Tags: baby loss, birthday, death of a baby, loss of a child, Sawyer
Happy birthday sweet Sawyer!
I have no words today for how much you are loved and missed. So i am borrowing the ones from your headstone:
There are stars so far away we only see their light long after they are gone. Their memories keep shining ever brightly though their time with us is done.
I will look for you in my dreams. Love you always and forever.
Tags: cardiologist, new not so normal, parenthood, Sawyer, thoughts, unexplainable
Today the twins had their check up with the pediatric cardiologist. They were both rock stars during the tests. Their hearts are structurally normal. Everything is fine. We will continue regular activity and come back for our next check up.
These are the results that I want to hear but I would be lying if I said that was all I want to hear. I know that it is not realistic, but I want someone to explain to me the cause of Sawyer’s death. I want there to be a medical answer – something I can protect the twins from ever getting. I want to understand but I know it is very possible that will never happen.
In the meantime, the doctors want to continue to monitor the twins hearts while they are still growing. Medical discoveries are being made every day. Maybe one day the channelopathy (or whatever caused Sawyer’s death) will be found.
All I know for sure is that I will continue to love the twins and protect them the best that we can. And their brothers will continue to live on in all of our hearts forever.
Tags: death of a baby, Jake, life, loss of a child, new not so normal, Sawyer, unexplainable, what i have learned in the 10 years since Jake died
For remembering Jake.
And many thanks for remembering Sawyer.
I am forever grateful to all who keep Jake’s and Sawyer’s memories alive.
Life goes on (as it should) but another one of the important lessons I have learned in the 10 years since Jake died is I am no longer the same person. Some call it their new normal. I do not think there is anything normal about outliving your child/children.
As a surviving parent I am left to make sense of the unexplainable. Some say that we all have purposes in life which we fulfill throughout our lifetimes. So does that mean that Jake and Sawyer just fulfilled their purpose very quickly and therefore they had very short lives?
I wonder what were their purposes? Are Evan and I supposed to help or continue their purposes? I may never know the answers to these questions but I do know that I want Jake and Sawyer to be remembered.
The other day there was a discussion in the back seat of our car about ages of the twins’ friends and their siblings. One of their friends has a brother who was born in September of 2009. Another friend has a little sister born in December of 2009. After we had dropped off their friends, Evan and I talked to the twins about their little brother, Sawyer, who was born in November of 2009.
By Elizabeth Dent
Go ahead and mention my child,
The one that died, you know.
Don’t worry about hurting me further
The depth of my pain doesn’t show.
I’m already crying inside.
The tears that I try to hide.
I’m hurting when you just keep silent.
Pretending he didn’t exist.
I’d rather you mention my child.
Knowing that he has been missed.
You ask me how I was doing.
I say “pretty good” or “fine”.
But the healing is something ongoing.
I feel it will take a lifetime.
Tags: Atlanta Walk to Remember, baby loss, death of a baby, Jake, loss of a child, October 15th, Pregnancy and Infant Loss Remembrance Day, Sawyer
Tomorrow is Pregnancy and Infant Loss Remembrance Day. As part of the day, everyone is invited to light a candle at 7 pm in all time zones, all over the world. The idea is that if everyone lights a candle at 7 pm and keeps it burning for at least 1 hour, there will be a continuous wave of light.
Today and every day I miss Jake and Sawyer but tomorrow at 7 pm we will light candles. This year I will once again hope that the light from all the candles will make the darkness of the unknown a little brighter.
Update – October 15, 2015 at 7:30 pm:
Tags: Atlanta Walk to Remember, death, death of a baby, Jake, loss of a child, new not so normal, Sawyer, thoughts, ways to honor the memory of your child, what i have learned in the 10 years since Jake died
One of the difficult and important lessons that I learned after Jake’s death is that I cannot do this alone. After Jake died, Evan and I were told about support groups. At the time, I could barely come to terms with the fact that Jake was dead and I was not. The thought of going to a group where everyone told their own tragic story of their child’s death seemed unimaginable to me.
Then one excruciatingly dark day in January of 2006, I realized that I needed to know how other parents got up every morning and live in a world without their child/children. Evan and I decided that it was time to go to a support group.
