Sawyer’s Aunt
April 10, 2012 at 10:26 pm | Posted in Death, Grief | 6 CommentsTags: Aunt, child loss, Eden, family, friends, gratitude, life after loss, motherhood, new not so normal, parenthood, SIDS, unexplainable
On my last post, The Good Cook commented that “It truly does take a village to mourn one lost love.”. We are not alone in our grief. Other family members mourn. Friends mourn. Sawyer and Jake are loved and remembered by many.
Not long after he died, one of Sawyer’s amazing aunts wrote the post below:
This is incredibly sad for me to write. I hope writing about it helps.
My brother’s baby stopped breathing and died in his sleep, almost two weeks ago.
We were all in terrible shock. Sawyer was a sweet, beautiful little thing, only a month-and-a-half old. We’d just Skyped with my brother and sister-in-law and watched him sleeping contently in his mother’s arms. I’d had the chance to hold him myself over Thanksgiving. Impossible.
And not fair. Especially not for my brother and his wife, who’d already lost their first baby due to medical complications. They then went on to have twins–a boy and a girl–now two-and-a-half–both adorable. But now this. I can’t imagine having to go through the death of a child once, let alone twice.
I flew as quickly as I could to their place, hoping to support them in any way possible. When I arrived, family was already there helping. Others would arrive soon. There was also a great circle of friends who stopped by to lend a hand and offer condolences.
A neighbor from down the street, came to drop off food and check in on my sister-in-law and brother. She told me she had lost her own daughter to SIDS. She showed me a pendant she wears around her neck always reminding her of her daughter. I was told shocking stories about others who too, had lost children.
I asked her how she was able to handle the grief. She explained she already had other children at the time, and she had to go on living for them. I thought of my brother’s twins and was hopeful that my brother and sister-in-law would be able to do the same.
My niece had been asking where her baby brother had gone. My nephew would run up to his mother, stroke her arm, hug her and say, “I’m so proud of you, Mommy.” She would thank him and try to hold back the tears. Both the twins knew things were out of sorts, and that their little brother wouldn’t be living with them anymore, but at this age, they didn’t fully understand what had happened. A small blessing for now.
We all asked WHY? Why him? Why them? Why now? I thought of what amazing parents they both are. In addition to making sure their twins are well-fed, happy and educated (as educated as 2-year-olds can be) they keep their kids so well protected that I’ve had to ask them to help me get into the bathroom, or turn on the stove because of all the child-proofing they’ve done. It’s clear there’s no lack of love or protection for the children in their house. But no matter how many times we asked why, there were no clear answers, and there likely wouldn’t be for quite a while.
When we finally attended the funeral, on a chilly Atlanta morning, the rabbi conducting the service brought up a question I’m fairly certain none of us had asked.
“As adults we ask, ‘Why?’…What we need to ask is, ‘When?’ “
Ask when? When what?
“Ask WHEN Sawyer is…WHEN is Sawyer,” he said.
I didn’t understand what he meant, but he went on to explain.
Sawyer is when…we’re spending time with family. He’s when…we’re out for a walk on the beach. He’s when…we’re at a ballgame. A bit of him is with us when…we are. Simple.
I understood what he meant. It brought a small measure of peace.
The sentiment will stay with me always. So will a bit of Sawyer. And I’ll never forget…when.
The Ocean
April 4, 2012 at 9:28 pm | Posted in Death, Grief | 5 CommentsTags: child loss, dark days, fathers, Grandfather, Jokes, life after loss, member of the club, parenthood, perspective, twins, unexplainable, valley of death
I met a bereaved father the other day. There is an immediate level of familiarity when you meet another member of the club. Bereaved parents all have different stories but we have all walked in the darkest valley of death. We have all cruelly defied the circle of life and outlived our children.
It has been 7 years since his 29-year-old son died. The father went on to tell me an analogy of grieving for your child. I am not sure I can explain it as eloquently as he did but I will try.
