The Happy and The Sad
August 26, 2014 at 8:14 pm | Posted in Grief, Jake, life after loss, Love | 10 CommentsTags: baby loss, bittersweet, child loss, dark days, death of a baby, hope, Jake, Jewish customs, new not so normal, Sad
The happy and the sad are so closely entwined during the month of August that I have whiplash. Jake’s birthday, my parent’s 50th wedding anniversary!!, more yahrzeits, more birthdays and tomorrow will be Jake’s death day. I know there are only so many days in a year so birthdays and anniversaries have to overlap at times but August for me has overwhelming extremes.
At 6:14 am tomorrow, it will be 9 years since we last held Jake. The day after will be the anniversary of his funeral. And all the days after that will continue to be bittersweet but maybe one day we will hold sweet Jake again.
Dear Jake
August 14, 2014 at 9:14 pm | Posted in Grief | 10 CommentsTags: baby loss, birthday, child loss, dark days, death of a baby, Jake, life after loss, new not so normal
Dear Jake,
today you would have been 9. do you know how much we miss you? i do not have the right words at the moment to tell you. in fact my words and thoughts have been stuck for awhile. i guess you know this already.
i just want to tell you happy birthday baby boy. love and miss you so very much. xoxo
Hoping for Milk
April 8, 2014 at 9:48 am | Posted in after death?, Grief, life after loss, Love | 8 CommentsTags: Benjamin Milk, brain cancer, child loss, dark days, grief, hope, hospice, new not so normal
Some days it is harder than others to find hope.
After Jake was born at 26 weeks with hydrops, I hoped he would be among the 30% of babies who survive these enormous obstacles. There was no miracle.
The horrible night we brought Sawyer to the emergency room, I hoped for the miracle that it would all be an awful mistake. There was no miracle.
I hoped for a miracle that would cure the cancer that Evan’s mom had or at least give her back the life she had. There was no miracle.
On Friday a close family friend lost his valiant battle with brain cancer. In case I have not mentioned it before I hate cancer!! His family along with all of us who loved him hoped he would win this battle. He did not.
When there is no more hope for our loved ones to remain with us we often shift to hoping to prevent that anyone else should have to go through this horrible journey. So, his family has formed a team, Everybody Needs Milk, in the Race for Hope DC. I hope that one day soon a cure for cancer is found.
This is a telephone pole at the end of my neighborhood running route. It is a reminder to me that there is hope everywhere (just sometimes we have to look for it harder than others).
No worries (I wish. . .)
March 16, 2014 at 9:28 pm | Posted in Grief, Sawyer, twins, why I write | 10 CommentsTags: baby loss, child loss, dark days, death of a baby, grief, hope, new not so normal, parenthood, perspective, thoughts
If your problem has a solution then…why worry about it? If your problem doesn’t have solution then…why worry about it? – Chinese Proverb
In theory I think this makes sense and I agree with the proverb, but I have a problem: I think that worrying is in my DNA.
Everyone at our house is feeling fine now but last week that was not the case. Evan and one of the twins were sick. It is part of life – everyone gets sick. But, I do not like it one bit! I try very hard to rely on the rational part of my brain but the irrational part of me always seems to take over. I am transported back to the days and nights before Sawyer died. Was there something going on? Was he sick in some way? What did I miss? How could he be seemingly perfect one moment and then dead the next?
I know that the twins are not Sawyer. They are bigger. They are stronger. They can tell me when something is wrong (and usually can specifically detail what is wrong too!). However, I cannot help but second guess myself. I cannot help but worry about what we could have done differently, what might have prevented Sawyer from dying that night, how we might have taken a different action or course and he would still be here with us today. I also know that even if we did miraculously figure out the cause of Sawyer’s death it would not change the fact that he is dead. Resurrection is not our reality. Of course, I cannot change that now, and of all things, I logically know I should not worry about things I cannot change. And yet, those are the things that seem to draw out my worries the most.
