Right Where I am: 6 years, 9 months, 2 weeks and 2 years, 5 months and 2 weeks
June 10, 2012 at 5:52 pm | Posted in Grief, life lessons, Love, normal? | 11 CommentsTags: child loss, dark days, death of a baby, grief, Jake, post traumatic stress disorder, Sawyer, twins
I am joining still life with circles for right where I am. Angie started this project last year. She asked other bereaved parents to write about where they were in their grief.
Am I 6 years, 9 months, 2 weeks from the last time I held Jake? Or, 2 years, 5 months and 2 weeks from the last time I saw Sawyer alive? (or I suppose it could even be the 2 or so months since the miscarriage). To be honest, I do not know where I am except right here.
I no longer cry every day. However, there is not a day which goes by that I do not think of them. Now I am answering bittersweet questions and telling their brother and sister about them.
My arms no longer constantly ache to hold them. However, the moments when they do ache are still so sharp and real. I hug their siblings just a bit tighter.
I can now talk about Jake and Sawyer without the lump in my throat threatening to choke me. However, the sadness and lost dreams are still there. Now they are part of me.
Just like the early days of this journey of grief I take it all one day at a time. I breathe. I put one foot in front of the other. I stay really busy. I try to be the best mother, wife, daughter, sister, friend and person that I can be. I do not always succeed. Sometimes I cry and the days are dark. I try to hope. I look for rainbows. I love and miss my 2 little boys. I live.
Wish for Wendy, Wings & WTMI
June 4, 2012 at 9:46 pm | Posted in Grief, life after loss, silver lining, twins | 8 CommentsTags: child loss, cystic fibrosis, death of a baby, family, Jake, Sawyer, twins, Wish for Wendy
Way Too Much Information:
We were at the pool the other day and I put our things down on a chair beside a woman with her newborn baby.
Our daughter quickly turned to the woman and with a big smile said, “I really like your baby.”
“Thank you! How old are you?” responded the very new mother.
“4 and 3/4 . So is my brother – we are twins. We had 2 babies too but they are dead.” She shrugged her shoulders and ran off towards the pool.
Silence. How many times can an already broken heart be broken again? I shrugged my shoulders and ran after her.
Wings:
Andy Lipman never met his older sister Wendy. She died when she was 16 days old from complications from cystic fibrosis. Andy was born 3 years later, also with cystic fibrosis.
I have written about Cystic fibrosis (CF) in previous posts. Charlie, one of my brother’s closest friends, lived over 26 years longer than doctors had originally predicted. CF is an inherited, chronic disease that affects the lungs and digestive system of about 30,000 individuals in the United States, and 70,000 people worldwide. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical care have enhanced and extended the lives of children and adults with CF. While Andy’s prognosis in 1973 projected that he would not live to become a teen, Andy is an active adult and sports enthusiast with two young children.
In August of 2006 Andy and his family founded the Wish for Wendy Foundation, Inc., a nonprofit organization dedicated to increasing awareness about living with cystic fibrosis and supporting efforts to find a cure.
As I previously mentioned, I have decided that I am going to add a feature to this blog which focuses on families who are making the world a better place by honoring the memory and lives of their children. If you know of or come across any organizations that would be worth mentioning please let me know.
Frog & Toad
May 20, 2012 at 11:50 pm | Posted in Grief, twins | 7 CommentsTags: child loss, dark days, death of a baby, Jake, post traumatic stress disorder, Sawyer, twins, unexplainable
“What is the matter, Toad? You are looking sad.”
“Yes,” said Toad. “This is my sad time of day.”
Frog and Toad are Friends by Arnold Lobel
After Sawyer died I cried a lot in front of the twins. They were 2 1/2 year olds at the time and did not ask too many questions about my tears. Now, over 2 years later, the twins ask questions about everything and I rarely cry in front of them. The sadness is still there but I have better control over it. Every once in a while it gets the best of me and the tears leak out against my will. Today was one of those days. I know it is not just today – it has been creeping up on me over the last few months.
I know that there will be other days when the tears take over. It is ok to be sad but it is also ok to be happy. If not for me than for them.
Purple & Sparkly
May 12, 2012 at 10:14 am | Posted in Anniversaries, Grief, Love, silver lining | 10 CommentsTags: 5th birthday, cancer, child loss, death, favorite friends, hope, Jake, Maddie Sphor, Rockstar Ronan, Sad, Sawyer, unexplainable
Some time after Jake died one of my favorite friends and college roommate suggested that I read the blog The Sphors Are Multiplying. Years later and some time after Sawyer died another of my favorite friends suggested that I read another blog, Rockstar Ronan. At that time I could barely deal with our own sad story let alone read about the deaths of Maddie Sphor and Rockstar Ronan. I am not sure when but some time along the way I realized that I needed to see/read how other parents survive the deaths of their children. It helps me to read how they are continuing their lives while always remembering and honoring their children. I wish no parent had to live in a world without their child/children. This is not the reality and unfortunately the Club continues to add members.
