Hectic, Hope & Hair

October 20, 2012 at 10:20 pm | Posted in Grief, Love, normal?, twins | 11 Comments
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There always seems to be a lot happening in October.  However, this year seems extra crazy busy.  For example, yesterday the twins had a fun run at school, a baseball game and a kindergarten social.  Busy is good for me.  It keeps me moving forward.  No time (or at least not too much time) to stop and think about the 3rd birthday party we would be planning if Sawyer were still alive.

It turns out that hectic schedules are not so great for the twins.  Getting ready quickly to get to the next event is not either of their strong points.  So yesterday when no one would get dressed for baseball.  After lots of whining and a small melt down or two, I surrendered.  Their team was not going to have to forfeit if the twins were not there.  In fact, they do not even keep score.  Little people do not have to be busy all the time.  Finally, they agreed to get dressed for their school social.  And they had a good time.

Until, they didn’t. . .

Today was supposed to be another busy day.  A school fall festival and a hair cut.  I again did not fight the twins when they refused to get dressed to go to their fall festival.  They played pretend.  I braced myself for the fight I thought I would have with them in order to get them dressed to go out for their hair cuts.

Evan and I were pleasantly surprised when 2 little people got dressed and into the car without a melt down.  The twins were excited for this hair cut.  I had donated my hair last year and unintentionally inspired our daughter to grow her hair.  Here is her hair before:

Here is the hair pull that did not hurt (or put anyone in time out):

And, the after picture:

Home is where the heart is. . .

September 30, 2012 at 11:02 pm | Posted in after death?, Cemetery, Grief, normal? | 7 Comments
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I think that is how the saying goes. . .but what if your heart has been smashed into a thousand pieces?  Where is your home then?   I want my home to include all of my children.  Jake never left the hospital.  Sawyer did live in our home but not for long enough.

Our next door neighbors are selling their house.   There has been a lot of talk about what people want in a house.  A garage.  A basement.  X number of bedrooms and bathrooms.  The top of my list is actually none of those options.  My biggest concern is how far the house is from the cemetery where Jake and Sawyer are buried.  We currently live 15 minutes away.

I was speaking to another mom at baseball practice and she mentioned that her neighborhood is at the edge of the cemetery.  My mind filled with thoughts of what it would be like to be able to walk over to see Jake and Sawyer.   Would I go more often?  Would I ever go anywhere without going to the cemetery first?  It is so hard to drive by it and not stop.

Today we went and picked out 4 mini pumpkins.  One for each of the twins.  One for Jake.  One for Sawyer.  I was thinking that I would bring them to the cemetery as I have done in past years.  The twins had another idea.  They insisted on bringing the pumpkins to Jake and Sawyer’s room.  Jake never had a room in our current house.  He was born and died 2 years before we moved into our house.   Sawyer did have a room.  It was the room next to the twins’ room.  And, that is where they brought the 2 mini pumpkins.

   

Our Giving Tree

September 18, 2012 at 10:18 pm | Posted in after death?, Grief, Love, normal? | 9 Comments
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The winter after Jake died one of my favorite friend’s mother had a tree planted at a local park in his memory.

Sadly, my friend’s mom died the next year.  I had a tree planted next to Jake’s tree in her memory.  The two trees were planted near a small pond.  In 2009, it rained so much that her tree did not make it.  I was in the process of trying to relocate both trees away from the water when Sawyer was born.  And then before I knew it he had died.

So I bought 2 trees.  A tree to replace my friend’s mom’s tree.  And, a tree in memory of Sawyer.  All 3 trees are now away from the pond and at the edge of a playground.  The first summer after Sawyer died it was really hot.  I would go by as often as I could to water the trees.  It made me feel like I could take care of something for Sawyer and Jake.  All 3 trees made it through the summer but Sawyer’s always seems to be struggling.

I took the twins to the playground last week.  I always check on the trees when we are there.  The twins often help me.

As Sawyer’s sister “helped” with the tree she happened to pull off a small branch.  She asked if she could bring it home to take care of it.  I responded, “sure, why not.” When we got home it was bath time.  She asked if she could take the branch into the bathtub and wash it.   Once again I answered, “sure, why not.”

After the bath she wanted to make pajamas and a blanket for the branch.  And, she did.

Boy with the dragon tattoo & his sister

July 26, 2012 at 10:57 pm | Posted in Cemetery, Grief, life lessons, normal? | 9 Comments
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Thank you for all the well wishes.  The cast has not slowed him down one bit.

Here he is with his toy green teeth chasing the girl with the butterfly tattoo around the house.

Ok, the cast did eventually tire him out. . .

Blue casts can really weigh a boy down

Now that he stopped chasing her she was free to accessorize a bit more.

Tattoo, a Crown & a Ring
What could be better?

They are making the most out of their last days as 4 year olds.  She caught me off guard yesterday when she asked, “Will you take us to go see Sawyer and Jake for our birthday?”

“Yes, sure.  Why?’ I responded while trying to figure out what happened that made a visit to the cemetery pop into her toddler brain. 

