Odd but Ok

July 20, 2012 at 2:34 pm | Posted in Cemetery, Grief, life after loss, normal? | 6 Comments
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Ever since Sawyer’s unveiling I have been watching the earth move farther and farther away from Jake and Sawyer’s headstone.  Ground settles.  No big deal.  I kept checking.  I thought about bringing some dirt and trying to fill it in.  Stones started to fall into the crack.  The split grew larger and larger.  I decided to ask about it.  I went to the office at the cemetery.  The groundskeeper explained to me that a combination of ground settling and rain can cause headstones to sink.  Not what I wanted to hear.   He asked if I could show him the headstone and then he could determine the best course of action.  Great.  Action is good.  In fact, fix it right now, please.

We drove out to Jake and Sawyer.  I showed him the crack.  He told me that they would lift up the marble and pack it down with more dirt.  Ok.  I asked, “Can we do that right now? ” He replied that he would put in a work order but it would not get done for a week or 2.  I thought about it.  Ok.  Jake and Sawyer are not going anywhere.  There is no urgency.  The more I thought about it the more I realized that I was actually taking care of something for them.  I will never give them a bath, brush their hair or help them get dressed.   Oddly, I felt good about placing the work order to fix the crack between the earth and the headstone.

I wanted a perfect ending. Now I’ve learned, the hard way, that some poems don’t rhyme,
and some stories don’t have a clear beginning, middle, and end.
Life is about not knowing, having to change,
taking the moment and making the best of it. . .” – Gilda Radner

R Baby Project, Recitals & Reasons

May 30, 2012 at 11:36 pm | Posted in Grief, life after loss, Love, normal? | 8 Comments
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Reasons:

They Say There is a Reason
They say there is a reason, They say that time will heal,
But neither time nor reason, Will change the way I feel,
For no one knows the heartache, That lies behind our smiles,
No one knows how many times, We have broken down and cried,
We want to tell you something, So there won’t be any doubt,
You’re so wonderful to think of, But so hard to be without.
~Author Unknown

Recitals:

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R Baby Project:

One of my sister-in-laws recently emailed me a link about a family who had a baby girl named Rebecca.  Rebecca was born 4 weeks premature and spent 5 days in the NICU.  The doctors determined that Rebecca was healthy and she went home.  The next day Rebecca was severely congested and had difficulty breathing.  Her parents took her to the pediatrician and the ER.  Doctors misdiagnosed her symptoms as a common cold and she was repeatedly sent home.  Tragically, Rebecca died at 8 days old.  Rebecca contracted an enteroviral infection which can be life threatening in babies.

Rebecca’s parents created the R Baby Foundation.  This charity is dedicated to helping newborn babies, primarily those less than a month old suffering from viral infections and other infectious diseases, receive the highest quality of care and service through supporting education, research, training and life-saving equipment.

Along with recitals and reasons I have decided that I am going to add a feature to this blog which focuses on families who are making the world a better place by honoring the memory and lives of their children.  If you know of or come across any organizations that would be worth mentioning please let me know.

The Triathlon

May 6, 2012 at 10:30 pm | Posted in Grief | 25 Comments
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This weekend I swam, biked and ran. My only real goal was to finish in one piece and hopefully have some fun along the way. As I raced I realized that grief (or my experiences with it so far) is a lot like a triathlon.

Getting into the cool water is shocking and sudden. Keep moving – no matter what chaos or fogginess has set in, the only solution is forward motion.

“There is nothing left we can do for Jake.”
“Baby is not breathing.”

Next, there is bawling and bargaining. After the shock wears off a bit there are lots and lots of tears.

I would have traded places with Jake and Sawyer if it was humanly possible. I stared at the hospital walls and pleaded that it was me not them.

There are downhills and some coasting but there is always a hill up ahead. Shifting gears helps at times but not always.

Lastly, reality sets in but it is not the same reality as before – the shock has turned to sadness and the bawling has become bittersweetness. The bargaining is done.

My goal is still the same, to finish in one piece and hopefully have some fun along the way.

Help

May 2, 2012 at 10:18 pm | Posted in after death?, Grief, life after loss, life lessons, normal?, twins | 23 Comments
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Aibileen, from The Help, whispers this quote in Mae Mobley’s ear every day so she will understand that she is special.  Are there words which I can whisper into my toddlers’ ears that will help them understand about their brothers?

The other day I was driving the twins and listening to their conversation.  They were discussing one of their friend’s new baby sister.  The conversation went something like this:

“We have babies too.”

“Our babies are not growing.”

“They are flowers.”

“Flowers grow.  So, our babies are growing.”

“Mama, what kind of flowers are Jake and Sawyer?”

A long silence from me.  I finally come up with, “want to go to the new playground?”