Fun Friday – Sharing Smiles
January 24, 2014 at 5:22 pm | Posted in Grief, life after loss, Love, twins | 5 CommentsTags: baby loss, child loss, dark days, dogs, happy, hope, new not so normal, thoughts
I am struggling to find a happy place today. So, I thought I would try to cheer myself up by sharing some things that did bring a smile to my face this week:
- Seeds of Happiness – They are simple, small clay smiley faces. The twins have yet to give them to anyone but they do have a big time playing with them:
“Mark Borella, a sculptor, created small smiley faces from left-over lumps of clay. He gave these to his friends whose young son was dying of cancer. He told them: “I know there is nothing I can say or do to make you feel better so I thought I would bring you some smiles to help you get your smile back. ”
He called them Seeds of Happiness. And his hope is that sharing the smiles continues to grow as their customers plant Seeds around the world.
- Keeping our dogs warm in the Star Wars coats we found this week:
It is possible that Buddy and Baby are not smiling about their new coats . . .
- I recently found out that there is a Happy Movie and a Happy Movement.
The movie is all about happiness and what makes people happy. The movement “is a 28 day program that brings happiness to the center of our lives.” I need to end this post so that I can go sign up.
Happy Friday and I hope that you all have a good weekend!
Sawyer’s Story: The Funeral
December 28, 2013 at 11:02 pm | Posted in funeral, Grief | 8 CommentsTags: baby loss, child loss, dark days, death of a baby, fathers, Funeral, post traumatic stress disorder, Sawyer
Four years ago today was Sawyer’s funeral. I still cannot believe that Evan and I have lived through 2 of our children’s funerals. Most of those days are a big blur and what I do remember was that everything seemed so surreal. I had trouble putting sentences together.
Evan, on the other hand, wrote speeches for Jake and then again 4 years later for Sawyer. I am still amazed and thankful that Evan was able to think and write clearly enough for both of us.
My brother read what Evan wrote at Jake’s funeral. Below is what Evan read at Sawyer’s funeral:
Our son Sawyer is perfect. We know all parents feel that way about their children, and they should. We feel that way about our first son Jake, our twins Fletcher and Alyssa, and about Sawyer. But it’s not just a feeling. We know it. Sawyer is and always will be perfect. He has been perfect from the first moment we met him. Yes, he was also sweet, and adorable, and soft, and cuddly, and wonderful. But above all else, he was perfect. A perfect son. A perfect little brother.
We don’t know why we only got 40 days with Sawyer. We were supposed to have 40 years or more. 40 days makes no sense, and likely never will. We don’t know why that happened, but what we do know is how much we love Sawyer. We know how much we miss him and how much are hearts ache not being able to hold him and kiss him and care for him the way we were supposed to be able to do. 40 days – even the 40 wonderful days we had with him – is not enough. Not even close.
But, we’re going to treasure every memory from those 40 days. The first moment we saw him at the hospital. The first time we each held him. The first time we fed him and changed him and swaddled him. The first time we took him home and introduced him to the twins. The first time he smiled at us (even though it was probably just gas). The first time we got to tell every one of you about him and positively beamed with pride in getting to do so. We will hold onto each of those firsts – and every other moment after them that we had with Sawyer. We’ll remember every time we just sat and stared at him and marveled at how perfect he was and how amazing it was that we could make something – someone – so perfect.
We thank you all for being here this morning to help us get through this day with your love, friendship and support. We thank you for all that so many of you have already done, your words of love and kindness, and your helping hands. And we thank you for all that you will do to help as we try to figure out how to go on without having all those “firsts” we were supposed to have with Sawyer over the days, weeks, months and years to come. We welcome you back to our house after the service today, so that we can attempt to start to thank you in person and thank you for loving Sawyer with us.
There is comfort in knowing that Sawyer’s big brother Jake will be with him now. So will Grandmother and Aunt Sophie – Sawyer’s namesake who also had to grieve for a lost son – and his other great grandparents and loved ones who passed before him. We know he’s in good hands – it’s just that they are not the hands he is supposed to be in yet. He is supposed to be in our hands. But instead, our hands shake because we can’t touch him. Our arms ache because we can’t hold him. Our hearts break because he is gone after only 40 days. But even as we cannot understand or believe any of this, we want you to know, Sawyer, that we love you. Truly, deeply, forever, we love you. And no matter what Sawyer, you are perfect. You are perfect. You are perfect.
