what i have learned in the 10 years since Jake died
August 31, 2015 at 9:44 pm | Posted in Death, Grief, Jake, life after loss, Love, why I write | 11 CommentsTags: anniversaries, child loss, death of a baby, deathiversary, life after loss, new not so normal, perspective, post traumatic stress disorder, premature birth, what i have learned in the 10 years since Jake died
Dear Jake,
Another August has come and gone – the 10th August since you left this world. I honestly was not sure that I would make it – 10 years seems like an eternity at times but I still find it so hard to believe that it has been that long since your dad and I last held you.
The first thing that I learned is that I will make it through the days, months and years without you. I do not like it and it is excruciatingly hard. But, your dad and I were not given a choice. We are still alive.
I started writing this blog when you were gone for 5 years. Five years also seemed impossible. You would have started kindergarten and your brother Sawyer had died so unexpectedly 8 months earlier. A therapist and a few friends suggested I try writing. I thought why not – maybe I can help myself and possibly help others.
I think I had visions that one day I would change the name of the blog to something other than a mourning mom. It turns out 5 years later I am still a mourning mom. I have not found a cure for hydrops or premature birth. In fact, we still do not even know what caused Sawyer’s death. I have not started a non-profit or a race. And, I still have days when I cannot stop crying because I miss you and your brother so much.
I wanted to write what I have learned in these 10 years living in this world without you. I thought I could write one post to sum it all up but it is not quite that easy. So, this my sweet Jake will just be part 1. I will write to hopefully help others through their own journey. And, even if I cannot help others I know that in another 5 years I will look back on these posts to help myself figure out how to survive the 10 year deathiversary of your baby brother.
A Celebration of Life
July 8, 2015 at 12:00 am | Posted in Grief, life after loss | 8 CommentsTags: death, family, grief, life after loss, perspective, thoughts
We spend precious hours fearing the inevitable. It would be wise to use that time adoring our families, cherishing our friends, and living our lives. Dr. Maya Angelou
My amazing cousin’s mother (who was also my cousin) wrote this poem in a comment to one of my posts last year. She peacefully passed away a few days ago after being diagnosed with pancreatic cancer in May. She did not want a funeral and followed the “honor me not by mourning my death but by celebrating my life” philosophy.
So on Monday, there was not a funeral but a memorial service/celebration of her life. My amazing cousin and my mom spoke – it was a beautiful tribute.
We decided that the twins should come to the celebration. They were not exactly at the service but they were running in circles in the entry way of the funeral home. As I left the service they both stopped running and came to hug me. One said “Mama, we will behave if you stop crying.” The other one said “Mama, you have to focus on the positive things.” As we drove away I stopped crying and I tried to explain to them that I am sad, I might cry again but I would try to focus on the positive.
“We all have life storms, and when we get the rough times and we recover from them, we should celebrate that we got through it. No matter how bad it may seem, there’s always something beautiful that you can find.” Mattie Stepanek
Fine Tuning
April 28, 2015 at 10:35 pm | Posted in Grief, life after loss | 5 CommentsTags: death of a baby, new not so normal, perspective, post traumatic stress disorder, Sawyer, thoughts
The other day was kindergarten round-up (the “orientation” for rising kindergarteners). Sawyer would be have been 5 in November and he should have been there that day getting a tour of the school he should be starting next school year.
I know that I am not supposed to grow him up in my mind but sometimes I find myself wondering anyway.
My therapist suggested that I slightly adjusting my thinking – kind of like those radio dials we used to turn until the station came in more clearly. For example, one of the twins goes to a doctor in the medical building attached to the hospital where Sawyer died. One day Evan was going instead of me. He had not been there yet so he asked me to clarify which building. There are a lot of medical buildings in that area so I tried my best to explain but was not making any progress. Finally, I said “remember the turn around where we waited the night Sawyer died?” He got it – and knew exactly where to go for the appointment.