Grief is like an ocean. At times it is calm but there are always ripples. Other times the water is rough. The ocean is unpredictable. Out of no where and with little or no warning a tsunami will drown you. Over time the waters will calm down again but they will never be still.
On a completely different but still ocean related note, click this link to hear the twins tell their versions of their great grandfather’s ocean joke.
The Story of the Stones
March 28, 2012 at 10:48 pm | Posted in Cemetery, Grief, normal?, traditions, twins | 9 CommentsTags: Jewish customs, new not so normal, twins, unexplainable
You may have noticed in my last post that Jake and Sawyer’s headstone is covered with stones. At the unveiling, Jake and Sawyer’s sister carefully arranged all of the stones. In fact, the twins each painted rocks for the occasion. She would only paint the smooth stones. He would only paint the rough ones.
The tradition of leaving rocks on the headstone signifies that someone has visited which honors the deceased person’s memory. The last scene of Schindler’s List depicts children of Survivors placing stones on Oscar Schindler’s grave.
There are many theories on the origins of this custom. A few are the following:
- The stones are a kind of calling card left for the deceased. Stones, unlike flowers, are permanent and do not get blown away in the wind.
- Jacob’s sons took a stone and put it on Rachel’s (their mother’s)grave to make up Rachel’s tomb. In placing stones on the grave one participates in building the tombstone.
- A large stone slab was placed on the grave so that it would not be lost. Rabbi Tam, goes on to explain that there were smaller stones that were set under the sides of the large stone that rests on them so that it will not bear down too heavily on the deceased.
- The ritual of placing a stone is a way of expressing our emotions and spiritual needs. Rabbi Andrew Straus explains that “we need physical acts to express these things for us, to make them concrete.”
“Placing a stone on a grave does just that. It works in several ways:
1) It is a sign to others who come to the grave when I am not there that they and I are not the only ones who remember. The stones I see on the grave when I come are a reminder to me that others have come to visit the grave. My loved one is remembered by many others and his/her life continues to have an impact on others, even if I do not see them.
2) When I pick up the stone it sends a message to me. I can still feel my loved one. I can still touch and be touched by him/her. I can still feel the impact that has been made on my life. Their life, love, teachings, values, and morals still make an impression on me. When I put the stone down, it is a reminder to me that I can no longer take this person with me physically. I can only take him/her with me in my heart and my mind and the actions I do because he/she taught me to do them. Their values, morals, ideals live on and continue to impress me – just as the stone has made an impression on my hands – so too their life has made an impression on me that continues.” Rabbi Tom Louchheim
I am sure there are more theories but no matter the origins I like the tradition. Evan and I collect stones from places we go. We have our own tradition of kissing the rocks before we place them on the headstone. We are sending kisses to Jake and Sawyer. I hope that they are getting them.
Time Traveler
March 26, 2012 at 10:44 pm | Posted in after death?, Cemetery, Grief, normal? | 6 CommentsTags: dark days, new not so normal, post traumatic stress disorder, Sawyer, unexplainable
I wish I could go back to this moment:
I sometimes do feel like I should be able to beam myself back to the fall of 2009. If I could just hold Sawyer one more moment. Kiss his sweet cheeks. Perhaps all the allergy medicine I have been taking has made me loopy. Or, maybe it is because I just finished the Time Traveler’s Wife. I pray every night that Sawyer will visit me in my dreams. He has not in quite a while. I wake up every morning knowing that I am still here in 2012 and this is our reality:
Running with the Rosebuds
March 20, 2012 at 10:48 pm | Posted in after death?, life after loss, Love, normal?, twins | 7 CommentsTags: Charlie, child loss, cystic fibrosis, hope, life after loss, perspective
Last weekend the twins ran in a race to support Cystic Fibrosis. One of my brother’s best friends, Charlie, had CF. Cystic fibrosis is an inherited, chronic disease that affects the lungs and digestive system of about 30,000 individuals in the United States, and 70,000 people worldwide. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical care have enhanced and extended the lives of children and adults with CF. Many people with the disease can expect now to live into their 30s, 40s and beyond.
