Thank you!
April 28, 2012 at 8:06 pm | Posted in Grief, Love, silver lining, why I write | 4 CommentsTags: acting, baby loss, death of a child, gratitude, hope, March of Dimes, premature birth, SUIDS
2 words today:
THANK YOU!!
Random H’s
April 20, 2012 at 6:50 pm | Posted in life after loss, parents, silver lining, twins | 9 CommentsTags: child loss, dogs, grandparents, hair, hope, humor, March of Dimes, new not so normal, random, songs
Hugs:
How To. . .:
Hairdos:
Hounds:
Hope:
I Heart the March of Dimes
April 18, 2012 at 6:18 pm | Posted in Grief, life lessons, Love, parents | 2 CommentsTags: child loss, gratitude, hope, Jake, March of Dimes, Sawyer, tragedy, unexplainable
As I mentioned in my last post, our family supports the March of Dimes. We have walked every year since Jake died. Our team was named Jake’s Journey. After Sawyer died we renamed it to Jake’s Journey & Sawyer’s Strides. This year we are excited because the March of Dimes contacted us to let us know our donations are being matched by the hospital where all 4 of our children were born.
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality. I believe that the March of Dimes is making a difference and saving babies.
I cannot do anything to bring back Jake or Sawyer but maybe just maybe I can help spare other parents the heartbreak of having to live in world without their child/children.
Thank you to all those who supported our team this year and in past years. Thank you also to the hospital for matching funds. We appreciate all of your kindness and generosity. If you would like to support Jake’s Journey & Sawyer’s Strides please click this link.
What I Need
April 14, 2012 at 11:12 pm | Posted in Death, life after loss, mourning, normal? | 19 CommentsTags: autism, child loss, Jake, March of Dimes, new not so normal, perspective, premature birth, Sawyer
I am not always able to adequately articulate my feelings. Jake and Sawyer’s deaths have often left me feeling alone and misunderstood. Sometimes I read something and it is exactly how I think and feel. Reading Four Plus An Angel by Jessica, often leaves me with that reaction. Jessica, writes beautifully about her life without her daughter Hadley.
What I Need by Jessica
I need to say her name without bringing everyone to tears.
I need her life to be included in the count of children, grandchildren, nieces and nephews.
I need kindness on birthdays and understanding on holidays.
I need to stay in bed and a reason to get out of it.
I need to talk endlessly and to let the phone ring.
I need an extra hug and respect for my space.
I need someone to ask how I’m doing and want to know the real answer.
I need careful announcements of pregnancies, baby showers and births, mine did not turn out as I hoped.
I need a “handle with care” sticker for my heart, my emotions have been fragile since the day I said goodbye.
I need patience and reminders for my mind, part of it will always be somewhere else.
I need forgiveness for not being the friend, sister, daughter and wife I used to be.
But more than anything I need you…
your support, your friendship, your understanding…
a lifetime is an impossibly long time to wait to hold my child again.
Two other impressive things going on at Four Plus An Angel:
- Jessica is also an advocate for autism. She has a very cool project going on during April, Autism Awareness month. Jessica is asking for a picture of you or someone you know or love who has autism, holding up a message they would like the world to know about autism. For more details on the project and where to send pictures click here.
- Jessica, like our family, supports the March of Dimes. She is very close to her goal and I am hoping that she makes it. Click on the button below to donate to Jessica’s team.
Yesterday
November 18, 2011 at 9:58 pm | Posted in Anniversaries, Grief, NICU, silver lining | 3 CommentsTags: gratitude, grief, hope, March of Dimes, new not so normal, premature birth
Sometimes I get so caught up in my own story that I miss the rest of the bigger story of the world out there. Yesterday was Sawyer’s birthday. It was also World Prematurity Day. Thank you to Evan for telling me in the first place and to Jessica for reminding me.
November is also Prematurity Awareness Month. Did you know that in the U.S., 1 in 8 babies is born prematurely and worldwide 13 million babies are born too soon each year (statistics from the March of Dimes)? 3 of our 4 children were born premature. So many of my friends’ children spent time in the NICU. If you would like to please comment with who you know who was/is in the NICU.
Another thing happening in the world yesterday was that EC Stilson released her book “The Golden Sky.” She wrote about the life and death of her son Zeke. His birthday would have been today. In honor of Zeke and her book EC had a blogfest. She graciously asked me to participate. I confess that I tried but could not figure out how to post the button.
Today I still have my story but I am also joining the rest of the bigger world’s story. Hopefully, one day I too will find that “after every storm, there is a golden sky” (EC Stilson).
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