R Baby Project, Recitals & Reasons

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R Baby Project, Recitals & Reasons

May 30, 2012 at 11:36 pm | Posted in Grief, life after loss, Love, normal? | 8 Comments
Tags: death of a baby, enteroviral infection, hope, new not so normal, premature birth, quotes, R Baby Foundation, random, unexplainable, ways to honor the memory of your child

Reasons:

They Say There is a Reason
They say there is a reason, They say that time will heal,
But neither time nor reason, Will change the way I feel,
For no one knows the heartache, That lies behind our smiles,
No one knows how many times, We have broken down and cried,
We want to tell you something, So there won’t be any doubt,
You’re so wonderful to think of, But so hard to be without.
~Author Unknown

Recitals:

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R Baby Project:

One of my sister-in-laws recently emailed me a link about a family who had a baby girl named Rebecca. Rebecca was born 4 weeks premature and spent 5 days in the NICU. The doctors determined that Rebecca was healthy and she went home. The next day Rebecca was severely congested and had difficulty breathing. Her parents took her to the pediatrician and the ER. Doctors misdiagnosed her symptoms as a common cold and she was repeatedly sent home. Tragically, Rebecca died at 8 days old. Rebecca contracted an enteroviral infection which can be life threatening in babies.

Rebecca’s parents created the R Baby Foundation. This charity is dedicated to helping newborn babies, primarily those less than a month old suffering from viral infections and other infectious diseases, receive the highest quality of care and service through supporting education, research, training and life-saving equipment.

Along with recitals and reasons I have decided that I am going to add a feature to this blog which focuses on families who are making the world a better place by honoring the memory and lives of their children. If you know of or come across any organizations that would be worth mentioning please let me know.

8 Comments »

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Fletcher and Alyssa look amazing! I only wish I could’ve seen the action live. You have such awesome kiddos. Here’s my R for you…respect…tons of respect that I have for you in how much you do for others…your kids, your kids not with us anymore, and other people who have suffered losses.

Comment by Amy Johnson— May 31, 2012 #

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It’s so unfortunate that it happened and I’m sorry to hear about that. BY the way, If I come across any such organisation, I will let you know for sure

Comment by bhaskaryya— May 31, 2012 #

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Very cute pictures of the kids.

Comment by Susan— May 31, 2012 #

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Love the pictures with the adorable outfits and beaming smiles. I think your idea of sharing links and spreading info is a great one.

Comment by Daphne— May 31, 2012 #

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A high school friend started Peace Bears, http://www.peacebears.org/index.php, after the stillbirth of her daughter in 2005. There is some religious context to the organization (her husband is a pastor), but I think it’s the type of project you might want to highlight.

The recital pictures are adorable. Hope you’re feeling well.

Comment by Cheryl P. Stober (@cherylstober)— May 31, 2012 #

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Alyssa and Fletcher are beacons of light at the end of tunnels. Who can not smile after seeing their pictures….
Loving thoughts,
Ellen

Comment by Ellen— May 31, 2012 #

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Love the pictures. Sorry about Rebecca.

Families who are making the world a better place by honoring the memory and lives of their children… The Ronan Thompson Foundation http://theronanthompsonfoundation.com/

Comment by Glenda— May 31, 2012 #

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Love the pics of the kids as they bring beauty and talent to the world. And love your idea about adding the features on families who are honoring their children. And they will love that too!

Comment by Eden— May 31, 2012 #

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A Mourning Mom