Rockstar Ronan & Rainbows
June 24, 2012 at 10:52 pm | Posted in Grief, life lessons, Love, silver lining | 3 CommentsTags: child loss, childhood cancer, death of a baby, hope, neuroblastoma, rainbows, Rockstar Ronan, ways to honor the memory of your child
In August of 2010, Ronan was diagnosed with Stage 4 Neuroblastoma cancer. He died on May 9, 2011 in his mother’s arms after an 8 month battle where “he never gave up until he was told it was time to let go.” Maya made her son a promise that she would continue to fight for him until cancer survival rates start to improve and eventually a cure is found. The Ronan Thompson Foundation was created.
Childhood cancer is the number 1 disease killer in children. Pediatric cancer only receives 3.8% of all cancer research funding. Maya is out there finding the doctors who will make the most difference in fighting childhood cancer. The Ronan Thompson Foundation is raising money to fund the research. Maya meets with and helps other families with children who have neuroblastoma. Maya has also created a list of things that we can all do to help and live like Rockstars.
I know that what I am writing here is a fraction of all that Maya and Ronan have done and continue to do to change the face of childhood cancer. However, I do know for certain that Maya and Ronan are changing the world for the better.
As always I am still searching for rainbows. Here is the one I found today. . .
Thank you to Glenda for suggesting I write about Rockstar Ronan. Thank you also to Jessica who mentioned Molly Bears. If you have any other organizations that you would like me to write about please let me know.
Peace Bears, Picking Berries & Pink & Black Glasses
June 12, 2012 at 10:40 pm | Posted in Grief, life lessons, twins, why I write | 7 CommentsTags: Aching arms, child loss, death of a baby, Peace Bears, ways to honor the memory of your child, Wish for Wendy
Pink & Black Glasses:
Before
After
Picking Berries:
Peace Bear Project:
Peace Bear Project, Inc. is a 501(c)(3) non-profit organization for families grieving a stillbirth or early infant death. This non-profit was created by the parents of Peace A. Young who was stillborn on July 20, 2005. In her memory, they deliver teddy bears to other families leaving hospitals with empty arms.
Thank you Cheryl for writing to me about Peace Bears. Also, thanks so much to Hillary for letting me know about Wish for Wendy and to others who have let me know about organizations I will write about soon.
Right Where I am: 6 years, 9 months, 2 weeks and 2 years, 5 months and 2 weeks
June 10, 2012 at 5:52 pm | Posted in Grief, life lessons, Love, normal? | 11 CommentsTags: child loss, dark days, death of a baby, grief, Jake, post traumatic stress disorder, Sawyer, twins
I am joining still life with circles for right where I am. Angie started this project last year. She asked other bereaved parents to write about where they were in their grief.
Am I 6 years, 9 months, 2 weeks from the last time I held Jake? Or, 2 years, 5 months and 2 weeks from the last time I saw Sawyer alive? (or I suppose it could even be the 2 or so months since the miscarriage). To be honest, I do not know where I am except right here.
I no longer cry every day. However, there is not a day which goes by that I do not think of them. Now I am answering bittersweet questions and telling their brother and sister about them.
My arms no longer constantly ache to hold them. However, the moments when they do ache are still so sharp and real. I hug their siblings just a bit tighter.
I can now talk about Jake and Sawyer without the lump in my throat threatening to choke me. However, the sadness and lost dreams are still there. Now they are part of me.
Just like the early days of this journey of grief I take it all one day at a time. I breathe. I put one foot in front of the other. I stay really busy. I try to be the best mother, wife, daughter, sister, friend and person that I can be. I do not always succeed. Sometimes I cry and the days are dark. I try to hope. I look for rainbows. I love and miss my 2 little boys. I live.
Planning & Hoping
May 22, 2012 at 10:40 pm | Posted in Grief, life lessons | 20 CommentsTags: child loss, dark days, death of a baby, drugs & doctors, hope, infertility, life after loss, miscarriage, post traumatic stress disorder, unexplainable
Many doctors told me that I could not get pregnant again after Jake had died. We tried clomid, letrozole, IUIs and eventually IVFs. We went to several infertility specialists in town and then flew to New York to get yet another opinion. The doctor we ultimately had the twins with was so sure that I would not get pregnant that Evan and I nicknamed him Dr. Doom and Gloom.
We shocked ourselves and Dr. Doom when I had the twins. We went back to Dr. Doom when we were trying again. He again told us that we had little to no chance. Again, we surprised everyone when we had Sawyer.
Evan and I did not think it was possible to get pregnant on our own until a few months ago. I was late and thought to myself there is not a chance in the world I am pregnant without the assistance of lots of drugs and doctors. However, there it was . . . the 2 pink lines on the pregnancy test.
