can live the life that is yours — the one that includes the sad loss of your daughter, but is not arrested by it. The one that eventually leads you to a place in which you not only grieve her, but also feel lucky to have had the privilege of loving her. That place of true healing is a fierce place. It’s a giant place. It’s a place of monstrous beauty and endless dark and glimmering light. And you have to work really, really, really hard to get there, but you can do it. […]
You will never stop loving your daughter. You will never forget her. You will always know her name. But she will always be dead. Nobody can intervene and make that right and nobody will. Nobody can take it back with silence or push it away with words. Nobody will protect you from your suffering. You can’t cry it away or eat it away or starve it away or walk it away or punch it away or even therapy it away. It’s just there, and you have to survive it. You have to endure it. You have to live through it and love it and move on and be better for it and run as far as you can in the direction of your best and happiest dreams across the bridge that was built by your own desire to heal. Therapists and friends and other people who live on Planet My Baby Died can help you along the way, but the healing–the genuine healing, the actual real deal down-on-your-knees-in-the-mud-change–is entirely and absolutely up to you. […]
Yours,
Sugar
I have been living on Planet My Baby Died for 7 years. I do not know if there is a separate Planet for when a second child dies. If so, I have been on that Planet for almost 3 years. Either way, here I am trying to live.
Thankful 2012
November 22, 2012 at 7:28 am | Posted in Grief, life lessons, Love, normal? | 8 CommentsTags: child loss, dark days, death of a baby, gratitude, holidays, new not so normal, perspective, quotes
I am forever thankful for the people who supported and continue to support Evan and I through the darkest times in our lives. I have not officially thanked you all but please know that you have our eternal gratitude. Hope that you all have a very happy Thanksgiving!
Remembering Miracles
November 16, 2012 at 10:02 am | Posted in Grief, life lessons, normal?, silver lining | 3 CommentsTags: child loss, death of a baby, gratitude, Jake, kindness, new not so normal, perspective, remembering miracles, Sawyer, ways to honor the memory of your child
Thank you Samantha Murphy for remembering Jake and Sawyer. Samantha recently started writing, Remembering Miracles. She writes to ” keep the memories alive of the children who are now walking as angels in Heaven.” Her blog is “to honor them, and to share their stories, so that they will live on forever, and never be forgotten. But although they are no longer physically here, their spirits live on, and will never fade as they continue to fight for their cause. So come on. Join the fights. Join the remembrance. What have you got to lose?”
I am honored that she wrote about Sawyer. Remember Sawyer.
And, she wrote about Jake. Remember Jake.
Samantha you are so very kind, thoughtful and wise beyond your years. Thank you again for not letting the memories fade.
Better
October 8, 2012 at 11:50 pm | Posted in Grief, life lessons, Love, normal? | 9 CommentsTags: child loss, death of a baby, grandparents, gratitude, hospice, Jake, life after loss, Sawyer
I have written before how I am so very lucky for my grandfather. I know that he will not live forever. It was never the plan for him to outlive me. I know that is not what he would want. It defies the circle of life that Evan and I have outlived 2 of our children. Jake and Sawyer were supposed to bury us.
My grandfather is now in hospice. Although life is going in the natural order – it is still hard. I do not want to see my grandfather in pain. I want to make it easier. I do not know what to do except what I have always done – love him unconditionally. And, appreciate how much better the world and my life is because of him.
The Balancing Act
October 4, 2012 at 11:14 pm | Posted in Grief, life lessons, normal?, venting | 5 CommentsTags: dark days, death of a baby, Jake, new not so normal, perspective, quotes, Sawyer, unexplainable
Areas of my life which I wish I could find a balance:
1. Answering the question, “how many children do you have?”
The twins started a new school this year. There are new teachers. New parents.
The twins started preschool the week after Sawyer died. We did not plan it that way but it is the way it worked out. It was a small preschool. I had already answered the questions. I had cried the tears in the parking lot.
Sawyer has been gone over 2 years so I can usually answer the question without the tears. The balance I am trying to find is answering the question without the pity that always seem to come along with it. It is hard to explain but I do not want people to feel sorry for us. I just want to be able to answer the question and talk about Jake and Sawyer.
2. “Being so busy I cannot think” coping technique
In 2005, Jake had died. I was still alive and forced to figure out how to live in a world without him. I searched and searched for steps to follow. A guide. Anything to help me get through the excruciatingly painful moments. I realized that being busy was the way to go. I desperately filled every possible moment.
In 2009 after Sawyer died I continued to utilize my “being so busy I cannot think” coping technique. I am at a point where I need to rethink just how busy I keep myself.
I do not know how to find the balance. There might not be a balance. Or, maybe there is and I will find it one day. Till then I will try to take Dr. Seuss’ advice and “step with care and great tact.”
