what i have learned in the 10 years since Jake died
August 31, 2015 at 9:44 pm | Posted in Death, Grief, Jake, life after loss, Love, why I write | 11 CommentsTags: anniversaries, child loss, death of a baby, deathiversary, life after loss, new not so normal, perspective, post traumatic stress disorder, premature birth, what i have learned in the 10 years since Jake died
Dear Jake,
Another August has come and gone – the 10th August since you left this world. I honestly was not sure that I would make it – 10 years seems like an eternity at times but I still find it so hard to believe that it has been that long since your dad and I last held you.
The first thing that I learned is that I will make it through the days, months and years without you. I do not like it and it is excruciatingly hard. But, your dad and I were not given a choice. We are still alive.
I started writing this blog when you were gone for 5 years. Five years also seemed impossible. You would have started kindergarten and your brother Sawyer had died so unexpectedly 8 months earlier. A therapist and a few friends suggested I try writing. I thought why not – maybe I can help myself and possibly help others.
I think I had visions that one day I would change the name of the blog to something other than a mourning mom. It turns out 5 years later I am still a mourning mom. I have not found a cure for hydrops or premature birth. In fact, we still do not even know what caused Sawyer’s death. I have not started a non-profit or a race. And, I still have days when I cannot stop crying because I miss you and your brother so much.
I wanted to write what I have learned in these 10 years living in this world without you. I thought I could write one post to sum it all up but it is not quite that easy. So, this my sweet Jake will just be part 1. I will write to hopefully help others through their own journey. And, even if I cannot help others I know that in another 5 years I will look back on these posts to help myself figure out how to survive the 10 year deathiversary of your baby brother.
August 26, 2015 at 11:44 pm | Posted in Anniversaries, Grief, Jake | 3 Comments
Tags: child loss, dark days, death of a baby, deathiversary, Jake
“When you come to the edge of all the light you know and are about to step off into the darkness of the unknown, faith is knowing that one of two things will happen: there will be something solid to stand on or you will be taught to fly.” – author unknown (borrowed from the walk to remember program)
Birthday Benches
August 20, 2015 at 11:36 pm | Posted in Grief, hydrops, Jake, life after loss, Love, NICU | 9 CommentsTags: baby loss, birthday, child loss, death of a baby, H.E.A.R.T.strings Perinatal Bereavement Office at Northside Hospital, hydrops fetalis, premature birth, ways to honor the memory of your child
Jake never left the hospital. His short life was spent entirely in the NICU. The only other places Evan and I went with him were the consult room and a small outdoor balcony off of the NICU.
While helping with the special project of updating the consult room I heard that the balcony might need some new benches. It seemed to make sense to me that for Jake’s 10th birthday we should get the benches for the balcony. So that is what we did. We miss you Jake.
Dear Jake
August 14, 2015 at 11:18 pm | Posted in life after loss, Love | 8 CommentsTags: baby loss, birthday, child loss, death, death of a baby, gratitude, Jake, life after loss
Happy 10th birthday sweet boy. Thank you for making me a mother. I have tried really hard today to focus on how lucky we are to have had you in our lives even for such a short time. The doctors and the statistics were not in favor of us spending any time on this earth together. You beat the odds and you were born alive. Then the doctors told us that you most likely would not live through the night – but again you proved them wrong. You were such a brave and strong fighter. Thank you for fighting so hard and for making Evan and me parents for the very first time.
I am trying to be brave and strong too but 10 years is an impossibly long time to live in this world without you. I miss you today and always. I hope that wherever you are you know how much you are loved and missed.
Bittersweet
August 8, 2015 at 10:44 pm | Posted in Grief | 4 CommentsIt is hard for me to believe but these 2 celebrated their 8th birthday! I am so thankful and lucky to be their mama.
And, the twins started 3rd grade last week. Here is a picture from the big 1st day.
I did my best to focus on the positive. The first few days of August were so busy with birthday fun and getting ready to go back to school that I almost forgot to brace myself for the bittersweet days.
I did not let myself think about Sawyer who would have started kindergarten. I tried to ignore the dates on the calendar. I know it is not possible but I really want to find a way to skip this month. I am not ready. I do not know how to live through the 10th anniversary of Jake’s death. I will get through this August just like the other 9 Augusts without Jake – I just do not know how.
According to the Jewish calendar the 10th anniversary/yahrzeit of Jake’s death was actually on Thursday. So maybe I lived through it already.
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