If I adjust this conversation slightly in the future instead of giving directions that involve “where we waited the night Sawyer died” I can say “where we park for the doctor.”
This August Sawyer would have started kindergarten (it would have been Jake’s 10th birthday and the 10th anniversary of his death but I am not going to think about that today). Last week was kindergarten round-up. Sawyer was not there. He will not be there on the first day of school. I am trying to adjust my thinking but I am still working on the fine tuning.
almost (but not really) fun(ny) Friday & an idea
January 30, 2015 at 5:40 pm | Posted in Death, Grief | 4 CommentsTags: dark days, death of a baby, hope, new not so normal, perspective, thoughts
If you have ever talked to me or read this blog you know that getting Jake and Sawyer’s headstones correct has not been easy. In fact we have yet to accomplish it. So this week when the incredibly nice lady from the cemetery called no one should have been surprised that the new headstones arrived and they are not right. In fact she did not call Evan until she had already sent them back to the manufacturer. When Evan called to tell me the news, it made my head hurt but I also kind of felt like laughing . . .which stage of grief have I entered into now?
On a completely unrelated note (or maybe it is related after all because it is all out of my control!) I feel like the world is falling apart. The Middle East, school shootings, starving children – all so out of my control (kind of like the headstones – the deaths of Jake and Sawyer). It makes me feel very helpless. I want to be able to do something.
Awhile ago Evan thought up/or read about an idea to help the homeless. Here in Atlanta, we spend A LOT of time driving around. At stop lights there are often homeless people asking for money.
Evan, the twins and I put together bags with the following items:
Tissues
Band aids
Hand sanitizer
Socks
Peanut butter packs
Granola/protein bars
Water
Evan and I leave the bags in our cars. When we see a homeless person we give them a bag.
It may not solve the problems in the Middle East or get us any closer to knowing Sawyer’s cause of death but it is at least doing something.
baby steps
January 28, 2015 at 7:36 pm | Posted in Grief | 13 CommentsTags: death of a baby, gratitude, life after loss, new not so normal, perspective, post traumatic stress disorder
The other day I was alone with a baby. I have not been alone with a baby since my days with Sawyer.
Our neighbor’s baby boy had heart surgery the first week of January. He is home now and doing great. I offered to help. The mom asked if i could stay with the baby while she picked up her other sons from preschool. As she placed the baby in my arms I silently told myself “I can do this.” I held him the entire time his mom was gone and I watched his every breath. He might have almost smiled at me. My neighbor came home, I placed him back in her arms and agreed to come watch him another day. I did it!
i cannot believe i am writing about this again. . .
June 30, 2014 at 10:50 pm | Posted in after death?, Cemetery, Grief, Jake, life after loss, Sawyer | 6 CommentsTags: cemetery, child loss, death of a baby, headstone, life after loss, new not so normal, parenthood, perspective
Back in November the very kind cemetery people replaced Jake and Sawyer’s headstones. Jake’s headstone has now been replaced 4 times and Sawyer’s has been replaced 3 times. All seemed fine with the new ones. . .until a few weeks ago.
It has been raining a lot here in Atlanta so I thought maybe there were just water stains on the nameplates. I finally asked Evan what he thought about the stains. He said he would call the cemetery people. They went to check and the coating/finish is peeling off the nameplates. I am not sure how to feel about this – it sort of seems like a cruel joke. Should I cry? Should I laugh? Could the nameplates really need to be replaced again? Or, maybe Jake and Sawyer are just playing tricks or trying to give us something to worry about.
The very kind people at the cemetery are looking into it and will let us know. I will keep reminding myself that nothing is hurting Jake or Sawyer. There is no urgency to get this fixed. It might not be according to my plan but the world will keep spinning.
“I believe that if life gives you lemons, you should make lemonade… And try to find somebody whose life has given them vodka, and have a party.” Ron White
Pathology is No Place for Politics
March 24, 2014 at 8:18 pm | Posted in Grief, venting | 6 CommentsTags: baby loss, child loss, death of a baby, grief, life after loss, pathology, perspective, politics, thoughts, unexplainable
I read an article recently about a young mother losing a child that presented a whole new take on a sad situation.
