Tags: dark days, help, holidays, hope, loss of a child, new normal, ways to honor the memory of your child
I am not always strong enough to get through the hard days by myself – especially during the holidays. I look to others to see what they do during these happy/sad celebrations without their child/children.
One of my friends always includes her “angel” on their family holiday card. Their daughter, like Sawyer, died during this festive season. It is so bittersweet to read her name on the card but it always reminds me that I am not alone.
Another friend, has created a family tradition to bring unwrapped holiday gifts to all in-patient oncology kids who are in the hospital where her daughter spent her last Thanksgiving and Christmas.
A few years ago one mom was looking at outgrown Christmas dresses and thinking of her little girl who never got to wear them at all. She decided to create a Holiday Clothing Drive. She asks people to donate gently used holiday clothes to others in need.
I know that there will be other dark days but I will try to continue to search for hope.
Tags: anniversaries, Compassionate Friends, Newtown, Sandy Hook Promise
This Sunday is also the Worldwide Candle Lighting created by The Compassionate Friends. The purpose of the event is to unite “family and friends around the globe in lighting candles for one hour to honor and remember children who have died at any age from any cause.”
At 7 pm around the globe candles will be lit to create “a virtual 24-hour wave of light as it moves from time zone to time zone.” The Compassionate Friends is an organization which was formed to support families after a child has died. Its founder, Simon Stephens, states the mission is “about transforming the pain of grief into the elixir of hope.”
Tags: hope, life, thankful, Thanksgiving
I know Thanksgiving was last week but. . .
Hope that you all had a very happy Thanksgiving!
Tags: be nice, death, kindness, loss of a child, new normal, parenthood, quotes, siblings
I have previously written about being asked “How many children do you have?” Over the years, I have different responses to this question. It may always be a tricky question for me to answer or maybe one day I will come up with the perfect response. I will let you know.
“How many brothers and sisters do you have?” is the bereaved sibling’s version of this question. They are both such common and polite questions but the answers for some of us are so complicated.
The other day on the playground a classmate asked one of the twins, “Do you have any brothers and sisters?”
She answered, “Yes, I have a twin brother and my 2 other brothers, Jake and Sawyer, passed away. “
The second grade little boy answered, “Jake and Sawyer probably passed away to get away from you.”
Our little girl walked away. She is not perfect, she has and will say mean things at times too. I wish I could protect all of my children all the time. Jake and Sawyer have taught me that I cannot. As much as I hate it, there are things beyond my control. I am going to do my best to teach kindness to the 2 who are physically with us.
Tags: baby loss, birthday, gratitude, grief, life, loss of a child, new normal, Sawyer
Tomorrow would/should be your 5th birthday. Five years ago tonight we were all anxiously waiting to meet you. Your Nanny and Pop came to take care of your big brother and sister while your daddy and I went to the hospital.
I still cannot believe that you are not here with us. Some mornings I wake up and hope that it all has just been a horrific nightmare. However, you are gone and this is our reality. You are forever frozen at 6 weeks old. There are no new pictures to post. I know that I am so lucky to have the ones that we did take. I just wish there were more.
I miss you so much. Happy birthday sweet Sawyer! As always, I will look for you in my dreams.
Tags: death of a baby, grief, hope, Jake, Jewish customs, new normal, Sawyer, unexplainable
After Sawyer died a rabbi spoke to me and Evan. Evan told him that he was very angry. The rabbi told Evan to go ahead and be angry at G-d, ” because if anyone can handle it, He can.” This made sense to me.
The rabbi went on to tell us a story that did not make too much sense to me at the time. He told us about a rabbi and his wife who were walking back from their son’s funeral. The wife asked her husband, “what now, what do we live for?” The husband answered that we live for our living children and to carry on the memory of our son. Tragically, the next child of this couple dies. And once again, walking back from the funeral the wife asks her husband, “what now, what do we live for?” The husband gives the same answer, “we live for our living children and to carry on the memories of our sons.”
