Avery’s Bucket List

July 10, 2012 at 5:40 pm | Posted in after death?, life after loss, Love, normal? | 2 Comments
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“Be kind, for everyone you meet is fighting a hard battle.”   Plato

I recently stumbled upon Avery’s Bucket List.   It is a blog by Avery’s parents.  Avery was diagnosed with Spinal Muscular Atrophy.  Her parents decided to create a bucket list for Avery and spread the word about SMA. 

According to FightSMA.org, SMA is a genetic disorder which ” refers to a group of diseases which affect the motor neurons of the spinal cord and brain stem. These critically important cells are responsible for supplying electrical and chemical messages to muscle cells. Without the proper input from the motor neurons, muscle cells can not function properly. The muscle cells will, therefore, become much smaller (atrophy) and will produce symptoms of muscle weakness.”

Throwing the first pitch at a baseball game, have a bad hair day and party like a rockstar are just a few of the items Avery crossed off her bucket list before she died.  Avery’s parents have continued her bucket list.  Every day she is continuing to raise awareness and funding for a cure for SMA.

What is on your bucket list? 

 

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2 Comments »

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  1. I want to run a marathon. I signed up for my first one and am scheduled to run it this fall. Lanie, you are truly an inspiring woman. Keep writing.

  2. Nice blog! I like it, check my bucketlist to: http://www.conycatcher.nl it’s in dutch so you got to use google translate 😉


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