“I love them.  You don’t take us to see them often enough.”

She is right.  I have not taken them to see Sawyer and Jake since the spring when she carefully arranged stones for her brothers.  Over the past 5 years Evan and I have made the decisions about when and when not to bring the twins to the cemetery.  Now that they have their own opinions I did not imagine we would be discussing trips to the cemetery.

“In the book of life, the answers aren’t in the back.”  – – Charlie Brown

The boy with the dragon tattoo (and the blue cast)

July 22, 2012 at 8:36 pm | Posted in life after loss, normal? | 8 Comments
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Thursday I was at work and saw that I missed a call from the twin’s camp.  One of the twins had fallen.  If I had placed a bet it would have been on her. Her mind has always raced far ahead of her body which often causes her to fall.  However, I was wrong.

Here he is before getting an x-ray.  If you look very closely at his hand you can see that it has a dragon tattoo.  Well at least most of a dragon tattoo.  Putting on those temporary tattoos in not one of my strong points.  They somehow are always missing part of the tattoo – in this case it is a dragon body with not so much of a dragon head.

The x-ray showed a small fracture.  Now the headless dragon is covered up by a blue cast. . .

Wonder what the dragon will look like in few weeks?

Odd but Ok

July 20, 2012 at 2:34 pm | Posted in Cemetery, Grief, life after loss, normal? | 6 Comments
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Ever since Sawyer’s unveiling I have been watching the earth move farther and farther away from Jake and Sawyer’s headstone.  Ground settles.  No big deal.  I kept checking.  I thought about bringing some dirt and trying to fill it in.  Stones started to fall into the crack.  The split grew larger and larger.  I decided to ask about it.  I went to the office at the cemetery.  The groundskeeper explained to me that a combination of ground settling and rain can cause headstones to sink.  Not what I wanted to hear.   He asked if I could show him the headstone and then he could determine the best course of action.  Great.  Action is good.  In fact, fix it right now, please.

We drove out to Jake and Sawyer.  I showed him the crack.  He told me that they would lift up the marble and pack it down with more dirt.  Ok.  I asked, “Can we do that right now? ” He replied that he would put in a work order but it would not get done for a week or 2.  I thought about it.  Ok.  Jake and Sawyer are not going anywhere.  There is no urgency.  The more I thought about it the more I realized that I was actually taking care of something for them.  I will never give them a bath, brush their hair or help them get dressed.   Oddly, I felt good about placing the work order to fix the crack between the earth and the headstone.

I wanted a perfect ending. Now I’ve learned, the hard way, that some poems don’t rhyme,
and some stories don’t have a clear beginning, middle, and end.
Life is about not knowing, having to change,
taking the moment and making the best of it. . .” – Gilda Radner

Sibling Rivalry?

July 16, 2012 at 5:46 pm | Posted in Grief, life lessons, Love, normal? | 14 Comments
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On any given day our twins will be arguing over who is “bigger”.  She is 3-4 inches taller.   He is 1 minute older.  I have explained these facts over and over again.  So technically they are both right.  However, in their 4-year-old (almost 5) minds this is not a satisfactory solution.  I am not sure why but I continue to feel the need to unsuccessfully rationalize with them.  Sibling rivalry at its finest.

The other day I was driving.  The twins were in their seats in the back.   It had not been a particularly good day.  There had been arguing between the 2 of them.  There had been time outs (or as it is known in our house, “the zone”). All seemed to have calmed down as I drove along until the question was asked.  I have always known this question would be asked one day but somehow I was not prepared.

“Do you love Jake and Sawyer more?”

Silence.

“Mama, who do you love the most?”

More silence.

I realized that if I did not answer quickly this line of questioning would continue possibly forever.  In case you did not know, 4 almost 5-year-olds can be very persistent.

“I love you all the same.  I just miss Jake and Sawyer more.  I can not hug them the way I hug you both.”

Avery’s Bucket List

July 10, 2012 at 5:40 pm | Posted in after death?, life after loss, Love, normal? | 2 Comments
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“Be kind, for everyone you meet is fighting a hard battle.”   Plato

I recently stumbled upon Avery’s Bucket List.   It is a blog by Avery’s parents.  Avery was diagnosed with Spinal Muscular Atrophy.  Her parents decided to create a bucket list for Avery and spread the word about SMA. 

According to FightSMA.org, SMA is a genetic disorder which ” refers to a group of diseases which affect the motor neurons of the spinal cord and brain stem. These critically important cells are responsible for supplying electrical and chemical messages to muscle cells. Without the proper input from the motor neurons, muscle cells can not function properly. The muscle cells will, therefore, become much smaller (atrophy) and will produce symptoms of muscle weakness.”

Throwing the first pitch at a baseball game, have a bad hair day and party like a rockstar are just a few of the items Avery crossed off her bucket list before she died.  Avery’s parents have continued her bucket list.  Every day she is continuing to raise awareness and funding for a cure for SMA.

What is on your bucket list? 

