Thank you Jake

August 12, 2012 at 9:52 pm | Posted in after death?, Grief, twins, why I write | 12 Comments
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“If there ever comes a day when we can’t be together
keep me in your heart, I’ll stay there forever.”

Winnie the Pooh,  A. A. Milne

Dear Jake,
It was 7 years ago today when I was admitted to the hospital.  The doctors said there was no other option.  You were not ready for this world.  I suppose the world was not ready for you.  Your dad and I were terrified when the doctor told us my contractions were 3 minutes apart.  I could not believe at 26 weeks it could possibly be real.  I did truly believe you would live.  You held on for 2 more days before we actually got to meet you.

I still cannot understand how it is 7 years later.  I do not need a calendar to tell me the time of year.   My tears are much closer to the surface.  The lump in my throat is back.  My irritation and impatience have also risen just below my skin.  My nerves are so raw.  I wish to lock myself away so that I do not snap.  I already have apologized to your daddy.   If only just for a few moments I could be with you and your littlest brother.  I know that it is not possible.  However, this time of year I frequently seem to find myself back on the island of denial.

Your Yahrzeit was this weekend.   (The Yahrzeit falls annually on the Hebrew date of the deceased relative’s death according to the Jewish calendar as opposed to the secular calendar.)  Your dad and I lit a Yahrzeit candle for you.

You have 2 new cousins!  Welcome to the world Eli and Owen!!  I wish you could meet them.  You probably already know this but your sister asked if she could have one of the babies.  She desperately wants a baby brother.  She talks about you and Sawyer almost every day.  This morning she brought me two blankets she found for each of you.  She is so sweet and thoughtful.  I am trying my best to keep it together.

Thank you for chosing us as your parents.  Thank you for the time you were able to spend with us.  Thank you for sending us your baby brother and sister.  They are shielding us from all the rain.

I miss you so much.  I love you to the moon and back baby boy.  I will look for you in my dreams.

Birthday Wishes

July 30, 2012 at 9:50 pm | Posted in Grief, life lessons, Love, silver lining, twins, why I write | 9 Comments
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Happy Birthday!

As I wrote last year on your 4th birthday I am so very thankful for you two.   I am sorry that I did not take you to see your brothers on your birthday.  I just could not this weekend.  I promise that I will very soon.  Then I will take you out for ice cream (thank you Daphne for the brilliant suggestion).

I wish that you had a chance to know your brothers.  I wish that I did not have to explain death to you at such an early age.  I wish that some of your first sentences did not include “don’t cry mama.”

I wish I could find a picture of you from your 3rd birthday.  I will confess to you now that we almost did not have a party for you that year.  After Sawyer died the thought of planning a party was so daunting.  We realized that you no matter how sad we were you 2 deserve happiness (and a birthday party).  We did plan it and if I remember correctly we sent out the invitation the week before.  You both had a great time.  I just wish that 2010 was not such a blur of grief.

I wish that I could have protected you from my dark days.  I wish that you will always know how much sunshine you both bring to me.

I wish that you will continue to look for rainbows where ever you both go and that I can go with you.  And hug you both tightly.  Love you both to the moon and back.

Thank you!

April 28, 2012 at 8:06 pm | Posted in Grief, Love, silver lining, why I write | 4 Comments
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2 words today:

THANK YOU!!

I Heart the March of Dimes

April 18, 2012 at 6:18 pm | Posted in Grief, life lessons, Love, parents | 2 Comments
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As I mentioned in my last post, our family supports the March of Dimes.  We have walked every year since Jake died.  Our team was named Jake’s Journey.  After Sawyer died we renamed it to Jake’s Journey & Sawyer’s Strides.  This year we are excited because the March of Dimes contacted us to let us know our donations are being matched by the hospital where all 4 of our children were born. 

The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality.  I believe that the March of Dimes is making a difference and saving babies.  

I cannot do anything to bring back Jake or Sawyer but maybe just maybe I can help spare other parents the heartbreak of having to live in world without their child/children. 

Thank you to all those who supported our team this year and in past years.  Thank you also to the hospital for matching funds.  We appreciate all of your kindness and generosity.   If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.

Sawyer’s Aunt

April 10, 2012 at 10:26 pm | Posted in Death, Grief | 6 Comments
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On my last post, The Good Cook commented that “It truly does take a village to mourn one lost love.”. We are not alone in our grief. Other family members mourn. Friends mourn. Sawyer and Jake are loved and remembered by many.

Not long after he died, one of Sawyer’s amazing aunts wrote the post below:

This is incredibly sad for me to write.  I hope writing about it helps.

My brother’s baby stopped breathing and died in his sleep, almost two weeks ago.

