Thank you!

April 28, 2013 at 8:54 pm | Posted in Grief, Jake, life after loss, Love, Sawyer | 9 Comments
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Yesterday was the March of Dimes – March for Babies.  We warmed up:

March of Dimes 2013 - batman March of Dimes 2013 - warm up

We ran:

March of Dimes - 2013 - runner girl

We rested:

March of Dimes 2013 - resting

And most importantly, we remembered Jake, Sawyer and all the other babies who were not there to march with us:

March of Dimes 2013 - team

Thank you again for supporting our team this year and in past years.    We appreciate all of your amazing kindness and generosity.

The Other Side

April 26, 2013 at 7:44 am | Posted in after death?, Grief, Jake, Love, normal?, Sawyer | 4 Comments
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One day a young Buddhist on his journey home came to the banks of a wide river. Staring hopelessly at the great obstacle in front of him, he pondered for hours on just how to cross such a wide barrier.

Just as he was about to give up his pursuit to continue his journey, he saw a great teacher on the other side of the river. The young Buddhist yells over to the teacher, “Oh wise one, can you tell me how to get to the other side of this river”?

The teacher ponders for a moment looks up and down the river and yells back, “My son, you are on the other side”.

I have been and might always be on a journey to find the cause of Sawyer’s death.  I have wanted to be in a place where all of my children are living.  Not stuck between my two worlds.

I cannot do anything to bring back Jake or Sawyer.  I am here.  On the other side.  However,  maybe just maybe I can help spare other parents the heartbreak of having to live in a world without their child/children.  So, as we have done every year since Jake died, our family will walk in the March of Dimes, March for Babies this Saturday.

Thank you to all those who supported our team this year and in past years.    We appreciate all of your amazing kindness and generosity.   If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.

Names in the sand (part 2) and Spam

April 12, 2013 at 8:36 am | Posted in after death?, Grief, Jake, life after loss, Love, Sawyer | 9 Comments
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So sorry if you recently received spam from me.  I have changed my password and hopefully I should be spam free now.

In case you could not see the link to Jake’s name in the sand here it is:

jake-1

Thank you again Carly Marie!  Here is Sawyer’s too:

sawyer

Sending you all hugs and hope.  I truly appreciate you reading and remembering Jake and Sawyer.

Names in the Sand: Jake and Sawyer on Christian’s Beach

April 8, 2013 at 12:02 am | Posted in Grief, Jake, Love, Sawyer | 5 Comments
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I am forever grateful to Carly Marie.  This past week she wrote Jake and Sawyer’s names in the sand on Christian’s beach in Western Australia.

Carly Marie began writing names in the sand after her son, Christian, died.   And so began Carly Marie’s Project Heal.   She writes “it is a simple act that recognizes a life. It gives something beautiful to a family that may only have a few memories of their child – or even none at all.”

If you or someone you know would like to request a name be written on Christian’s Beach click here. The wait list is closed right now but she will post when it will open.

Thank you again Carly Marie!

“At the end of the day all the children of heaven come together to paint the colours of the sunset”

– Carly Marie Dudley

Tears in Heaven

March 12, 2013 at 9:50 pm | Posted in after death?, Love | 5 Comments
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In my 20’s I went to see an Eric Clapton concert.  He sang “Tears in Heaven.” I knew that he had written the song for his young son, Conor, who had died.  Below are the lyrics in case you have not heard the song:

Would you know my name
If I saw you in heaven?
Would you feel the same
If I saw you in heaven?
I must be strong and carry on
‘Cause I know I don’t belong here in heaven

Would you hold my hand
If I saw you in heaven?
Would you help me stand
If I saw you in heaven?
I’ll find my way through night and day
‘Cause I know I just can’t stay here in heaven

Time can bring you down, time can bend your knees
Time can break your heart, have you begging please, begging please

Beyond the door there’s peace I’m sure
And I know there’ll be no more tears in heaven

Eric Clapton wrote in his autobiography that “Tears in Heaven” did not have a big budget but “If you really want to know what it cost me then go visit my son’s grave in Ripley, England.”  He went on to write that this song was originally not meant for the public.  It was part of his grieving process.  What finally convinced him to release the song was the hope that it would help others.

In my 20’s I had no way of identifying with this enormous loss.  I just enjoyed the concert.  Now when I listen to the song I know all too well the heartbreak and sadness.  If I could have warned my 20-year-old self, what would I say?