 

Once Upon a Playdate

May 10, 2012 at 10:00 pm | Posted in Grief, life after loss, silver lining, twins | 4 Comments
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“Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body.”  Elizabeth Stone

I was not able to prevent Jake or Sawyer’s deaths.  As their mother, I thought I could/should be able to protect them from anything and everything.  I was wrong.   I try my best to keep the twins as safe as possible.  I know that just like with Jake and Sawyer I will not be able to shelter them from anything and everything.  It is a work in progress . . .

There once was a little boy who would talk on and on about his friend, G.  He thought about having a playdate with her but was not quite sure he was ready for his mom to make the call to set it up.   Then one day G’s mom and the little boy’s mom made a plan to play after school.

After he found out about the plan, the little boy would wake up every morning and anxiously ask, “Is today the day that G is coming over to play?”

Finally the big day arrived.  At school, there was a field trip to a park.  The little boy’s mom was one of the drivers.  On the playground, the little boy ran up to his mom and sadly declared, “G changed her mind and she is not coming over to play today.”  The little boy’s twin sister came running up right behind him and just for emphasis yelled “G is NOT coming over ever.”

The little boy’s mother tried to say comforting things like, “maybe G will change her mind” and “if G does not come over today we will find another day for a playdate.”  The little boy folded his arms over his chest and sadly said, “Mama, this is the worstest day ever.”

The field trip ended and all the children went back to school.   The little boy asked G again if she would come over for the playdate.  She responded that should would never ever come over.

The little boy’s mom tried unsuccessfully to think of an extra special treat for the afternoon.   Pick up time arrived and G hopped into her car.  The little boy unhappily watched her as she climbed into her minivan.   The little boy’s mom as a last-ditch effort went over to G’s car before it drove out of the carpool line.  G smiled at the little boy’s mom.   G climbed out of her car seat and said, “I think I would like to go on that playdate now.”

And they played happily ever after.

Sawyer’s Aunt

April 10, 2012 at 10:26 pm | Posted in Death, Grief | 6 Comments
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On my last post, The Good Cook commented that “It truly does take a village to mourn one lost love.”. We are not alone in our grief. Other family members mourn. Friends mourn. Sawyer and Jake are loved and remembered by many.

Not long after he died, one of Sawyer’s amazing aunts wrote the post below:

This is incredibly sad for me to write.  I hope writing about it helps.

My brother’s baby stopped breathing and died in his sleep, almost two weeks ago.

We were all in terrible shock. Sawyer was a sweet, beautiful little thing, only a month-and-a-half old. We’d just Skyped with my brother and sister-in-law and watched him sleeping contently in his mother’s arms. I’d had the chance to hold him myself over Thanksgiving. Impossible.

And not fair. Especially not for my brother and his wife, who’d already lost their first baby due to medical complications. They then went on to have twins–a boy and a girl–now two-and-a-half–both adorable. But now this.  I can’t imagine having to go through the death of a child once, let alone twice.

I flew as quickly as I could to their place, hoping to support them in any way possible. When I arrived, family was already there helping. Others would arrive soon. There was also a great circle of friends who stopped by to lend a hand and offer condolences.

A neighbor from down the street, came to drop off food and check in on my sister-in-law and brother. She told me she had lost her own daughter to SIDS. She showed me a pendant she wears around her neck always reminding her of her daughter. I was told shocking stories about others who too, had lost children.

I asked her how she was able to handle the grief. She explained she already had other children at the time, and she had to go on living for them. I thought of my brother’s twins and was hopeful that my brother and sister-in-law would be able to do the same.

My niece had been asking where her baby brother had gone. My nephew would run up to his mother, stroke her arm, hug her and say, “I’m so proud of you, Mommy.” She would thank him and try to hold back the tears. Both the twins knew things were out of sorts, and that their little brother wouldn’t be living with them anymore, but at this age, they didn’t fully understand what had happened. A small blessing for now.

We all asked WHY? Why him? Why them? Why now? I thought of what amazing parents they both are. In addition to making sure their twins are well-fed, happy and educated (as educated as 2-year-olds can be) they keep their kids so well protected that I’ve had to ask them to help me get into the bathroom, or turn on the stove because of all the child-proofing they’ve done. It’s clear there’s no lack of love or protection for the children in their house. But no matter how many times we asked why, there were no clear answers, and there likely wouldn’t be for quite a while.

When we finally attended the funeral, on a chilly Atlanta morning, the rabbi conducting the service brought up a question I’m fairly certain none of us had asked.

“As adults we ask, ‘Why?’…What we need to ask is, ‘When?’ “

Ask when? When what?

“Ask WHEN Sawyer is…WHEN is Sawyer,” he said.

I didn’t understand what he meant, but he went on to explain.

Sawyer is when…we’re spending time with family. He’s when…we’re out for a walk on the beach. He’s when…we’re at a ballgame. A bit of him is with us when…we are. Simple.

I understood what he meant.  It brought a small measure of peace.

The sentiment will stay with me always. So will a bit of Sawyer. And I’ll never forget…when.

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