Four Years
December 26, 2013 at 10:48 pm | Posted in Grief, Sawyer | 11 CommentsTags: anniversaries, baby loss, child loss, dark days, death of a baby, new not so normal, perspective, Sad, Sawyer
Four years ago today is the date on Sawyer’s death certificate. Evan and I last held him on December 25th. My mind knows that time has passed. Sawyer is dead today and he will be gone tomorrow too. However, my broken heart wishes I could go back to when I took this picture and change the ending of Sawyer’s story. I have no words tonight for how much I miss that little guy.
Fun Friday with Food
December 20, 2013 at 5:44 pm | Posted in Grief, twins | 4 CommentsTags: baby loss, child loss, dark days, death of a baby, happy, holidays, marshmallow dreidels, new not so normal, recipes, teacher gifts, teensy gingerbread houses, twins
Grieving during the holidays is complicated, so I am continuing my search for the happy. The other week we made some Hanukkah treats (they were practice for making them with each of the twins’ 1st grade classes). First, we made marshmallow dreidels.
Ingredients
- marshmallows
- pretzel sticks
- Hershey kisses
- frosting
- Unwrap the Hershey kiss.
- Spread frosting on the bottom of the marshmallow.
- Place the kiss in the frosting.
- Push a pretzel stick on the top of the marshmallow (for the dreidel top).
- Cover the whole thing with chocolate magic shell and wait for it to dry.
We did not have the patience for the drying so we skipped #5.
Yesterday we tried to make tiny gingerbread houses for the twin’s teachers. We found a recipe in Family Fun Magazine:
Ingredients
Houses
- Graham crackers
- Sprinkles and sweet decorations, such as, shaped sprinkles or gumdrops – we used Unreal Candy
(we bought pre-made icing but if you want to make icing below is a recipe)
Vanilla Decorating Icing
- 3 cups confectioners’ sugar
- 2 tablespoons milk
- 2 tablespoons light corn syrup
- 3/4 teaspoon vanilla extract
Make a Teensy Gingerbread House
1. With a serrated knife, cut the graham cracker pieces as shown. Tip: To create the pairs, cut one piece, then use it as a guide for the second.
2. To assemble, use Vanilla Decorating Icing (or the store bought icing).
3. Let the icing set, then use more to attach sprinkles and other sweet decorations, and let it set.
4. To place the house on a stick , trim a piece of brownie to fit inside the house. Slide the brownie onto a lollipop stick (we used a candy cane), then carefully slide the house on top.
They turned out pretty well:

My helpers were much more interested in the eating than the making. . .and everyone was happy.
Looking for the Happy
December 18, 2013 at 9:22 pm | Posted in Grief, life lessons | 5 CommentsTags: child loss, dark days, happy, holidays, new not so normal, Sad, Sawyer, twins
The dark days of December are always accompanied by holiday parties and cheer. The people of planet earth should be celebrating and happy because as it has already been established, not everyone lives on planet my baby died.
There are more of us than there should be on planet my baby died. My heart will forever hurt for those lost and left behind in Newtown. I also know that grief is not reserved for those of us who have outlived a child. There are so many tragedies that some days, it is so difficult if not impossible to find any happy.
A very wise friend once suggested to me that I just try to find one thing I like to do every day and do it. It does not matter how small the thing is – it could even be taking a shower. So, yesterday this is what I found to make me happy . . .
Thanksgivukkah
November 26, 2013 at 10:10 pm | Posted in Grief, Jake, Love, Sawyer | 3 CommentsTags: baby loss, child loss, dark days, death of a baby, gratitude, Hanukkah, holidays, Jewish customs, life after loss, new not so normal, thankful, Thanksgiving, Thanksgivukkah, thoughts
This year the 1st day of Hanukkah and Thanksgiving fall on the same day. Apparently, this only happens once every 79,000 years or something. So, I am thankful it is happening during my lifetime. As I have mentioned before, since Jake and then Sawyer have died the holidays can be difficult. So, by combining 2 of them maybe this year will be easier.
I am so very thankful for family and friends who have stood by us during the best and worst of times of our lives. I am certain that I would not be able to get through this journey alone. I will continue to always be very thankful for the time that we did have with Jake and Sawyer. I try not to dwell on the Hanukkahs and Thanksgivings that we did not have and will never have with them. Some days are just harder than others.
Happy Hanukkah! Happy Thanksgiving! And, Happy Thanksgivukkah to those of you celebrating both!
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