A light in the darkness

December 8, 2012 at 9:46 pm | Posted in Grief, Love | 3 Comments
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Eleanor Roosevelt  quote

The Compassionate Friends is an organization which was formed to support families after a child has died.  Its founder, Simon Stephens, states that the mission is “about transforming the pain of grief into the elixir of hope. It takes people out of the isolation society imposes on the bereaved and lets them express their grief naturally. With the shedding of tears, healing comes. And the newly bereaved get to see people who have survived and are learning to live and love again.”

The Compassionate Friends created a worldwide event to unite “family and friends around the globe in lighting candles for one hour to honor and remember children who have died at any age from any cause.”  December 9th at 7 pm will mark the 16th Worldwide Candle Lighting.

Remembering Miracles

November 16, 2012 at 10:02 am | Posted in Grief, life lessons, normal?, silver lining | 3 Comments
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Thank you Samantha Murphy for remembering Jake and Sawyer.  Samantha recently started writing, Remembering Miracles.  She writes to ” keep the memories alive of the children who are now walking as angels in Heaven.”  Her blog is “to honor them, and to share their stories, so that they will live on forever, and never be forgotten. But although they are no longer physically here, their spirits live on, and will never fade as they continue to fight for their cause. So come on. Join the fights. Join the remembrance. What have you got to lose?”

I am honored that she wrote about Sawyer.   Remember Sawyer.

And, she wrote about Jake.  Remember Jake.

Samantha you are so very kind, thoughtful and wise beyond your years.  Thank you again for not letting the memories fade.

Our Giving Tree

September 18, 2012 at 10:18 pm | Posted in after death?, Grief, Love, normal? | 9 Comments
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The winter after Jake died one of my favorite friend’s mother had a tree planted at a local park in his memory.

Sadly, my friend’s mom died the next year.  I had a tree planted next to Jake’s tree in her memory.  The two trees were planted near a small pond.  In 2009, it rained so much that her tree did not make it.  I was in the process of trying to relocate both trees away from the water when Sawyer was born.  And then before I knew it he had died.

So I bought 2 trees.  A tree to replace my friend’s mom’s tree.  And, a tree in memory of Sawyer.  All 3 trees are now away from the pond and at the edge of a playground.  The first summer after Sawyer died it was really hot.  I would go by as often as I could to water the trees.  It made me feel like I could take care of something for Sawyer and Jake.  All 3 trees made it through the summer but Sawyer’s always seems to be struggling.

I took the twins to the playground last week.  I always check on the trees when we are there.  The twins often help me.

As Sawyer’s sister “helped” with the tree she happened to pull off a small branch.  She asked if she could bring it home to take care of it.  I responded, “sure, why not.” When we got home it was bath time.  She asked if she could take the branch into the bathtub and wash it.   Once again I answered, “sure, why not.”

After the bath she wanted to make pajamas and a blanket for the branch.  And, she did.

Very Inspiring Blogger Award

August 22, 2012 at 8:28 pm | Posted in life after loss, why I write | 10 Comments
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Thank you very much to Di from It’s Dilovely for the nomination for this award:

The rules to the Very Inspiring Blogger Award are as follows:

  1. Display the Nomination logo on your blog
  2. Link back to the person who nominated you
  3. State 7 things about yourself
  4. Nominate 15 others and link to them
  5. Notify those bloggers of the nominations & award requirement

See above for #1 & #2.  So here goes #3:

  1. I have 1 million freckles.  I was not always so happy to have them.  When I was young, my mom always told me that they were kisses from the sun.  Now I am ok with the freckles and I am explaining to the twins about their sun kisses (which I still do not know how the sun gets through all the sun block to kiss them!).
  2. I am left-handed.
  3. I got an N (non-satisfactory) in handwriting in 2nd grade.  We wrote in pencil in 2nd grade and I did not figure out how to pick up my arm and not smear the page till the 3rd grade.
  4. In 3rd grade I thought I knew everything.  I clearly remember walking home from school one day thinking to myself, “I know how to divide and multiply.  I can write the alphabet in cursive.  What else could I possibly learn in school?”  Turns out there was a lot left to learn and I did not even need to bother learning cursive…
  5. I worked at an ice cream store in high school.  My friend Susan worked there too.  Susan and I are both tall with brown hair and brown eyes.  I have freckles (see #1) and she doesn’t but people would often confuse us for each other.  The owners of the ice cream store called us both Susan the entire time I worked there.
  6. Evan proposed at an ice cream store and had an ice cream flavor created for me.
  7. My grandfather is turning 100 next week!

