Running with the Rosebuds

March 20, 2012 at 10:48 pm | Posted in after death?, life after loss, Love, normal?, twins | 7 Comments
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Last weekend the twins ran in a race to support Cystic Fibrosis.  One of my brother’s best friends, Charlie, had CF.  Cystic fibrosis is an inherited, chronic disease that affects the lungs and digestive system of about 30,000 individuals in the United States, and 70,000 people worldwide. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical care have enhanced and extended the lives of children and adults with CF. Many people with the disease can expect now to live into their 30s, 40s and beyond.

Charlie’s parents were told that he would not live to be a teenager.  He beat the odds and he did live past his teens, twenties and into his thirties.  Charlie was an amazing person who inspired all who were lucky enough to know him.  I hope that Jake and Sawyer have somehow been able to meet Charlie.

Both Evan and his sister have been diagnosed with lung diseases which CF research could potentially one day help.

Click here to see the twins race warm up.

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7 Comments »

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  1. I may start running now that running apparel has been updated to include pink tutus instead of boring stretch pants. How cute is that?

  2. Looks like a great day. Love to see those smiling faces.

  3. Love the pictures and the video! Thanks for sharing them with us.

  4. What a wonderful occasion! You all look happy. May there be many such shared activities and may the research progress to the point of finding a cure for CF and related conditions. I have friends whose daughter has Fanconi’s Anemia and she is among the first adults with the disease. There are breakthroughs and I wish for many more.
    Love, Cornelia

  5. Kids look great! How’d they do in the run? Is it too late to donate for their team?

  6. Thank you so much for speaking about this. I lost my best friend and the woman I considered to be my sister in all but blood to CF on February 25th, 2011. There is not a day that I do not miss hurt and ache from the loss of such a wonderful person in the world and my life.

    Tell your brother I am so sorry for his loss, and of course, my deepest condolences to you always for the insufferable amount of pain you’ve had to endure.

    Charlie, Sawyer, Jake and my Lois are together somewhere on the other side, wherever that may be. They will take care of each other until we get there, and we’ll have to take care of one another on this side, as well.

    So much love for you and your family always.

  7. What cuties, love that you have them so involved in the cause already. xo


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