The death of any child is heart breaking, and a horrible situation no parent should have to suffer. In this case, a poor 16-year-old in Mississippi lost her baby at 36 weeks to what was most likely the frighteningly all too common situation of where the umbilical cord gets tangled around the baby and causes death. The teenager had to deliver her stillborn child and figure out how to deal with such a sad and horrid situation that would leave any mom filled with guilt (even though there was nothing she could have done to prevent it). It must have been even harder to be only 16 and having to deal with one of life’s greatest tragedies.
But then, for this girl, things got exponentially worse. Apparently in Mississippi at the time there was a pathologist who has quite a reputation – for being politically motivated and having an agenda. When he found evidence that the girl in question had used drugs during her pregnancy, the pathologist concluded that the drugs had led to the baby’s death. And he, along with local law enforcement (which also has an agenda to reduce women’s reproductive rights) decided to charge this 16-year-old girl with murdering her child. They alleged that her use of drugs was a “depraved heart” killing of her child.
They did all this despite the fact that no medical facts support that conclusion. They ignored the science that points to the cord as the cause of death and ignored the medical facts that show that while drug use is certainly a terrible idea for a pregnant woman, it does not cause death of the child (and not in this case).
For six years now this now 24-year-old from an impoverished background with drug issues has not only had to deal with the death of her child, she has had to deal with being accused of killing her child, of having a “depraved heart,” and with the very real fear of being tried and found guilty of murder by a Mississippi jury.
I just cannot imagine.
When Sawyer died, since his heart stopped at home, investigators questioned us in the ER. Then they followed Evan and I home from the hospital to view the scene and talk more about what happened. They quickly concluded that what ever exactly happened to Sawyer, it was biological, not something that anyone did to him and not something that could have been prevented by some action we could have taken (or not taken) at home.
We knew that, logically, but it was also helpful to hear that from those who looked into it. Further, the pediatric pathologist who examined Sawyer to try to determine the cause of death also ruled out any external causes, and ultimately focused on his heart stopping, likely due to a genetic, undiagnosed arrhythmia. (It’s still a working theory, but it’s the best any doctor can say at this point.) The pathologist was compassionate and helpful in trying to get us not to blame ourselves for Sawyer’s death. She explained things so we could understand them, and she spent extra time meeting with us, emailing with us, and even went above and beyond to help us get Sawyer’s DNA in a study at the Mayo Clinic looking for certain arrhythmias that she and some other scientists believe may account for many of the SIDS and SUIDS deaths that still occur far too often. She also happens to be quoted in the article — taking a sane, rational, scientific-supported view of the case, unlike the Mississippi pathologist out to “get” this girl.
I cannot fathom how this girl must feel having had not help and comfort from investigators and a pathologist, but blame, condemnation and being charged with “depraved heart murder.” It must be like a second sledgehammer to her own heart. First, her baby dies. That is heart-crushing on its own. Then, she is accused of killing her child and must fight for her own freedom and future. That guilt and feat must be not just heart-crushing but soul-smashing. For a sixteen-year-old girl from poverty probably few of us can truly comprehend.
I am not excusing her drug use. As a mom, protecting our children is of the utmost importance. I’d never do something that might harm my children. She made that mistake. But I cannot judge her for that, because I do not know her or her true circumstances, or why she did that.
What I do know is that science says she did not kill her child. What I also CAN understand is the depths of despair and guilt a mom faces when her child dies. No woman should go thru that. No girl should face that, let along without care and support of those around her. To blame her for her child’s death here, to prosecute her for murder, to claim to the world she has a “depraved heart,” must be causing her unimaginable pain.
I can barely make it though losing Jake and Sawyer even with being told by everyone that I did everything right, but that some things cannot be fixed or prevented. Without that love, caring and support, and in the face of accusations of killing my own child (no matter how wrong-headed, illogical, unsupported by science and politically driven they might clearly be) I don’t know how I would be able to go on.