Today would have been Ronan’s 5th birthday. I hate that he is not here to celebrate.
Once Upon a Playdate
May 10, 2012 at 10:00 pm | Posted in Grief, life after loss, silver lining, twins | 4 CommentsTags: child loss, home, hope, Jake, motherhood, parenthood, perspective, playdate, Sawyer, twins
“Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body.” Elizabeth Stone
I was not able to prevent Jake or Sawyer’s deaths. As their mother, I thought I could/should be able to protect them from anything and everything. I was wrong. I try my best to keep the twins as safe as possible. I know that just like with Jake and Sawyer I will not be able to shelter them from anything and everything. It is a work in progress . . .
There once was a little boy who would talk on and on about his friend, G. He thought about having a playdate with her but was not quite sure he was ready for his mom to make the call to set it up. Then one day G’s mom and the little boy’s mom made a plan to play after school.
After he found out about the plan, the little boy would wake up every morning and anxiously ask, “Is today the day that G is coming over to play?”
Finally the big day arrived. At school, there was a field trip to a park. The little boy’s mom was one of the drivers. On the playground, the little boy ran up to his mom and sadly declared, “G changed her mind and she is not coming over to play today.” The little boy’s twin sister came running up right behind him and just for emphasis yelled “G is NOT coming over ever.”
The little boy’s mother tried to say comforting things like, “maybe G will change her mind” and “if G does not come over today we will find another day for a playdate.” The little boy folded his arms over his chest and sadly said, “Mama, this is the worstest day ever.”
The field trip ended and all the children went back to school. The little boy asked G again if she would come over for the playdate. She responded that should would never ever come over.
The little boy’s mom tried unsuccessfully to think of an extra special treat for the afternoon. Pick up time arrived and G hopped into her car. The little boy unhappily watched her as she climbed into her minivan. The little boy’s mom as a last-ditch effort went over to G’s car before it drove out of the carpool line. G smiled at the little boy’s mom. G climbed out of her car seat and said, “I think I would like to go on that playdate now.”
And they played happily ever after.
Help
May 2, 2012 at 10:18 pm | Posted in after death?, Grief, life after loss, life lessons, normal?, twins | 23 CommentsTags: child loss, death of a baby, hope, Jake, new not so normal, quotes, Sawyer, siblings
Aibileen, from The Help, whispers this quote in Mae Mobley’s ear every day so she will understand that she is special. Are there words which I can whisper into my toddlers’ ears that will help them understand about their brothers?
The other day I was driving the twins and listening to their conversation. They were discussing one of their friend’s new baby sister. The conversation went something like this:
“We have babies too.”
“Our babies are not growing.”
“They are flowers.”
“Flowers grow. So, our babies are growing.”
“Mama, what kind of flowers are Jake and Sawyer?”
A long silence from me. I finally come up with, “want to go to the new playground?”
I Heart the March of Dimes
April 18, 2012 at 6:18 pm | Posted in Grief, life lessons, Love, parents | 2 CommentsTags: child loss, gratitude, hope, Jake, March of Dimes, Sawyer, tragedy, unexplainable
As I mentioned in my last post, our family supports the March of Dimes. We have walked every year since Jake died. Our team was named Jake’s Journey. After Sawyer died we renamed it to Jake’s Journey & Sawyer’s Strides. This year we are excited because the March of Dimes contacted us to let us know our donations are being matched by the hospital where all 4 of our children were born.
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality. I believe that the March of Dimes is making a difference and saving babies.
I cannot do anything to bring back Jake or Sawyer but maybe just maybe I can help spare other parents the heartbreak of having to live in world without their child/children.
Thank you to all those who supported our team this year and in past years. Thank you also to the hospital for matching funds. We appreciate all of your kindness and generosity. If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.
What I Need
April 14, 2012 at 11:12 pm | Posted in Death, life after loss, mourning, normal? | 19 CommentsTags: autism, child loss, Jake, March of Dimes, new not so normal, perspective, premature birth, Sawyer
I am not always able to adequately articulate my feelings. Jake and Sawyer’s deaths have often left me feeling alone and misunderstood. Sometimes I read something and it is exactly how I think and feel. Reading Four Plus An Angel by Jessica, often leaves me with that reaction. Jessica, writes beautifully about her life without her daughter Hadley.
What I Need by Jessica
I need to say her name without bringing everyone to tears.
I need her life to be included in the count of children, grandchildren, nieces and nephews.