Random H’s

April 20, 2012 at 6:50 pm | Posted in life after loss, parents, silver lining, twins | 9 Comments
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Hugs:

Hugs

How To. . .:

Hairdos:

Happy Hairdo

 

Hairdos - A & Uwannabun

Hounds:

Hounds

Hope:

March of Dimes 2011

What I Need

April 14, 2012 at 11:12 pm | Posted in Death, life after loss, mourning, normal? | 19 Comments
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I am not always able to adequately articulate my feelings.  Jake and Sawyer’s deaths have often left me feeling alone and misunderstood.  Sometimes I read something and it is exactly how I think and feel.  Reading Four Plus An Angel  by Jessica, often leaves me with that reaction.  Jessica, writes beautifully about her life without her daughter Hadley.

What I Need by Jessica

I need to say her name without bringing everyone to tears.

I need her life to be included in the count of children, grandchildren, nieces and nephews.

I need kindness on birthdays and understanding on holidays.

I need to stay in bed and a reason to get out of it.

I need to talk endlessly and to let the phone ring.

I need an extra hug and respect for my space.

I need someone to ask how I’m doing and want to know the real answer.

I need careful announcements of pregnancies, baby showers and births, mine did not turn out as I hoped.

I need a “handle with care” sticker for my heart, my emotions have been fragile since the day I said goodbye.

I need patience and reminders for my mind, part of it will always be somewhere else.

I need forgiveness for not being the friend, sister, daughter and wife I used to be.

But more than anything I need you…

your support, your friendship, your understanding…

a lifetime is an impossibly long time to wait to hold my child again.

Two other impressive things going on at Four Plus An Angel:

  1. Jessica is also an advocate for autism.  She has a very cool project going on during April, Autism Awareness month.  Jessica is asking for a picture of you or someone you know or love who has autism, holding up a message they would like the world to know about autism. For more details on the project and where to send pictures click here.
  2. Jessica, like our family, supports the March of Dimes.   She is very close to her goal and I am hoping that she makes it.  Click on the button below to donate to Jessica’s team.

Sawyer’s Aunt

April 10, 2012 at 10:26 pm | Posted in Death, Grief | 6 Comments
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On my last post, The Good Cook commented that “It truly does take a village to mourn one lost love.”. We are not alone in our grief. Other family members mourn. Friends mourn. Sawyer and Jake are loved and remembered by many.

Not long after he died, one of Sawyer’s amazing aunts wrote the post below:

This is incredibly sad for me to write.  I hope writing about it helps.

My brother’s baby stopped breathing and died in his sleep, almost two weeks ago.

We were all in terrible shock. Sawyer was a sweet, beautiful little thing, only a month-and-a-half old. We’d just Skyped with my brother and sister-in-law and watched him sleeping contently in his mother’s arms. I’d had the chance to hold him myself over Thanksgiving. Impossible.

And not fair. Especially not for my brother and his wife, who’d already lost their first baby due to medical complications. They then went on to have twins–a boy and a girl–now two-and-a-half–both adorable. But now this.  I can’t imagine having to go through the death of a child once, let alone twice.

I flew as quickly as I could to their place, hoping to support them in any way possible. When I arrived, family was already there helping. Others would arrive soon. There was also a great circle of friends who stopped by to lend a hand and offer condolences.

A neighbor from down the street, came to drop off food and check in on my sister-in-law and brother. She told me she had lost her own daughter to SIDS. She showed me a pendant she wears around her neck always reminding her of her daughter. I was told shocking stories about others who too, had lost children.

I asked her how she was able to handle the grief. She explained she already had other children at the time, and she had to go on living for them. I thought of my brother’s twins and was hopeful that my brother and sister-in-law would be able to do the same.

My niece had been asking where her baby brother had gone. My nephew would run up to his mother, stroke her arm, hug her and say, “I’m so proud of you, Mommy.” She would thank him and try to hold back the tears. Both the twins knew things were out of sorts, and that their little brother wouldn’t be living with them anymore, but at this age, they didn’t fully understand what had happened. A small blessing for now.

We all asked WHY? Why him? Why them? Why now? I thought of what amazing parents they both are. In addition to making sure their twins are well-fed, happy and educated (as educated as 2-year-olds can be) they keep their kids so well protected that I’ve had to ask them to help me get into the bathroom, or turn on the stove because of all the child-proofing they’ve done. It’s clear there’s no lack of love or protection for the children in their house. But no matter how many times we asked why, there were no clear answers, and there likely wouldn’t be for quite a while.

When we finally attended the funeral, on a chilly Atlanta morning, the rabbi conducting the service brought up a question I’m fairly certain none of us had asked.

“As adults we ask, ‘Why?’…What we need to ask is, ‘When?’ “

Ask when? When what?

“Ask WHEN Sawyer is…WHEN is Sawyer,” he said.

I didn’t understand what he meant, but he went on to explain.

