Traveling with the Twins
June 30, 2013 at 9:38 pm | Posted in Grief, Jake, life after loss, Sawyer | 6 CommentsTags: child loss, death of a baby, grief, hope, life after loss, new not so normal, perspective, signs, thoughts, travel
Most of this month we have been away. The first few weeks were work trips mixed with family and friends. The last part of the month we were away for fun. I used to travel all the time. It is hard to travel with small children but if I am honest with myself there is another reason I like to stick close to home.
I do not like to be away from the cemetery. I know that Jake and Sawyer are not really there but I still feel a need to go there. If nothing else to make sure that all is ok. I no longer go to the cemetery every day but I do not like the idea that I am not able to visit. I felt better about being away for so long because I knew that others would be there to check on them.
The trips were all good. There were some meltdowns and a taxi ride where not one but BOTH of the twins got sick. The taxi driver pulled over each time and we paid for him to get his car cleaned. . . However, we had fun. It was good to see family and friends.
I have written here and here that I do not know where exactly Jake and Sawyer are, except that they are in our hearts. No matter where we travel they come with us. There were times that the twins collected stones to bring to Jake and Sawyer. And, there were little signs that I like to believe Jake and Sawyer sent to us.
Family Medical Leave Act
June 18, 2013 at 4:44 pm | Posted in after death?, Grief, Jake, life after loss, Love, Sawyer | 4 CommentsTags: child loss, death of a baby, Family Medical Leave Act (FMLA), life after loss, new not so normal, Parental Bereavement Act (Farley-Kluger Initiative), post traumatic stress disorder, thoughts
According to the US Department of Labor the Family Medical Leave Act of 1993 (FMLA):
“Entitles eligible employees of covered employers to take unpaid, job-protected leave for specified family and medical reasons with continuation of group health insurance coverage under the same terms and conditions as if the employee had not taken leave. Eligible employees are entitled to (among other things):
- Twelve work weeks of leave in a 12-month period for:
- the birth of a child and to care for the newborn child within one year of birth;
- the placement with the employee of a child for adoption or foster care and to care for the newly placed child within one year of placement;
- to care for the employee’s spouse, child, or parent who has a serious health condition;
- a serious health condition that makes the employee unable to perform the essential functions of his or her job
The problem is once the family member dies there are often little or no benefits. When Jake died I had a c-section and could not return to work for 6 weeks. The ironic thing was that after he died all I wanted to do was go back to work because being on maternity leave with no baby was beyond awful for me. Evan’s work was extremely understanding and kind. He ended up missing about a month of work – the 2 weeks Jake was alive and then the 2 weeks after his death.
When Sawyer suddenly died Evan again missed 2 weeks of work. Again, we were very fortunate that his work was so understanding. I know that is not always the case. Dealing with the death of your child and the stress of an employer not giving you time off is too much for anyone.
Bereaved father, Kelly Farley, is taking action to fix this issue. He has created the Parental Bereavement Act (Farley-Kluger Initiative). It is a petition to modify the existing Family Medical Leave Act. The objective of Petition is the following:
“Modify existing FMLA to expand coverage and existing benefits to employees that have experienced the death of a child.”
If you would like to support this modification of the FMLA please click this link to sign the e-petition. I have already signed it!
Father’s Day
June 16, 2013 at 9:14 am | Posted in Grief, Jake, life after loss, Love, normal?, Sawyer | 7 CommentsTags: child loss, death of a baby, father's day, Grieving Dad's Project, new not so normal, parenthood, perspective, thoughts
Several years ago I adapted this poem (A Mother’s Day Wish From Heaven) by Jody Seilheimer, for Father’s Day. This year I came across another (more accurate, I think) poem for a bereaved father. It was sent to Kelly Farley, creator of a Grieving Dad’s Project, from Grief haven.
Dear Mr. Hallmark ….. One More Time
Hello there Mr. Hallmark man,
I wrote to you in May
To ask that words of love be shared
With my mom on Mother’s Day.
