Cora’s Story & CompromiseJune 22, 2012 at 2:02 pm | Posted in CHD, Grief, Love | 6 Comments
Tags: congenital heart defect, cora's hopes and dreams, cora's story, death of a baby, hope, loss of a child, pulse ox, Sawyer, twins, ways to honor the memory of your child
Cora was a full term healthy baby girl born on November 30. The pregnancy, birth and delivery were all uneventful. Cora’s Apgars were both 9s. She died on December 6 while breastfeeding in her mother’s arms. After her death, Cora was diagnosed with a congenital heart defect (CHD).
Her mother, Kristine, created a non-profit which is spreading CHD research, resources and information in memory of Cora. CHD is actually the most common birth defect – it occurs in 1 out of 100 births. There is no cure but early detection is sometimes possible with a pulse ox screening. Screenings are a low-cost, noninvasive way to potentially detect CHD.
Cora’s mom is also advocating for every baby to receive a heart screening at birth. Cora might not physically be with us now but as her mom writes so eloquently, “Cora is saving lives now.”
Cora and Sawyer were born in the same month of the same year. They both died that year too. Sawyer’s preliminary reports also indicated an issue with his heart. We still do not know exactly what happened to Sawyer but I know that I wish he had received a heart screening at birth. Thank you Kristine for sharing Cora with the world. She is truly saving lives.
She really wanted to go swim in the pool. He really wanted to play pretend at home. After a lot of pleading, crying and whining they finally reached a happy compromise.