Charlie’s parents were told that he would not live to be a teenager. He beat the odds and he did live past his teens, twenties and into his thirties. Charlie was an amazing person who inspired all who were lucky enough to know him. I hope that Jake and Sawyer have somehow been able to meet Charlie.
Both Evan and his sister have been diagnosed with lung diseases which CF research could potentially one day help.
Click here to see the twins race warm up.
Surprise it is Spring
March 18, 2012 at 5:34 pm | Posted in Death, Grief, life after loss, normal? | 9 CommentsTags: dark days, post traumatic stress disorder, Sad, twins
“And when you’re alone, there’s a very good chance you’ll meet things that scare you right out of your pants. There are some, down the road between hither and yon, that can scare you so much you won’t want to go on. But on you will go though the weather be foul . . .”
Dr. Seuss
Spring is here. The days are sunnier. I feel quite the opposite of sunny. This journey of life and grief always brings dark dark days. At times I wish I could just disappear into the darkness. I cannot. So, I put on my sunglasses and follow these 2 out into the big world.
Human Doings
March 4, 2012 at 3:18 pm | Posted in after death?, Grief, life lessons, venting | 6 CommentsTags: dark days, new not so normal, perspective, post traumatic stress disorder
I have written that I do not necessarily have advice for bereaved parents. I do not have the magic words to take away the pain. However, I do have a strategy which I have used most of my adult life. Being busy. I over schedule. Moments alone terrify me – they are opportunities for dark thoughts to take me over.
I will never forget the dark empty days of January, 2006. Jake had died and I could not fill up the days with anything that would distract me from my grief. Slowly, I rejoined the land of the living. Keeping busy was a huge part of my plan. I worked as much as I could and made sure that I was never home alone.
Right after Jake and then Sawyer died family and friends were around a lot. I am still so appreciative that a couple of my thoughtful friends made an online calendar for me. People would come by or call every day. These days I am usually with the twins or at work so busy is built into my schedule.
“Don’t be afraid of the vacant moment. You are a human being not a ‘human doing’ so just be and consider your boredness. You may be surprised at how it clears the mind (after getting over the initial discomfort) and provides new thoughts.” Don’t Sweat the Small Stuff… and It’s All Small Stuff by Richard Carlson
Today I am not completely terrified of the “vacant moments” but there is still fear. I am still more of a human doing than a human being. I know that there is a balance. I will find it one of these days.
P.S. If you have a free moment will you please vote for brilliantly funny Mamabirddiaries in the Circle of Moms Top 25 Funny Moms contest?
TMI vs. not TMI?
February 28, 2012 at 10:46 pm | Posted in life lessons, normal?, twins, venting | 5 CommentsTags: child loss, infertility, Jake, life after loss, parenthood, Sawyer, twins, unexplainable
I do talk about Jake and Sawyer – and if you are reading this then you know I do write about them quite often. They are never far from my thoughts. However, I will at times not mention my 2 children who are not with me. Sometimes it is because I do not know the other person and will never see them again. Other times it is because I do not want to see the look of pity which often accompanies Jake and Sawyer’s stories.
Then there are times when I give too much information on purpose. I distinctly remember a wedding shortly after Jake died. Evan and I were talking to 2 other couples. One of the couples, who are our very good friends, like us did not have any children at home at the time. The 3rd couple kept mentioning their kids and the fact that we did not have any. They asked things like, “How long have you been married?” We each answered. Couple #3 followed up with, “So, aren’t you thinking about having kids?” We each politely tried to dodge the questions and change the subject. Couple #3 did not take the hints. I finally had enough. I wanted to stop this line of questioning. So, I piped up,”We buried our son a few months ago.” I thought that the conversation would come to a screeching halt. I was wrong. Couple #3 does not miss a beat, “When will you start trying again?”
