R Baby Project, Recitals & Reasons

May 30, 2012 at 11:36 pm | Posted in Grief, life after loss, Love, normal? | 8 Comments
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Reasons:

They Say There is a Reason
They say there is a reason, They say that time will heal,
But neither time nor reason, Will change the way I feel,
For no one knows the heartache, That lies behind our smiles,
No one knows how many times, We have broken down and cried,
We want to tell you something, So there won’t be any doubt,
You’re so wonderful to think of, But so hard to be without.
~Author Unknown

Recitals:

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R Baby Project:

One of my sister-in-laws recently emailed me a link about a family who had a baby girl named Rebecca.  Rebecca was born 4 weeks premature and spent 5 days in the NICU.  The doctors determined that Rebecca was healthy and she went home.  The next day Rebecca was severely congested and had difficulty breathing.  Her parents took her to the pediatrician and the ER.  Doctors misdiagnosed her symptoms as a common cold and she was repeatedly sent home.  Tragically, Rebecca died at 8 days old.  Rebecca contracted an enteroviral infection which can be life threatening in babies.

Rebecca’s parents created the R Baby Foundation.  This charity is dedicated to helping newborn babies, primarily those less than a month old suffering from viral infections and other infectious diseases, receive the highest quality of care and service through supporting education, research, training and life-saving equipment.

Along with recitals and reasons I have decided that I am going to add a feature to this blog which focuses on families who are making the world a better place by honoring the memory and lives of their children.  If you know of or come across any organizations that would be worth mentioning please let me know.

Miscarriage

May 28, 2012 at 10:28 pm | Posted in Grief, life after loss, normal?, pregnancy | 18 Comments
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The doctor who told me that I was most likely having a miscarriage put me on bed rest for a few days.    Bed rest for me equals time where my thoughts can take over any rational part of my brain and run wild.  Bed rest means that I can not resort to my usual defense of keeping so busy that I do not have time to think.

I cried on the couch as I watched the twins play.   I was so lucky that my mom was able to come to town.  I told her that she did not need to come.  I knew by the time I spoke to her that no amount of bed rest was going to help.  She said she wanted to come anyway.  I did not argue.

I thought writing about it in my last post would somehow help.  I reread my post and it turns out that I did not actually write what happened.   So here it is, I had a miscarriage.

I will be fine.  I will continue to get up and live just as I have every day, week, month and now years since Jake and Sawyer have died.

Planning & Hoping

May 22, 2012 at 10:40 pm | Posted in Grief, life lessons | 20 Comments
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Many doctors told me that I could not get pregnant again after Jake had died.  We tried clomid, letrozole, IUIs and eventually IVFs.  We went to several infertility specialists in town and then flew to New York to get yet another opinion.  The doctor we ultimately had the twins with was so sure that I would not get pregnant that Evan and I nicknamed him Dr. Doom and Gloom.

We shocked ourselves and Dr. Doom when I had the twins.  We went back to Dr. Doom when we were trying again.  He again told us that we had little to no chance.  Again, we surprised everyone when we had Sawyer.

Evan and I did not think it was possible to get pregnant on our own until a few months ago.   I was late and thought to myself there is not a chance in the world I am pregnant without the assistance of lots of drugs and doctors.  However, there it was . . . the 2 pink lines on the pregnancy test.

I showed Evan the pink lines.  We both just stared at each other.  We were happy.  Very, very happy.  In all honesty, I did not believe that it could really be true.  After Jake and then Sawyer died there is always a part of me which expects the worst but I try to hope for the best.  There are so many stories of people who get pregnant after years of infertility.  I thought maybe just maybe this could be happening.

Until I started to bleed.  Evan and I went to the OB.  He confirmed that yes I was pregnant but I was most likely having a miscarriage.  He asked if this baby was planned.  I wanted to shout that we had not planned for this baby but then again we had not planned on burying 2 of our sons.  Instead, Evan came up with the perfect answer, “We were not planning but hoping.”

Frog & Toad

May 20, 2012 at 11:50 pm | Posted in Grief, twins | 7 Comments
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“What is the matter, Toad? You are looking sad.”
“Yes,” said Toad. “This is my sad time of day.”
Frog and Toad are Friends by Arnold Lobel

 After Sawyer died I cried a lot in front of the twins.   They were 2 1/2 year olds at the time and did not ask too many questions about my tears.   Now, over 2 years later, the twins ask questions about everything and I rarely cry in front of them.  The sadness is still there but I have better control over it.   Every once in a while it gets the best of me and the tears leak out against my will.  Today was one of those days.   I know it is not just today – it has been creeping up on me over the last few months.

I know that there will be other days when the tears take over.  It is ok to be sad but it is also ok to be happy.  If not for me than for them.

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The Triathlon

May 6, 2012 at 10:30 pm | Posted in Grief | 25 Comments
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This weekend I swam, biked and ran. My only real goal was to finish in one piece and hopefully have some fun along the way. As I raced I realized that grief (or my experiences with it so far) is a lot like a triathlon.

Getting into the cool water is shocking and sudden. Keep moving – no matter what chaos or fogginess has set in, the only solution is forward motion.

“There is nothing left we can do for Jake.”
“Baby is not breathing.”

Next, there is bawling and bargaining. After the shock wears off a bit there are lots and lots of tears.

I would have traded places with Jake and Sawyer if it was humanly possible. I stared at the hospital walls and pleaded that it was me not them.

There are downhills and some coasting but there is always a hill up ahead. Shifting gears helps at times but not always.

Lastly, reality sets in but it is not the same reality as before – the shock has turned to sadness and the bawling has become bittersweetness. The bargaining is done.

My goal is still the same, to finish in one piece and hopefully have some fun along the way.

Help

May 2, 2012 at 10:18 pm | Posted in after death?, Grief, life after loss, life lessons, normal?, twins | 23 Comments
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Aibileen, from The Help, whispers this quote in Mae Mobley’s ear every day so she will understand that she is special.  Are there words which I can whisper into my toddlers’ ears that will help them understand about their brothers?

The other day I was driving the twins and listening to their conversation.  They were discussing one of their friend’s new baby sister.  The conversation went something like this:

“We have babies too.”

“Our babies are not growing.”

“They are flowers.”

“Flowers grow.  So, our babies are growing.”

“Mama, what kind of flowers are Jake and Sawyer?”

A long silence from me.  I finally come up with, “want to go to the new playground?”

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