Sawyer is when…we’re spending time with family. He’s when…we’re out for a walk on the beach. He’s when…we’re at a ballgame. A bit of him is with us when…we are. Simple.

I understood what he meant.  It brought a small measure of peace.

The sentiment will stay with me always. So will a bit of Sawyer. And I’ll never forget…when.

The Story of the Stones

March 28, 2012 at 10:48 pm | Posted in Cemetery, Grief, normal?, traditions, twins | 9 Comments
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You may have noticed in my last post that Jake and Sawyer’s headstone is covered with stones.  At the unveiling, Jake and Sawyer’s sister carefully arranged all of the stones.   In fact, the twins each painted rocks for the occasion.  She would only paint the smooth stones.  He would only paint the rough ones.

The tradition of leaving rocks on the headstone signifies that someone has visited which honors the deceased person’s memory.  The last scene of Schindler’s List depicts children of Survivors placing stones on Oscar Schindler’s grave. 

There are many theories on the origins of this custom.  A few are the following:

  1. The stones are a kind of calling card left for the deceased.   Stones, unlike flowers, are permanent and do not get blown away in the wind.
  2. Jacob’s sons took a stone and put it on Rachel’s (their mother’s)grave to make up Rachel’s tomb.  In placing stones on the grave one participates in building the tombstone.
  3. A large stone slab was placed on the grave so that it would not be lost.  Rabbi Tam, goes on to explain that there were smaller stones that were set under the sides of the large stone that rests on them so that it will not bear down too heavily on the deceased.
  4. The ritual of placing a stone is a way of expressing our emotions and spiritual needs. Rabbi Andrew Straus explains that “we need physical acts to express these things for us, to make them concrete.”

    “Placing a stone on a grave does just that. It works in several ways:

    1) It is a sign to others who come to the grave when I am not there that they and I are not the only ones who remember. The stones I see on the grave when I come are a reminder to me that others have come to visit the grave. My loved one is remembered by many others and his/her life continues to have an impact on others, even if I do not see them.

    2) When I pick up the stone it sends a message to me. I can still feel my loved one. I can still touch and be touched by him/her. I can still feel the impact that has been made on my life. Their life, love, teachings, values, and morals still make an impression on me. When I put the stone down, it is a reminder to me that I can no longer take this person with me physically. I can only take him/her with me in my heart and my mind and the actions I do because he/she taught me to do them. Their values, morals, ideals live on and continue to impress me – just as the stone has made an impression on my hands – so too their life has made an impression on me that continues.” Rabbi Tom Louchheim

I am sure there are more theories but no matter the origins I like the tradition.  Evan and I collect stones from places we go.  We have our own tradition of kissing the rocks before we place them on the headstone.  We are sending kisses to Jake and Sawyer.  I hope that they are getting them. 

Time Traveler

March 26, 2012 at 10:44 pm | Posted in after death?, Cemetery, Grief, normal? | 6 Comments
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I wish I could go back to this moment:

I sometimes do feel like I should be able to beam myself back to the fall of 2009.  If I could just hold Sawyer one more moment.  Kiss his sweet cheeks.  Perhaps all the allergy medicine I have been taking has made me loopy.  Or, maybe it is because I just finished the Time Traveler’s Wife.  I pray every night that Sawyer will visit me in my dreams.  He has not in quite a while.  I wake up every morning knowing that I am still here in 2012 and this is our reality:

Human Doings

March 4, 2012 at 3:18 pm | Posted in after death?, Grief, life lessons, venting | 6 Comments
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I have written that I do not necessarily have advice for bereaved parents.  I do not have the magic words to take away the pain.  However, I do have a strategy which I have used most of my adult life.  Being busy.  I over schedule.  Moments alone terrify me – they are opportunities for dark thoughts to take me over.

I will never forget the dark empty days of January, 2006.  Jake had died and I could not fill up the days with anything that would distract me from my grief.  Slowly, I rejoined the land of the living.  Keeping busy was a huge part of my plan.  I worked as much as I could and made sure that I was never home alone.

Right after Jake and then Sawyer died family and friends were around a lot.  I am still so appreciative that a couple of my thoughtful friends made an online calendar for me.  People would come by or call every day.  These days I am usually with the twins or at work so busy is built into my schedule.

“Don’t be afraid of the vacant moment. You are a human being not a ‘human doing’ so just be and consider your boredness. You may be surprised at how it clears the mind (after getting over the initial discomfort) and provides new thoughts.”  Don’t Sweat the Small Stuff… and It’s All Small Stuff by Richard Carlson

Today I am not completely terrified of the “vacant moments” but there is still fear.  I am still more of a human doing than a human being.  I know that there is a balance.  I will find it one of these days.

P.S.  If you have a free moment will you please vote for brilliantly funny Mamabirddiaries in the Circle of Moms Top 25 Funny Moms contest?

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