No worries (I wish. . .)
March 16, 2014 at 9:28 pm | Posted in Grief, Sawyer, twins, why I write | 10 CommentsTags: baby loss, child loss, dark days, death of a baby, grief, hope, new not so normal, parenthood, perspective, thoughts
If your problem has a solution then…why worry about it? If your problem doesn’t have solution then…why worry about it? – Chinese Proverb
In theory I think this makes sense and I agree with the proverb, but I have a problem: I think that worrying is in my DNA.
Everyone at our house is feeling fine now but last week that was not the case. Evan and one of the twins were sick. It is part of life – everyone gets sick. But, I do not like it one bit! I try very hard to rely on the rational part of my brain but the irrational part of me always seems to take over. I am transported back to the days and nights before Sawyer died. Was there something going on? Was he sick in some way? What did I miss? How could he be seemingly perfect one moment and then dead the next?
I know that the twins are not Sawyer. They are bigger. They are stronger. They can tell me when something is wrong (and usually can specifically detail what is wrong too!). However, I cannot help but second guess myself. I cannot help but worry about what we could have done differently, what might have prevented Sawyer from dying that night, how we might have taken a different action or course and he would still be here with us today. I also know that even if we did miraculously figure out the cause of Sawyer’s death it would not change the fact that he is dead. Resurrection is not our reality. Of course, I cannot change that now, and of all things, I logically know I should not worry about things I cannot change. And yet, those are the things that seem to draw out my worries the most.
Helping with Homework
March 6, 2014 at 10:14 pm | Posted in Grief, Jake, Love, Sawyer | 12 CommentsTags: child loss, death of a baby, life after loss, new not so normal, perspective, siblings
Today’s 1st grade homework assignment for one of the twins was about cultural diversity. The questions asked about backgrounds, customs and families. I was helping her with the assignment. We discussed the questions and her answers. “Where are you from?” Where were you born?” She quickly answered and wrote down, “Atlanta, Georgia.” All was going smoothly until, we got to the question asking, “How many brothers and sisters do you have?”
I have written before about being asked “How many children do you have?” “How many brothers and sisters do you have?” is the bereaved sibling’s version of this question. They are both such common and polite questions but the answers for some of us are so complicated. When people ask me how many children I have these days I usually say something like “I have 2 children at home.” I then try to change the subject. Or, the other day I caught myself saying “excuse me for a moment” and I left the conversation all together. I always remember Jake and Sawyer but I do not always talk about them. But maybe it does not have to be so difficult.
At first she did not immediately answer the question “How many brothers and sisters do you have?” Instead, she looked at me thoughtfully and asked, “Mama, how many brothers do I have?” Before I could say anything she said “I know!!” and she began to write . . .
When she finished writing she went over to her one brother and gave him a hug. And, then I hugged them both.
Unfrozen
February 14, 2014 at 10:54 pm | Posted in Death, Grief, life after loss, normal?, Sawyer, twins | 5 CommentsTags: Atlanta snow, baby loss, child loss, death of a baby, Frozen, ice, new not so normal, perspective
“Everything is Awesome” has replaced “Let it Go” and “Do You Want to Build a Snowman“at our house. The snow and ice are gone. We were really lucky and never lost power. However, we did follow the advice of the robocall from our mayor and stay home. The twins watched I am not sure how many hours of television but I know it was a lot. It does not bother me the way I thought it would (before being a parent when I had all these big ideas about what kind of parent I would be. . .). Originally, I was going to be one of those parents that did not let their kids watch too much TV but Sawyer’s death quickly changed that. It seemed much better for the twins to watch Elmo than to watch their mom crying endlessly. So, on went the TV.
We did make it out of the house yesterday for some sledding.
Today it was almost 60 degrees in Atlanta. Everything melted, we turned off the TV and went outside.
Happy Valentines Day from our house to yours!
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