Okay – finished with #3.  Here goes #4, nominations:

  1. Mama Bird Diaries – Kelcey is super funny, clever and witty.  She always makes me laugh and reminds me to look for the funny in life.  I am pretty sure that Kelcey’s blog is the first one I ever read.
  2. Four Plus An Angel – Jessica is the mother of 5.  She has a teenage daughter with autism, 2 surviving triplets and a rainbow baby in her arms.  Hadley is always in her heart.  She writes beautifully and has the uncanny ability to write exactly how I am feeling.
  3. Cora’s Story – Kristine writes in memory of her daughter Cora.  Along with writing about her blog, Kristine also wrote the free e-book When a Friend’s Baby Dies.
  4. A Greener Biener – Daphne writes about her and her families’ adventures in treating the planet more gently and eating better.  She has not only given me recipes for kale chips but inspired me to compost.
  5. The Spohrs Are Multiplying – Heather and Mike both blog on this site.  Their first daughter Maddie died suddenly in April of 2009.  The blog includes adventures of their daughter, Annie as well as photography tips, hair do ideas, recipes and life without Maddie.
  6. The Good Cook – Linda shares fantastic recipes and her journey since TBHITW (the best husband in the world) died.
  7. Rock Star Ronan – Ronan died in 2010 from neuroblastoma cancer.  His mother, Maya made a promise that she would continue to fight for Ronan until cancer survival rates start to improve and eventually a cure is found.
  8. Faces of Loss – Kristen Cook created this group blog when her daughter Stevie Joy was born still.  Kristen felt alone in her grief until she started to search the internet.  She created a place for women to share their stories and faces.  Faces of Loss, Faces of Hope brings awareness to the issue of pregnancy/infant loss.
  9. Simon’s Beat – The Sudman’s created Simon’s Fund and the blog in memory of their baby boy, Simon.  The mission of Simon’s Fund is “To save a child’s life . . . and then another, by raising awareness of conditions that lead to sudden cardiac arrest and death.”
  10. Jana’s Thinking PlaceMommy wants Vodka and Band Back Together –  Becky (from Mommy Wants Vodka) and Jana are the creators/editors of the group site Band Back Together.  It is a place where people connect about the good, the bad and the ugly parts of life.
  11. Missing Maxie – Abby writes about her son Max, who died at the age 9 1/2 months and her newborn Mo.
  12. Glow in the Woods – This is a group blog for “For parents of lost babies and potential of all kinds.” The creator an editor, Angie also writes the blog Still Life With Circles and created the project right where I am.
  13. Dr. Joanne – Joanne Cacciatore started the MISS Foundation as a way for families to cope with the tragedy of a child’s death.
  14. The Crazy Life of a Writing Mom – EC Stilson wears many hats.  She is an author, a musician and a mom and writes about all of her adventures.
  15. It’s Dilovely – Di blogs from the perspective as a mother (one child with her, one who died and one on the way).  She also writes from the perspective of a person (BANG, by a normal girl).

One of my hopes for my writing is that someone will read this blog and find something that will make their life some how easier.  Thank you again, Di, for the honor.

Avery’s Bucket List

July 10, 2012 at 5:40 pm | Posted in after death?, life after loss, Love, normal? | 2 Comments
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“Be kind, for everyone you meet is fighting a hard battle.”   Plato

I recently stumbled upon Avery’s Bucket List.   It is a blog by Avery’s parents.  Avery was diagnosed with Spinal Muscular Atrophy.  Her parents decided to create a bucket list for Avery and spread the word about SMA. 

According to FightSMA.org, SMA is a genetic disorder which ” refers to a group of diseases which affect the motor neurons of the spinal cord and brain stem. These critically important cells are responsible for supplying electrical and chemical messages to muscle cells. Without the proper input from the motor neurons, muscle cells can not function properly. The muscle cells will, therefore, become much smaller (atrophy) and will produce symptoms of muscle weakness.”

Throwing the first pitch at a baseball game, have a bad hair day and party like a rockstar are just a few of the items Avery crossed off her bucket list before she died.  Avery’s parents have continued her bucket list.  Every day she is continuing to raise awareness and funding for a cure for SMA.

What is on your bucket list? 

 

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