Stuck

November 26, 2012 at 10:48 pm | Posted in Death, Grief, life lessons, normal? | 17 Comments
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Thank you Brooke from by the brooke for writing about the book, Tiny Beautiful Things: Advice on Love and Life from Dear Sugar.  The book is written by Cheryl Strayed, who was formerly the anonymous online advice columnist, Dear Sugar.  The book is a collection of letters written to Dear Sugar and her responses.

One letter is from a bereaved mother, Stuck.  Stuck’s baby died.  I want to share the wisdom that Sugar so powerfully offers.  The following is part of the advice that Sugar wrote to her:

Dear Stuck,

I’m so sorry that your baby girl died.  So terribly sorry.  I can feel your suffering vibrating right through my computer screen.  This is to be expected.  It is as it should be.  Though we live in a time and place and culture that tries to tell us otherwise, suffering is what happens when truly horrible things happen to us.

Don’t listen to those people who suggest you should be “over” your daughter’s death by now.  The people who squawk the loudest about such things have almost never had to get over anything.  Or at least not anything that was genuinely mind-fuckingly, soul-crushingly life altering.  Some of those people believe they are being helpful by minimizing your pain.  Others are scared of the intensity of your loss and so they use their words to push your grief away.  Many of those people love you and are worthy of your love, but they are not the people who will be helpful to you when it comes to healing the pain of your daughter’s death.

They live on Planet Earth.  You live on Planet My Baby Died.

It seems to me that you feel like you’re all alone there.  You aren’t.  There are women reading this right now who have tears in their eyes.  There are women who have spent their days chanting daughter, daughter or son, son silently to themselves.  Women who have been privately tormented about the things they did or didn’t do that they fear caused the death of their babies.  You need to find those women.  They’re your tribe.

I know because I’ve lived on a few planets that aren’t Planet Earth myself […]

This is how you get unstuck, Stuck.  You reach.  Not so you can walk away from the daughter you loved, but so you can live the life that is yours — the one that includes the sad loss of your daughter, but is not arrested by it.  The one that eventually leads you to a place in which you not only grieve her, but also feel lucky to have had the privilege of loving her.  That place of true healing is a fierce place.  It’s a giant place.  It’s a place of monstrous beauty and endless dark and glimmering light.  And you have to work really, really, really hard to get there, but you can do it. […]

You will never stop loving your daughter.  You will never forget her.  You will always know her name.  But she will always be dead.  Nobody can intervene and make that right and nobody will.  Nobody can take it back with silence or push it away with words.  Nobody will protect you from your suffering.  You can’t cry it away or eat it away or starve it away or walk it away or punch it away or even therapy it away.  It’s just there, and you have to survive it.  You have to endure it.  You have to live through it and love it and move on and be better for it and run as far as you can in the direction of your best and happiest dreams across the bridge that was built by your own desire to heal.  Therapists and friends and other people who live on Planet My Baby Died can help you along the way, but the healing–the genuine healing, the actual real deal down-on-your-knees-in-the-mud-change–is entirely and absolutely up to you. […]

Yours,
Sugar

I have been living on Planet My Baby Died for 7 years.  I do not know if there is a separate Planet for when a second child dies.  If so, I have been on that Planet for almost 3 years.  Either way, here I am trying to live.

Thankful 2012

November 22, 2012 at 7:28 am | Posted in Grief, life lessons, Love, normal? | 8 Comments
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I am forever thankful for the people who supported and continue to support Evan and I through the darkest times in our lives.  I have not officially thanked you all but please know that you have our eternal gratitude.  Hope that you all have a very happy Thanksgiving!

Remembering Miracles

November 16, 2012 at 10:02 am | Posted in Grief, life lessons, normal?, silver lining | 3 Comments
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Thank you Samantha Murphy for remembering Jake and Sawyer.  Samantha recently started writing, Remembering Miracles.  She writes to ” keep the memories alive of the children who are now walking as angels in Heaven.”  Her blog is “to honor them, and to share their stories, so that they will live on forever, and never be forgotten. But although they are no longer physically here, their spirits live on, and will never fade as they continue to fight for their cause. So come on. Join the fights. Join the remembrance. What have you got to lose?”