The story goes on until the couple has walked back from the funerals of all their children. The wife once more asks, “what now, what do we live for?” The husband says we are to carry on the memories of our children and we are reminders to everyone else in the village to be thankful for what they have.
My initial response to this story was, “why us? Why do Evan and I have to be the reminders? Why can’t we just have Sawyer back?” Over the years my thoughts about this story have changed. I know that we cannot have Sawyer back. I know that we will always carry on Jake and Sawyer’s memory. Evan and I did not choose this journey but here we are – and I may never truly understand why. I do know Jake and Sawyer do remind us to hug the twins a little tighter and to appreciate what we do have.
“I know God will not give me anything I can’t handle. I just wish He didn’t trust me so much.” Mother Teresa
Tags: death of a baby, fetal harm cases, pathology, Rennie Gibbs, thoughts, unexplainable
In the spring I wrote a post about a Mississippi woman who was accused of murdering her stillborn baby. Rennie Gibbs was 16 years old and 36 weeks pregnant when she was admitted to an area emergency room. Her baby was diagnosed with “fetal demise” – the umbilical cord was wrapped around the baby’s neck. Doctors induced labor and Gibbs delivered a stillborn daughter she named Samiya.
Gibbs’ case is part of a wave of “fetal harm” cases in which women are prosecuted when their babies are stillborn or otherwise die and traces of drugs are found in their system. In this case, medical facts establish the cord as the cause of death. Medical professionals, including Sawyer’s pathologist, determined that it is impossible to conclude that drug use on the part of the mother caused stillbirth.
The charges have been dropped against Rennie. Thank you to Chris for commenting on my past post with the update. Every mom feels guilt when their child dies – even without being charged with murder. I am so glad that the judge in Mississippi dismissed the charges. He ruled that the “law was unclear in Mississippi as to the appropriate charge, if any, to be levied when a pregnant woman allegedly consumed illegal drugs and allegedly caused the death of her unborn child.”
Tags: Dr. Irving, Sunday Smiles, tips for organizing art
Here are a few of the things that made me smile this week:
- My friend Kelcey made a very funny video about 5 ways to recycle kid’s artwork. If you are in need of a smile (and tips to recycle artwork) click here .
- We met Dr. Irving the monkey doctor this weekend. Dr. Irving and his trainer provide assisted therapy for children with special needs. They also travel with a bird.
- This is my second post in a row that is not in the “grief” category.
Tags: goats4hire, hope, life, new normal, smile, thoughts
I was trying to write this for a fun Friday post but I seemed to have missed it by a few days. I wanted to share a few of the things that have been making me smile recently. Please meet Darth Vadar:
These are just 2 of the goats who have been clearing the land for a new park near our house. When driving or walking through the neighborhood it has been fun watching these goats.
Evan and one of the twins even got interviewed about the park by the local NPR station. Click here if you would like to listen to the interview. (They did not get our names entirely correct but it is us.)
Tags: baby loss, death of a baby, doctors, new normal, ob/gyn, post traumatic stress disorder, thoughts
After Jake died we did switch ob/gyns but not initially. Evan and I decided that so few people knew Jake and our ob/gyn at the time was one of those few. It also seemed daunting to start all over with a new doctor. We saw her throughout the pregnancy with the twins however, we switched right after. I will explain that story in another post.
I still go to the ob/gyn group that we saw during my pregnancy with Sawyer. I love the doctor who delivered Sawyer but I decided to switch doctors within the group for my annual check ups. Just like after Jake died it seemed like starting over with a new doctor was too daunting. By staying in the practice I have not had to start over from the beginning with all the forms.
I (most likely along with a majority of the female population) do not love going for my annual check ups. I wonder if the waiting room is so upsetting for everyone. How does it feel to look at all the happy baby pictures on the walls when you have not buried 2 babies? I do not think that there ob/gyns who specialize in bereaved mothers but maybe they are out there. Would you switch ob/gyns if your baby died?