I showed Evan the pink lines. We both just stared at each other. We were happy. Very, very happy. In all honesty, I did not believe that it could really be true. After Jake and then Sawyer died there is always a part of me which expects the worst but I try to hope for the best. There are so many stories of people who get pregnant after years of infertility. I thought maybe just maybe this could be happening.
Until I started to bleed. Evan and I went to the OB. He confirmed that yes I was pregnant but I was most likely having a miscarriage. He asked if this baby was planned. I wanted to shout that we had not planned for this baby but then again we had not planned on burying 2 of our sons. Instead, Evan came up with the perfect answer, “We were not planning but hoping.”
Help
May 2, 2012 at 10:18 pm | Posted in after death?, Grief, life after loss, life lessons, normal?, twins | 23 CommentsTags: child loss, death of a baby, hope, Jake, new not so normal, quotes, Sawyer, siblings
Aibileen, from The Help, whispers this quote in Mae Mobley’s ear every day so she will understand that she is special. Are there words which I can whisper into my toddlers’ ears that will help them understand about their brothers?
The other day I was driving the twins and listening to their conversation. They were discussing one of their friend’s new baby sister. The conversation went something like this:
“We have babies too.”
“Our babies are not growing.”
“They are flowers.”
“Flowers grow. So, our babies are growing.”
“Mama, what kind of flowers are Jake and Sawyer?”
A long silence from me. I finally come up with, “want to go to the new playground?”
I Heart the March of Dimes
April 18, 2012 at 6:18 pm | Posted in Grief, life lessons, Love, parents | 2 CommentsTags: child loss, gratitude, hope, Jake, March of Dimes, Sawyer, tragedy, unexplainable
As I mentioned in my last post, our family supports the March of Dimes. We have walked every year since Jake died. Our team was named Jake’s Journey. After Sawyer died we renamed it to Jake’s Journey & Sawyer’s Strides. This year we are excited because the March of Dimes contacted us to let us know our donations are being matched by the hospital where all 4 of our children were born.
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality. I believe that the March of Dimes is making a difference and saving babies.
I cannot do anything to bring back Jake or Sawyer but maybe just maybe I can help spare other parents the heartbreak of having to live in world without their child/children.
Thank you to all those who supported our team this year and in past years. Thank you also to the hospital for matching funds. We appreciate all of your kindness and generosity. If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.
Human Doings
March 4, 2012 at 3:18 pm | Posted in after death?, Grief, life lessons, venting | 6 CommentsTags: dark days, new not so normal, perspective, post traumatic stress disorder
I have written that I do not necessarily have advice for bereaved parents. I do not have the magic words to take away the pain. However, I do have a strategy which I have used most of my adult life. Being busy. I over schedule. Moments alone terrify me – they are opportunities for dark thoughts to take me over.
I will never forget the dark empty days of January, 2006. Jake had died and I could not fill up the days with anything that would distract me from my grief. Slowly, I rejoined the land of the living. Keeping busy was a huge part of my plan. I worked as much as I could and made sure that I was never home alone.
Right after Jake and then Sawyer died family and friends were around a lot. I am still so appreciative that a couple of my thoughtful friends made an online calendar for me. People would come by or call every day. These days I am usually with the twins or at work so busy is built into my schedule.
“Don’t be afraid of the vacant moment. You are a human being not a ‘human doing’ so just be and consider your boredness. You may be surprised at how it clears the mind (after getting over the initial discomfort) and provides new thoughts.” Don’t Sweat the Small Stuff… and It’s All Small Stuff by Richard Carlson
Today I am not completely terrified of the “vacant moments” but there is still fear. I am still more of a human doing than a human being. I know that there is a balance. I will find it one of these days.
P.S. If you have a free moment will you please vote for brilliantly funny Mamabirddiaries in the Circle of Moms Top 25 Funny Moms contest?
TMI vs. not TMI?
February 28, 2012 at 10:46 pm | Posted in life lessons, normal?, twins, venting | 5 CommentsTags: child loss, infertility, Jake, life after loss, parenthood, Sawyer, twins, unexplainable
I do talk about Jake and Sawyer – and if you are reading this then you know I do write about them quite often. They are never far from my thoughts. However, I will at times not mention my 2 children who are not with me. Sometimes it is because I do not know the other person and will never see them again. Other times it is because I do not want to see the look of pity which often accompanies Jake and Sawyer’s stories.