The past few days I have been once again tempted to share too much information in order to stop a conversation. We have been receiving many emails about teacher appreciation week at the twins’ preschool. Each class needs volunteers for a specific time so the teachers can eat a child free (aka peaceful) lunch. The exact time the volunteers are needed is when Evan and I have a meeting scheduled with a rabbi to discuss Sawyer’s unveiling.
At first I did not reply to the emails. The emails kept coming. I drafted the following:
“I am sorry I cannot volunteer for the teacher appreciation lunch because we need to meet with a rabbi so that we can plan our youngest son’s unveiling. We have had trouble getting the correct headstone. Now it is here and the rabbi who presided over Sawyer’s funeral took a visiting rabbi assignment up north. He won’t be back till April. A very good friend put us in touch with her rabbi. We are meeting with him at the exact same time you need volunteers.”
I deleted my rambling email and opted for not TMI:
“Sorry again but I just cannot volunteer at that time this week. If something changes I will let you know asap. Hope that you have a good night. Thank you.”
Sometimes less is more.
Where are Sawyer & Jake? (part 2)
February 26, 2012 at 9:16 pm | Posted in after death?, Death, Grief, life lessons, Love, normal? | 5 CommentsTags: child loss, family, life after loss, new not so normal, perspective, unexplainable
In this post I wrote that I believe Jake and Sawyer are in our hearts. I also believe they are close by. I do not have any proof. It is just a feeling (and a hope). Maybe at times it is more than a feeling.
Last year, in the last few days of Evan’s mother’s life she (Shelley) spoke about people in the room. She was at home. Family, friends and hospice were with her. A few times Shelley mentioned that there was a woman behind her and a little boy on the bench at the end of her bed.
When she was 17, Shelley took care of her sick mother. Shelley cared for her until she died 2 years later. Shelley was 19 at the time. Over 40 years later, Shelley spoke about a woman behind her bed. I believe that woman was her mother.
Evan’s sister asked questions about the woman and the boy. Shelley said that the boy seemed like he was around 6. At the time of Shelley’s death Jake would have been 5 1/2. I like to think that the boy was Jake.
“It is the secret of the world that all things subsist and do not die, but only retire a little from sight and afterwards return again. Nothing is dead; men feign themselves dead, and endure mock funerals and mournful obituaries, and there they stand looking out of the window, sound and well, in some new strange disguise.” – – Ralph Waldo Emerson
It is all part of my new normal. The reality I live in now does not include Jake and Sawyer’s physical presence but they are always nearby. They send me signs – like when I see a praying mantis on the window of my parent’s 8th floor condo or a ladybug in the middle of winter. I will look for their signs while I wait to hold Jake and Sawyer again. As an extremely wise bereaved mom wrote, “a lifetime is an impossibly long time to wait to hold my child again.”
Out of Control
February 22, 2012 at 9:30 pm | Posted in Grief, life lessons, twins, venting | 6 CommentsTags: Buddha, infertility, Jake, life after loss, mario andretti, Sawyer, unexplainable
“If everything seems under control, you’re just not going fast enough.”
– – Mario Andretti
Thank you all so much for the well wishes for Evan. He was cleared to go back to work. He will have quite a few doctor’s appointments in his future but we are hopeful that his health will be back under control soon. I have once again been reminded of an important life lesson. I DO NOT HAVE ANY CONTROL.
I am not sure what happens but sometimes I forget. It is like I have amnesia and I actually believe I have a bit of control. Jake, Sawyer, infertility . . . just to list a few glaring instances where I am not in charge. I will continue to remind myself of the tasks which I can control. Laundry, the dishes, grocery shopping. . .a few which immediately come to mind. As for the rest, I will have to try my best and go with the flow.
I recently read another Buddha story about an old man who accidentally fell into a river leading to a dangerous waterfall. Onlookers feared for his life. Miraculously, he came out alive and unharmed at the bottom of the falls. People asked him how he managed to survive. “I bent myself into the water, not the water to me. Without thinking, I allowed myself to be shaped by it. Plunging into the swirl, I came out with the swirl. This is how I survived.”
Blog at WordPress.com.
Entries and comments feeds.