Every year since Jake (and then Sawyer) died we have walked in the Atlanta Walk to Remember. It is an event to connect parents and families together to express grief and remember our babies, and to raise awareness. It is not a fundraiser.
It is just a time to remember our lost babies together.
This year the walk will be held on October 4th. For more information and/or to register for the walk click here:
Tags: anniversaries, death of a baby, deathiversary, life, loss of a child, new not so normal, perspective, post traumatic stress disorder, premature birth, what i have learned in the 10 years since Jake died
Another August has come and gone – the 10th August since you left this world. I honestly was not sure that I would make it – 10 years seems like an eternity at times but I still find it so hard to believe that it has been that long since your dad and I last held you.
The first thing that I learned is that I will make it through the days, months and years without you. I do not like it and it is excruciatingly hard. But, your dad and I were not given a choice. We are still alive.
I started writing this blog when you were gone for 5 years. Five years also seemed impossible. You would have started kindergarten and your brother Sawyer had died so unexpectedly 8 months earlier. A therapist and a few friends suggested I try writing. I thought why not – maybe I can help myself and possibly help others.
I think I had visions that one day I would change the name of the blog to something other than a mourning mom. It turns out 5 years later I am still a mourning mom. I have not found a cure for hydrops or premature birth. In fact, we still do not even know what caused Sawyer’s death. I have not started a non-profit or a race. And, I still have days when I cannot stop crying because I miss you and your brother so much.
I wanted to write what I have learned in these 10 years living in this world without you. I thought I could write one post to sum it all up but it is not quite that easy. So, this my sweet Jake will just be part 1. I will write to hopefully help others through their own journey. And, even if I cannot help others I know that in another 5 years I will look back on these posts to help myself figure out how to survive the 10 year deathiversary of your baby brother.
Tags: dark days, death of a baby, deathiversary, Jake, loss of a child
“When you come to the edge of all the light you know and are about to step off into the darkness of the unknown, faith is knowing that one of two things will happen: there will be something solid to stand on or you will be taught to fly.” – author unknown (borrowed from the walk to remember program)
Tags: baby loss, birthday, death of a baby, H.E.A.R.T.strings Perinatal Bereavement Office at Northside Hospital, hydrops fetalis, loss of a child, premature birth, ways to honor the memory of your child
Jake never left the hospital. His short life was spent entirely in the NICU. The only other places Evan and I went with him were the consult room and a small outdoor balcony off of the NICU.
While helping with the special project of updating the consult room I heard that the balcony might need some new benches. It seemed to make sense to me that for Jake’s 10th birthday we should get the benches for the balcony. So that is what we did. We miss you Jake.
Tags: baby loss, birthday, death, death of a baby, gratitude, Jake, life, loss of a child
Happy 10th birthday sweet boy. Thank you for making me a mother. I have tried really hard today to focus on how lucky we are to have had you in our lives even for such a short time. The doctors and the statistics were not in favor of us spending any time on this earth together. You beat the odds and you were born alive. Then the doctors told us that you most likely would not live through the night – but again you proved them wrong. You were such a brave and strong fighter. Thank you for fighting so hard and for making Evan and me parents for the very first time.
I am trying to be brave and strong too but 10 years is an impossibly long time to live in this world without you. I miss you today and always. I hope that wherever you are you know how much you are loved and missed.
It is hard for me to believe but these 2 celebrated their 8th birthday! I am so thankful and lucky to be their mama.
And, the twins started 3rd grade last week. Here is a picture from the big 1st day.
I did my best to focus on the positive. The first few days of August were so busy with birthday fun and getting ready to go back to school that I almost forgot to brace myself for the bittersweet days.
I did not let myself think about Sawyer who would have started kindergarten. I tried to ignore the dates on the calendar. I know it is not possible but I really want to find a way to skip this month. I am not ready. I do not know how to live through the 10th anniversary of Jake’s death. I will get through this August just like the other 9 Augusts without Jake – I just do not know how.
According to the Jewish calendar the 10th anniversary/yahrzeit of Jake’s death was actually on Thursday. So maybe I lived through it already.