Then there are times when I give too much information on purpose. I distinctly remember a wedding shortly after Jake died. Evan and I were talking to 2 other couples. One of the couples, who are our very good friends, like us did not have any children at home at the time. The 3rd couple kept mentioning their kids and the fact that we did not have any. They asked things like, “How long have you been married?” We each answered. Couple #3 followed up with, “So, aren’t you thinking about having kids?” We each politely tried to dodge the questions and change the subject. Couple #3 did not take the hints. I finally had enough. I wanted to stop this line of questioning. So, I piped up,”We buried our son a few months ago.” I thought that the conversation would come to a screeching halt. I was wrong. Couple #3 does not miss a beat, “When will you start trying again?”
The past few days I have been once again tempted to share too much information in order to stop a conversation. We have been receiving many emails about teacher appreciation week at the twins’ preschool. Each class needs volunteers for a specific time so the teachers can eat a child free (aka peaceful) lunch. The exact time the volunteers are needed is when Evan and I have a meeting scheduled with a rabbi to discuss Sawyer’s unveiling.
At first I did not reply to the emails. The emails kept coming. I drafted the following:
“I am sorry I cannot volunteer for the teacher appreciation lunch because we need to meet with a rabbi so that we can plan our youngest son’s unveiling. We have had trouble getting the correct headstone. Now it is here and the rabbi who presided over Sawyer’s funeral took a visiting rabbi assignment up north. He won’t be back till April. A very good friend put us in touch with her rabbi. We are meeting with him at the exact same time you need volunteers.”
I deleted my rambling email and opted for not TMI:
“Sorry again but I just cannot volunteer at that time this week. If something changes I will let you know asap. Hope that you have a good night. Thank you.”
Sometimes less is more.
Where are Sawyer & Jake? (part 2)
February 26, 2012 at 9:16 pm | Posted in after death?, Death, Grief, life lessons, Love, normal? | 5 CommentsTags: child loss, family, life after loss, new not so normal, perspective, unexplainable
In this post I wrote that I believe Jake and Sawyer are in our hearts. I also believe they are close by. I do not have any proof. It is just a feeling (and a hope). Maybe at times it is more than a feeling.
Last year, in the last few days of Evan’s mother’s life she (Shelley) spoke about people in the room. She was at home. Family, friends and hospice were with her. A few times Shelley mentioned that there was a woman behind her and a little boy on the bench at the end of her bed.
When she was 17, Shelley took care of her sick mother. Shelley cared for her until she died 2 years later. Shelley was 19 at the time. Over 40 years later, Shelley spoke about a woman behind her bed. I believe that woman was her mother.
Evan’s sister asked questions about the woman and the boy. Shelley said that the boy seemed like he was around 6. At the time of Shelley’s death Jake would have been 5 1/2. I like to think that the boy was Jake.
“It is the secret of the world that all things subsist and do not die, but only retire a little from sight and afterwards return again. Nothing is dead; men feign themselves dead, and endure mock funerals and mournful obituaries, and there they stand looking out of the window, sound and well, in some new strange disguise.” – – Ralph Waldo Emerson
It is all part of my new normal. The reality I live in now does not include Jake and Sawyer’s physical presence but they are always nearby. They send me signs – like when I see a praying mantis on the window of my parent’s 8th floor condo or a ladybug in the middle of winter. I will look for their signs while I wait to hold Jake and Sawyer again. As an extremely wise bereaved mom wrote, “a lifetime is an impossibly long time to wait to hold my child again.”
Out of Control
February 22, 2012 at 9:30 pm | Posted in Grief, life lessons, twins, venting | 6 CommentsTags: Buddha, infertility, Jake, life after loss, mario andretti, Sawyer, unexplainable
“If everything seems under control, you’re just not going fast enough.”
– – Mario Andretti
Thank you all so much for the well wishes for Evan. He was cleared to go back to work. He will have quite a few doctor’s appointments in his future but we are hopeful that his health will be back under control soon. I have once again been reminded of an important life lesson. I DO NOT HAVE ANY CONTROL.
I am not sure what happens but sometimes I forget. It is like I have amnesia and I actually believe I have a bit of control. Jake, Sawyer, infertility . . . just to list a few glaring instances where I am not in charge. I will continue to remind myself of the tasks which I can control. Laundry, the dishes, grocery shopping. . .a few which immediately come to mind. As for the rest, I will have to try my best and go with the flow.
I recently read another Buddha story about an old man who accidentally fell into a river leading to a dangerous waterfall. Onlookers feared for his life. Miraculously, he came out alive and unharmed at the bottom of the falls. People asked him how he managed to survive. “I bent myself into the water, not the water to me. Without thinking, I allowed myself to be shaped by it. Plunging into the swirl, I came out with the swirl. This is how I survived.”
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