I am honored that she wrote about Sawyer.   Remember Sawyer.

And, she wrote about Jake.  Remember Jake.

Samantha you are so very kind, thoughtful and wise beyond your years.  Thank you again for not letting the memories fade.

November 17

November 14, 2012 at 10:38 pm | Posted in Grief, life after loss, Love, normal? | 14 Comments
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Sawyer,
It is me again.  I keep losing track of days.  Your 3rd birthday would/should be in 3 days.  November 17th is not only your birthday but it is World Prematurity Day.  You were not premature but your big brother Jake was 14 weeks early.  In fact, you were 8 lbs and 1 oz and perfect.  I know that  if you were here you would be okay sharing your birthday with Jake’s cause.

This year is also the first Global Week of Action for child survival.  The 13th-20th of November this campaign will try to “bring people together across the globe to raise their voices against the unacceptable number of children dying before their fifth birthday from preventable causes”.   I do not know if your cause of death was preventable.  I am still hoping to know for sure one day.  I hope that where ever you are you know your dad and I would have done anything to protect you.  I still cannot believe that I could not save you.

I do not know if I cry because I am weak or strong.  I do not care either way.  I just cry and miss you.  Love you always and forever.

Elections & Explanations

November 8, 2012 at 10:22 pm | Posted in after death?, Grief, Love, normal? | 13 Comments
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Dear Sawyer,
Your sister has big plans!  She would change the colors of the rainbow if she were elected president (just in case you cannot read her handwriting).  Hopefully, if she does decide to run for president she will first brush her hair.  I will not list all changes I would make.  But if I did make a list, the first thing would be to find the cure for whatever took you away from us.

I try not to think about it but I still cannot believe that we do not know your cause of death. The first weeks and months after you died I could not think of anything else.  I went over and over in my mind what could have possibly happened.  I looked for more information everywhere.  I thought if there was some logical explanation perhaps I could understand.  No medical explanation has been found.  I have tucked away the search for your cause of death. I will never forget or stop wanting answers.  I just cannot let myself go there very often.  We may never know why your heart just stopped.  Even if we did, it would not bring you back. And, that is what I want most of all.

I still hold out hope that one day the study that you are part of at the Mayo Clinic will find something.  Anything.

Time is moving forward, as it always does.  I am not sure how it is possible but your 3rd birthday will soon be here.  I do not want  it to be another November 17th without you. I know there is no other option for me.  Your birthday will come and go.  We will not watch you eat your birthday cake.  We will not take pictures of you opening gifts.  Or hug you.  .  .

I will now put away that part of me that cannot stop obsessing about your unknown cause of death.  I hope that where ever you are you know how much you are loved and missed.

Lost Girl?

November 2, 2012 at 10:22 pm | Posted in after death?, Grief, life after loss, normal? | 5 Comments
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In my younger (pre-children days) I loved to travel.  My parents took my brother and me on all kinds of exciting adventures.  I was an exchange student in Finland for a summer.  I spent a semester in Madrid.   My first jobs at times required extensive travel.  I was always happy to explore a new city.

In August of 2005, I held Jake,our first son, as he took his last breaths and a part of me died with him.  My love for travel was buried with Jake.   I could no longer be alone in my house let alone a hotel room in a far away city.  Even driving alone in my car was excruciatingly painful for me.

The twins’ birth brought me happiness that I did not think I could/would ever experience again.  However, that part of me that died with Jake was still gone.  Travel now seemed out of the question.  I did not want to let the twins out of my sight.  I was no longer alone in the house or the car.

When Sawyer died so unexpectedly my ability to be alone vanished again.  The 3 hours twice a week when the twins were in preschool seemed like an eternity to me.  For awhile I could not even shower unless other people were in the house.

I do not think I will ever be the person that I was before Jake and Sawyer died.  At times I do wonder if that person who loved to travel and see the world is still out there somewhere. . .

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