Just as there is no card for Mom
To let her know I care,
There is no card for my dad, too,
And I have so much to share.
It’s very hard for my loving dad
To know that I’m okay.
To protect me was his job, he feels,
So he thinks he failed some way.
Although I had to leave this world,
While still considered young,
There is no way he ever failed—
There’s no more he could have done.
My dad he tends to question
Those things he cannot see.
I always send him little signs
To say, “Hey, Dad, it’s me!”
I hear him crying in the car,
The shower hides his tears.
He feels he has to be so strong
For those he holds so dear.
My dad he often gets so mad
At what became of me.
He wants so much to understand,
He says, “How could this be?”
I somehow need to let him know,
Though impossible it seems—
For him to live and laugh again
Will fulfill so many dreams.
The card I need to send right now
To a dad as great as mine,
Will thank him for the love he gave
Throughout my brief lifetime.
He’s still the one that I call Dad,
Our bond’s forever strong,
‘Cuz even though he can’t see me,
Our love lives on and on.
Please help me find a way
To tell my dad that when
It comes his time to leave the earth
I’ll be waiting there for him.
And also, Mr. Hallmark man,
Please help him to believe,
That nothing will ever change the fact
That my dad he’ll always be.
Right Where I am: 7 years, 9 months, 2 weeks and 3 years, 5 months and 2 weeks
June 8, 2013 at 12:44 am | Posted in life after loss, Love | 10 CommentsTags: child loss, death of a baby, grief, new not so normal, perspective, thoughts
I am, once again, joining still life with circles for right where I am. Angie started this project 2 years ago. She asked other bereaved parents to write about where they are in their grief, kind of like “a map on the road of grief.”
I am right here, 7 years, 9 months, 2 weeks since Jake died. This week I have been working in the office I returned to after my “maternity” leave with Jake. I remember walking down the halls looking for places I could duck into so that others walking by me would not see my tears. This week there were no tears. Seven years ago, I would start my sentences unsure that I could follow my own thoughts long enough to complete them. This week I know I can finish my conversations without being overtaken by missing my baby boy. The memories of Jake are safely tucked away as I continue to live my life. It is exhausting.
I am also 3 years, 5 months and 2 weeks since Sawyer died. His unknown cause of death does not preoccupy my every waking moment but I am haunted by the emptiness. My inability to protect yet another son from death still makes me want to scream (perhaps not as loudly as in year one or two). I try to stay present and not let my mind wander to the 3-year-old boy who I will never know. I do not always succeed.
I do not think of the miscarriage. There is no point.
I try to live, hope and take care of my living children. However, there is another part of me who wants to be with all of her children.
I am right here.
Hasta Luego House and Hair
June 2, 2013 at 11:48 am | Posted in Grief, life after loss, Love, normal? | 7 CommentsTags: child loss, death of a baby, hope, Jake, life after loss, new not so normal, perspective, post traumatic stress disorder
“How would this do: and they all settled down and lived together
happily ever after?’
‘It will do well, if it ever comes to that,’ said Frodo.
‘Ah!’ said Sam. ‘And where will they live? That’s what I often wonder.”
― J.R.R. Tolkien, The Fellowship of the Ring
I wrote about our old house in this post. We had been renting it since we moved in 2007. It was not the plan to rent it all this time but as my grandfather used to say “people make plans and G-d laughs.” And, there was the real estate market crashing. . .
Last week we sold the house. Before the closing I went in to walk around. I stood in what was supposed to be Jake’s room. The once baby blue walls are now whitish. The room was empty. No tears filled my eyes as I entered. Jake was not there. I did not really think that he would be – I know that he is with me where ever I go. The address does not matter.
Completely unrelated (except for the fact that it also happened last week), I donated my hair for the 4th time to Pantene’s Beautiful Lengths. So far, “Pantene has donated 24,000 free real-hair wigs” to cancer patients throughout the country. It takes 6 donations to make 1 wig. So, I have officially donated 2/3 of 1 wig.
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