We were all in terrible shock. Sawyer was a sweet, beautiful little thing, only a month-and-a-half old. We’d just Skyped with my brother and sister-in-law and watched him sleeping contently in his mother’s arms. I’d had the chance to hold him myself over Thanksgiving. Impossible.

And not fair. Especially not for my brother and his wife, who’d already lost their first baby due to medical complications. They then went on to have twins–a boy and a girl–now two-and-a-half–both adorable. But now this.  I can’t imagine having to go through the death of a child once, let alone twice.

I flew as quickly as I could to their place, hoping to support them in any way possible. When I arrived, family was already there helping. Others would arrive soon. There was also a great circle of friends who stopped by to lend a hand and offer condolences.

A neighbor from down the street, came to drop off food and check in on my sister-in-law and brother. She told me she had lost her own daughter to SIDS. She showed me a pendant she wears around her neck always reminding her of her daughter. I was told shocking stories about others who too, had lost children.

I asked her how she was able to handle the grief. She explained she already had other children at the time, and she had to go on living for them. I thought of my brother’s twins and was hopeful that my brother and sister-in-law would be able to do the same.

My niece had been asking where her baby brother had gone. My nephew would run up to his mother, stroke her arm, hug her and say, “I’m so proud of you, Mommy.” She would thank him and try to hold back the tears. Both the twins knew things were out of sorts, and that their little brother wouldn’t be living with them anymore, but at this age, they didn’t fully understand what had happened. A small blessing for now.

We all asked WHY? Why him? Why them? Why now? I thought of what amazing parents they both are. In addition to making sure their twins are well-fed, happy and educated (as educated as 2-year-olds can be) they keep their kids so well protected that I’ve had to ask them to help me get into the bathroom, or turn on the stove because of all the child-proofing they’ve done. It’s clear there’s no lack of love or protection for the children in their house. But no matter how many times we asked why, there were no clear answers, and there likely wouldn’t be for quite a while.

When we finally attended the funeral, on a chilly Atlanta morning, the rabbi conducting the service brought up a question I’m fairly certain none of us had asked.

“As adults we ask, ‘Why?’…What we need to ask is, ‘When?’ “

Ask when? When what?

“Ask WHEN Sawyer is…WHEN is Sawyer,” he said.

I didn’t understand what he meant, but he went on to explain.

Sawyer is when…we’re spending time with family. He’s when…we’re out for a walk on the beach. He’s when…we’re at a ballgame. A bit of him is with us when…we are. Simple.

I understood what he meant.  It brought a small measure of peace.

The sentiment will stay with me always. So will a bit of Sawyer. And I’ll never forget…when.

Memorials, Mickey & Moments

January 8, 2012 at 10:36 pm | Posted in Grief, life after loss, Love, silver lining, twins | 12 Comments
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This week was Sawyer’s yahrzeit, the anniversary of the Hebrew date he died.  Evan and I lit a candle and said Kaddish (the prayer recited to honor the memory of those who have died).  My mom recently emailed me an article titled “Memory is a Blessing” which discusses the prayer. 

It is the responsibility of the Kaddish – the mourner – to keep alive the memory of the person who has died, to not forget and not to let others forget. . . .

Recite the prayer for him – yes – but also to remember – even if it hurts, even if it brings tears. To “be the Kaddish” is to be willing to talk about the person who has died, to tell stories and share memories even when it makes others uncomfortable.

During Sawyer’s yahrzeit, my parents so happened to take our family away on a vacation.  I am so thankful to my parents for such a wonderful trip. 

However, as a bereaved parent it feels wrong at times to have fun while also trying to grieve.  I know that I am alive and Sawyer is not.  It is complicated.  I want to be happy and live with the twins while honoring Sawyer and Jake. 

It is bittersweet. 

Here is some of the sweetness:

 

And here is some more:

And although Sawyer and Jake were not physically there they have left us their own sweetness.

By love they are remembered, and in memory they live. . .
Even when they are gone, the departed are with us. . .
We remember them now; they live in our hearts. . .
                                                                                          Rabbi Hannah Orden

 

Angels

December 28, 2011 at 11:44 am | Posted in Grief, Love, silver lining, twins | 11 Comments
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No words today – just pictures from the past year.

Muddy Snow Angel

Snow Angel in Action

Rug Angel

Bath Angels

Grass Angel

Another Grass Angel

Rock Garden Angel

Rock Garden Angel #2

Leaf Angel

Airport Floor Angel (yuck!)

Stuffed Animal Angel

Stuffed Animal Angel #2

Missing Angel

Okay – the last picture is not from 2011.  We wish we had pictures from this past year of Jake and Sawyer.

