Running with the Rosebuds

March 20, 2012 at 10:48 pm | Posted in after death?, life after loss, Love, normal?, twins | 7 Comments
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Last weekend the twins ran in a race to support Cystic Fibrosis.  One of my brother’s best friends, Charlie, had CF.  Cystic fibrosis is an inherited, chronic disease that affects the lungs and digestive system of about 30,000 individuals in the United States, and 70,000 people worldwide. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical care have enhanced and extended the lives of children and adults with CF. Many people with the disease can expect now to live into their 30s, 40s and beyond.

Charlie’s parents were told that he would not live to be a teenager.  He beat the odds and he did live past his teens, twenties and into his thirties.  Charlie was an amazing person who inspired all who were lucky enough to know him.  I hope that Jake and Sawyer have somehow been able to meet Charlie.

Both Evan and his sister have been diagnosed with lung diseases which CF research could potentially one day help.

Click here to see the twins race warm up.

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