Research & Rainbows

July 22, 2016 at 4:44 pm | Posted in Grief, Jake, Sawyer, silver lining | 2 Comments
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Evan and I have spent the past few days at the March of Dimes national conference. We met amazing people and other family teams from all over the country committed to the cause of healthy babies.  We heard doctors speak about the research that is being done to lower the alarming rate of infant mortality.

Every year 23,000 babies in the United States of America do not live to celebrate their first birthday due to prematurity alone (this number does not include still born babies or babies who die due to known or still unknown birth defects and genetic conditions).

Jake and Sawyer will forever be a statistic of infant mortality from the years 2005 and 2009. I cannot change those facts.

I can commit to doing whatever I can to help reduce those 23,000 deaths of babies born too soon. I do not want any other families to stand by/watch their child/children take their last breath.

In one discussion at the conference, the topic of “Rainbow Babies” – babies born to families after the prior death or stillborn birth of a child – came up. I am so thankful to the March of Dimes’ doctors, researchers and volunteers.  Without all of their hard work ours and many other families’ rainbow babies may not be here.

As I have written about before, the twins and I are always searching for rainbows.  We have not had a rainbow baby after Sawyer (he was a rainbow himself, of course), but perhaps our rainbow is a part of lots of other little babies we are helping through the March of Dimes.

Somewhere Over the Rainbow

The way I see it, if you want the rainbow, you gotta put up with the rain.  – Dolly Parton

A “rainbow baby” is a baby born following the death of your child.  Urban Dictionary defines a rainbow baby as the following:

“In the real world, a beautiful and bright rainbow follows a storm and gives hope of things getting better. The rainbow is more appreciated having just experienced the storm in comparison.

The storm (pregnancy/child loss) has already happened and nothing can change that experience. Storm clouds might still be overhead as the family continues to cope with the loss, but something colorful and bright has emerged from the darkness and misery.”

After Jake died Evan and I both knew that we wanted to try to become parents again.  I mistakenly thought that after your child dies you should get some sort of “get a baby free pass”.  There was no pass for us.  When we did start trying again we found ourselves on the roller coaster of infertility.  We started with cycles of injectables.  We moved onto 6 rounds of IUI’s (think turkey baster if you are not familiar with this term).  Finally after 2 IVF cycles we were so very lucky to have our own rainbow babies in July of 2007.

In the fall of 2009 we once again had a rainbow baby.

Who knew another storm would come so soon?  I am trying to learn from the twins how to look for rainbows everywhere.  Some days it is harder than others to find any light through the darkness.  The twins are pretty good teachers because the other day I looked out of the office building where I was working and this is what I saw. . .

After a hurricane comes a rainbow – Katy Perry

 

 

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2 Comments »

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  1. Amazing post, Lanie. Thank you for sharing. I learned quite a few things from this–including the term “rainbow babies”. It really sheds some additional and interesting perspective.

  2. Beautiful, Lanie. I saw a rainbow on my way home last night and thought of you.


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