Anger
September 24, 2012 at 10:46 pm | Posted in Grief, life lessons, normal?, twins | 7 CommentsTags: anger, child loss, death of a baby, Down syndrome, grandparents, Jake, motherhood, new not so normal, thoughts, trisomy 21
As human beings, our greatness lies not so much in being able to remake the world — that is the myth of the atomic age — as in being able to remake ourselves. – Gandhi
Anger. It is the 2nd stage of grief according to Elisabeth Kübler-Ross. At the time of Jake’s and Sawyer’s deaths I do not specifically remember feeling anger. Perhaps there was no room for anger because the stages of denial, bargaining and depression seemed to have trapped me. However, anger creeps into my life at unexpected times.
I was waiting in line with one of the twins so that she could sit in a fire truck. We were patiently waiting our turn.
We were in line behind a very cute girl with Down syndrome. She was not so sure about climbing up the stairs of the fire truck. The fireman offered to help her but she wanted to do it herself.
I asked the woman with the girl in front of us in line how old she was. She responded, “She is my daughter’s girl and she is 8.” I wanted to say something back to her like “You mean she is your granddaughter?” I remained silent. Jake would have been 7. Would he have liked fire trucks?
My little girl began to ask repeatedly, “When is it my turn?” My silence broke to reassure her that, “It is your turn next.”
The woman with the girl, looked at my daughter who at this point was jumping up and down as she continued to whine about her turn, pointed towards her granddaughter and said “This will really teach you patience.” And there it was – anger. I was angry at this grandmother. I have not walked in her shoes. I do not know the first thing about her life but I was angry. The voice inside my head wanted to explain to her that I too had a Down syndrome child but he died. He died before I got the chance to learn that level of patience. I once again remained silent.
Birthday Wishes
July 30, 2012 at 9:50 pm | Posted in Grief, life lessons, Love, silver lining, twins, why I write | 9 CommentsTags: gratitude, happy, life after loss, twins
Happy Birthday!
As I wrote last year on your 4th birthday I am so very thankful for you two. I am sorry that I did not take you to see your brothers on your birthday. I just could not this weekend. I promise that I will very soon. Then I will take you out for ice cream (thank you Daphne for the brilliant suggestion).
I wish that you had a chance to know your brothers. I wish that I did not have to explain death to you at such an early age. I wish that some of your first sentences did not include “don’t cry mama.”
I wish I could find a picture of you from your 3rd birthday. I will confess to you now that we almost did not have a party for you that year. After Sawyer died the thought of planning a party was so daunting. We realized that you no matter how sad we were you 2 deserve happiness (and a birthday party). We did plan it and if I remember correctly we sent out the invitation the week before. You both had a great time. I just wish that 2010 was not such a blur of grief.
I wish that I could have protected you from my dark days. I wish that you will always know how much sunshine you both bring to me.
I wish that you will continue to look for rainbows where ever you both go and that I can go with you. And hug you both tightly. Love you both to the moon and back.
Boy with the dragon tattoo & his sister
July 26, 2012 at 10:57 pm | Posted in Cemetery, Grief, life lessons, normal? | 9 CommentsTags: baby loss, Charlie Brown, Growing Up, parenthood, quotes, Sawyer, twins, unexplainable
Thank you for all the well wishes. The cast has not slowed him down one bit.
Here he is with his toy green teeth chasing the girl with the butterfly tattoo around the house.
Ok, the cast did eventually tire him out. . .
Now that he stopped chasing her she was free to accessorize a bit more.
They are making the most out of their last days as 4 year olds. She caught me off guard yesterday when she asked, “Will you take us to go see Sawyer and Jake for our birthday?”
“Yes, sure. Why?’ I responded while trying to figure out what happened that made a visit to the cemetery pop into her toddler brain.
“I love them. You don’t take us to see them often enough.”
She is right. I have not taken them to see Sawyer and Jake since the spring when she carefully arranged stones for her brothers. Over the past 5 years Evan and I have made the decisions about when and when not to bring the twins to the cemetery. Now that they have their own opinions I did not imagine we would be discussing trips to the cemetery.
“In the book of life, the answers aren’t in the back.” – – Charlie Brown
Sibling Rivalry?
July 16, 2012 at 5:46 pm | Posted in Grief, life lessons, Love, normal? | 14 CommentsTags: child loss, death of a baby, Jake, parenthood, perspective, Sawyer, twins, unexplainable
On any given day our twins will be arguing over who is “bigger”. She is 3-4 inches taller. He is 1 minute older. I have explained these facts over and over again. So technically they are both right. However, in their 4-year-old (almost 5) minds this is not a satisfactory solution. I am not sure why but I continue to feel the need to unsuccessfully rationalize with them. Sibling rivalry at its finest.
The other day I was driving. The twins were in their seats in the back. It had not been a particularly good day. There had been arguing between the 2 of them. There had been time outs (or as it is known in our house, “the zone”). All seemed to have calmed down as I drove along until the question was asked. I have always known this question would be asked one day but somehow I was not prepared.
“Do you love Jake and Sawyer more?”
Silence.
“Mama, who do you love the most?”
More silence.
I realized that if I did not answer quickly this line of questioning would continue possibly forever. In case you did not know, 4 almost 5-year-olds can be very persistent.
“I love you all the same. I just miss Jake and Sawyer more. I can not hug them the way I hug you both.”
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