I need kindness on birthdays and understanding on holidays.
I need to stay in bed and a reason to get out of it.
I need to talk endlessly and to let the phone ring.
I need an extra hug and respect for my space.
I need someone to ask how I’m doing and want to know the real answer.
I need careful announcements of pregnancies, baby showers and births, mine did not turn out as I hoped.
I need a “handle with care” sticker for my heart, my emotions have been fragile since the day I said goodbye.
I need patience and reminders for my mind, part of it will always be somewhere else.
I need forgiveness for not being the friend, sister, daughter and wife I used to be.
But more than anything I need you…
your support, your friendship, your understanding…
a lifetime is an impossibly long time to wait to hold my child again.
Two other impressive things going on at Four Plus An Angel:
- Jessica is also an advocate for autism. She has a very cool project going on during April, Autism Awareness month. Jessica is asking for a picture of you or someone you know or love who has autism, holding up a message they would like the world to know about autism. For more details on the project and where to send pictures click here.
- Jessica, like our family, supports the March of Dimes. She is very close to her goal and I am hoping that she makes it. Click on the button below to donate to Jessica’s team.
TMI vs. not TMI?
February 28, 2012 at 10:46 pm | Posted in life lessons, normal?, twins, venting | 5 CommentsTags: child loss, infertility, Jake, life after loss, parenthood, Sawyer, twins, unexplainable
I do talk about Jake and Sawyer – and if you are reading this then you know I do write about them quite often. They are never far from my thoughts. However, I will at times not mention my 2 children who are not with me. Sometimes it is because I do not know the other person and will never see them again. Other times it is because I do not want to see the look of pity which often accompanies Jake and Sawyer’s stories.
Then there are times when I give too much information on purpose. I distinctly remember a wedding shortly after Jake died. Evan and I were talking to 2 other couples. One of the couples, who are our very good friends, like us did not have any children at home at the time. The 3rd couple kept mentioning their kids and the fact that we did not have any. They asked things like, “How long have you been married?” We each answered. Couple #3 followed up with, “So, aren’t you thinking about having kids?” We each politely tried to dodge the questions and change the subject. Couple #3 did not take the hints. I finally had enough. I wanted to stop this line of questioning. So, I piped up,”We buried our son a few months ago.” I thought that the conversation would come to a screeching halt. I was wrong. Couple #3 does not miss a beat, “When will you start trying again?”
The past few days I have been once again tempted to share too much information in order to stop a conversation. We have been receiving many emails about teacher appreciation week at the twins’ preschool. Each class needs volunteers for a specific time so the teachers can eat a child free (aka peaceful) lunch. The exact time the volunteers are needed is when Evan and I have a meeting scheduled with a rabbi to discuss Sawyer’s unveiling.
At first I did not reply to the emails. The emails kept coming. I drafted the following:
“I am sorry I cannot volunteer for the teacher appreciation lunch because we need to meet with a rabbi so that we can plan our youngest son’s unveiling. We have had trouble getting the correct headstone. Now it is here and the rabbi who presided over Sawyer’s funeral took a visiting rabbi assignment up north. He won’t be back till April. A very good friend put us in touch with her rabbi. We are meeting with him at the exact same time you need volunteers.”
I deleted my rambling email and opted for not TMI:
“Sorry again but I just cannot volunteer at that time this week. If something changes I will let you know asap. Hope that you have a good night. Thank you.”
Sometimes less is more.
Out of Control
February 22, 2012 at 9:30 pm | Posted in Grief, life lessons, twins, venting | 6 CommentsTags: Buddha, infertility, Jake, life after loss, mario andretti, Sawyer, unexplainable
“If everything seems under control, you’re just not going fast enough.”
– – Mario Andretti
Thank you all so much for the well wishes for Evan. He was cleared to go back to work. He will have quite a few doctor’s appointments in his future but we are hopeful that his health will be back under control soon. I have once again been reminded of an important life lesson. I DO NOT HAVE ANY CONTROL.
I am not sure what happens but sometimes I forget. It is like I have amnesia and I actually believe I have a bit of control. Jake, Sawyer, infertility . . . just to list a few glaring instances where I am not in charge. I will continue to remind myself of the tasks which I can control. Laundry, the dishes, grocery shopping. . .a few which immediately come to mind. As for the rest, I will have to try my best and go with the flow.
I recently read another Buddha story about an old man who accidentally fell into a river leading to a dangerous waterfall. Onlookers feared for his life. Miraculously, he came out alive and unharmed at the bottom of the falls. People asked him how he managed to survive. “I bent myself into the water, not the water to me. Without thinking, I allowed myself to be shaped by it. Plunging into the swirl, I came out with the swirl. This is how I survived.”
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