Thankful

November 24, 2011 at 10:58 pm | Posted in Grief, mourning, parents, twins | 12 Comments
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I looked back at my post from last Thanksgiving.  In some ways I have come a long way.  In other ways not so much.  I wanted to cancel the entire holiday season last year.  It was the holiday season where Sawyer should have been turning 1.  I could not understand how everyone was just going along being happy and celebrating.  I felt the same way the holiday season after Jake died.  I avoided any and all holiday parties.  I could not pretend to go through the motions.   I desperately wanted to scream, cry and run to some place where Jake and Sawyer were with me.

No matter what I do the world keeps on going without Jake and without Sawyer.  This year Evan and I tried to return to our holiday plan from years past.  The first years of our marriage we tried to see all 3 sets of our parents.   We even forced ourselves to go the year that Jake died.  The next year we had to stay in town because we had gotten onto the infertility rollercoaster.  

We did somehow manage to get ourselves back on the visiting all 3 sets of family schedule once the twins were born.  I am still not quite sure how we pulled that off with 3 month old twins.  In 2009 Sawyer was born the third week of November.  We came home from the hospital the week of Thanksgiving.  Needless to say we stayed home that year.  

I have a brilliant friend who came up with the fantastic plan to celebrate Thanksgiving early with her family.  No travel, no stress.  We have not found that happy Thanksgiving place yet.   Maybe we never will.  We will keep trying.  I will continue to be so very thankful for our families and friends and to hold on tight to what I can.  Happy Thanksgiving to you all!

Yesterday

November 18, 2011 at 9:58 pm | Posted in Anniversaries, Grief, NICU, silver lining | 3 Comments
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Sometimes I get so caught up in my own story that I miss the rest of the bigger story of the world out there.  Yesterday was Sawyer’s birthday.  It was also World Prematurity Day.  Thank you to Evan for telling me in the first place and to Jessica for reminding me.

November is also Prematurity Awareness Month.  Did you know that in the U.S., 1 in 8 babies is born prematurely and worldwide 13 million babies are born too soon each year (statistics from the March of Dimes)?  3 of our 4 children were born premature.  So many of my friends’ children spent time in the NICU.  If you would like to please comment with who you know who was/is in the NICU.

Another thing happening in the world yesterday was that EC Stilson released her book “The  Golden Sky.”  She wrote about the life and death of her son Zeke.  His birthday would have been today.  In honor of Zeke and her book EC had a blogfest.  She graciously asked me to participate.  I confess that I tried but could not figure out how to post the button.

Today I still have my story but I am also joining the rest of the bigger world’s story.  Hopefully, one day I too will find that  “after every storm, there is a golden sky” (EC Stilson).

EC Writes

October

October 2, 2011 at 11:58 pm | Posted in Grief | 10 Comments
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Along with being Breast Cancer Awareness month, October is also Pregnancy and Infant Loss Month.  Did you know that 2,000 women/men lose their babies in 1 day (and that is in the United States alone)?

Myths vs. the truth about pregnancy/infant loss:

Myth: Losing a baby is very uncommon; it won’t happen to me or someone I know.

Truth:

  • 25-50% of all pregnancies end in miscarriage (pregnancy.org).
  • Stillbirths (the death of a baby after 20 weeks gestation) occur in one in every 160 pregnancies–about 60 stillborn babies every single day (March of Dimes).
  • Each year, in the US alone, about 20,000 babies die in their first month of life, many after being born prematurely (March of Dimes).
  • SIDS is the leading cause of death among infants ages 1 month to 1 year.

 

Myth: Pregnancy/infant loss is something that happens to older moms, overweight moms, or moms with health issues.

Truth: “Baby loss” does not discriminate. Often, it’s young, perfectly healthy women who experience the loss of a baby. The Faces of Loss are of ALL kinds of women–young, old, black, white, thin, obese–pregnancy/infant loss can strike anyone.

 

Myth: Miscarriages and Stillbirths are usually caused by a lack of prenatal care or something else the mother did during her pregnancy.

Truth:

  • Almost 100% of miscarriages could not have been prevented, with the majority being caused by chromosomal abnormalities.
  • 25% of Stillbirths are caused by placental problems; 15% are caused by an infection; 2-4% are caused by umbilical cord problems, and 50% have no known cause of death whatsoever. While there are risk factors to be aware of (smoking, for instance), the overwhelming majority of stillbirths are completely out of the mother’s control.

 

Myth: A woman who has just lost a baby wants to forget it ever happened and move on with her life.

Truth: While this may be true for some, many are dying to talk about the child they lost, especially if it was a late-term pregnancy loss or infant loss. The chance to talk freely about their baby(ies), without feeling like they are making everyone uncomfortable, is something many, many women who have lost a baby wish for.

The information above is from I am the FaceFaces of Loss, Faces of Hope tries to put real stories and faces with all of these statistics.

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